Full Listing of the Blog
Heath's Journey Nov 2 09 (the last few months)
On Aug 31 Heath's hearing aid molds where made. The Audiologist was so nice and answered a lot of my questions about infants with hearing loss and even gave us some places we can call to get support.
Heaths Journey 8/21/09
We had a good week.
On Sunday while David I and the kids where playing a game Heath got up on all 4's and started to do this bunny hop/belly flop to get him self around. So on Monday he did it durring PT and we have a forward moving little buddy now!!!! It is not crawling yet but he is getting around and that counts.
Heaths Journey 7/24/09
Hi everyone. We are home safe in GA.
We went to ENT on Tuseday. She says his tounge is starting to fit in his mouth better but that he is still having controle issues (nothing I did not know I am the one that feeds him and we are not able to get him to take baby food mush yet and swallow it) He had lots of wax in his ears and at first she thought maybe that was causing the hearing issues I was noticing. After cleaning them out (he cried) she was able to look in his ears and he has no infection (he has never had one) so they said he was ready to have his hearing tested.
Heath's Journey 6/5/09
Yesterday was Heath's 2nd EEG. It was a much more extensive test then the first EEG they tried to induce his spasms not just observe him and I should have the results by Wed. Parts of it he had to be awake for and parts of it asleep and some of it was him watching strobe lights. He had no big events but did do some odd moments after the light.
Heath's Journey 6/1/09
We are home!!
I am going to back track a little so I only have to type this out once and can copy and paste it to his blog.
Heath's Journey 5/14/09
Pedi follow up went well she did not think he had and EI worth treating as he has no symptoms but because audiology wont see him unless they are clear (slight pink) she said to fill the Rx and make a visit to have him tested and give him the meds for 10 days before it to make sure he is clear of any pinkness for his test.
Heath's Journey 5/12/09
We are home.
We stayed another night because he was acting all drugged and sleepy and vomited twice after the MRI.
Heath had one more test done today before we left and failed the hearing screen in both ears. This could have something to do with the speech issues he has. We will be doing more follow up with this with his ENT.
Heath's Journey 5/10/09
He is asleep so I was able to get away.
Today we had PT come and he is responding well to her cues and he thinks it is lots of fun to work on the ball and with her toys. Speech should be comming to see him Monday.
Heath's Journey 5/8/09
I just got to step away.
Last night I had to stop feeding him at 4am so he could be sadated for the EEG and MRI. At 8am they took us for the EEG. He did well and we did not need to give him any meds during the test he just slept in my arms in a chair. The test took about 45 min.
The rest of the day has been spent with many teams looking at him and eatting nothing by mouth so he was not happy.
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