We went to the ENT on the 14th and the Cranial facial Dr. on the 15th.
At the ENT she looked at his apnea report and 27 events on it but only 1 was longer then 20 sec. After some talking we decided the best thing to do would be to have a scope of the back of his mouth done. It was an in office. I sat in the chair and held him on my lap and with the help of the nurse kept him still (wow 13.8lbs a 2 months old he is strong). The scope went in his nose and he fussed she said it stings like getting water up your nose (lol he kept trying to sneeze it out). Before it was done she told me what they would be looking for and what it would mean. We where able to see the vocal cords. So that means he is not even a able to qualify for the tongue reduction because the back of his tongue is not blocking him from breathing at this time sitting up so positions are going to stay important. We go back in 6 weeks at that point we will set up a repeat sleep study. She said she would never have the jaw surgery done to her child unless it was life or death. She thought he would out grow it between 6-12 months and just stay on o2 until that happens.
At the cranial facial Dr. the next day he explained more about the jaw surgery. Heath would be sedated and given a trach. They would make 2 incisions outside under his jaw bone and insert hardware with bolts handing out of his scars. Over time the screws would be turned to force his bone to grow at a faster rate, much like how they get children with short legs to grow. Not only surgery be major but each turn will be painful, during recovery. Lucky though when the Dr. saw Heath the 15th he was impressed with is wight gain since the last visit and did not think the apnea report called for imitate intervention. He even said to his trained eye he can see his jaw is growing out on it's own and in his words "was showing more chin" We talked about the ENT visit with scope view and the plan to repeat the sleep study in approx 8 weeks. Not to go back to see him until after the sleep study because that is what the cranial facial Dr. likes to look at for info not the apnea alarms.
Plan is 6 week ENT visit, followed by sleep study and then cranial facial visit in about 10-12 weeks. At that point depending on what the study says he said we may even start talking about weaning off the O2.
So that was good news both specialist seemed to think he was still to young to do surgery and was showing improvement of not getting worse and even improving, but it was to early to know for sure at his age it is still all up in the air and we just have to hope he keeps thriving.
At this point the o2 is so part of our baby routine I don't think we even thing about it anymore and it no longer takes me any extra time to get out of the house.
