Experience With Neurological Issues
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Thread: Experience With Neurological Issues

  1. #1
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    Default Experience With Neurological Issues

    This is probably a long shot but I am wondering if anyone has experience with their kids having neurological issues.

    Quick backstory..
    My youngest son was born at 26 weeks and 3 days last August. For the most part he's been healthy but has low tone issues. He has been getting PT once a week since April and OT through Early Intervention since January of this year.

    He has routine visits with the NICU follow up clinic to check on development growth, etc.

    This past visit which happened a few weeks ago, they were concerned about his lack of progress with PT. So they ordered an MRI on his brain. Most of it came back normal but there was an abnormal section which they said was smooth and lacked the amount of white matter you typically have in that area. The neonatologist was not sure if this was something to be concerned with or not so we are being referred to a neurologist next month.

    Needless to say I am a little concerned and trying not to google it to much.

    So long short, has anyone experienced something like this?

    Thanks
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  2. #2
    Community Host meggyrn's Avatar
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    Sorry I don't have any experience with this. I know how hard it is to stay away from google. Hope you get some answers from the neurologist.

    Meg-30 DH-42

    2 IUI's-BFN
    IVF #1-cancelled d/t embryos arresting before transfer (3/09)
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    Online Community Director MissyJ's Avatar
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    (((((((((((HUGS))))))))))))) Nicky, I don't have answers for you but definitely will be keeping you all in my thoughts and prayers. Please DO give us an update when you are able.

    ~Missy

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    No advice, but lots of HUGS!

    ~Bonita~

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    Quote Originally Posted by meggyrn View Post
    Sorry I don't have any experience with this. I know how hard it is to stay away from google. Hope you get some answers from the neurologist.
    Thank you
    I am hoping so too
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  6. #6
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    Quote Originally Posted by MissyJ View Post
    (((((((((((HUGS))))))))))))) Nicky, I don't have answers for you but definitely will be keeping you all in my thoughts and prayers. Please DO give us an update when you are able.

    ~Missy
    Thanks Missy and I will. Sept 9th can't come quick enough
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  7. #7
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    Quote Originally Posted by AlyssaEimers View Post
    No advice, but lots of HUGS!
    Thanks
    AlyssaEimers likes this.
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  8. #8
    Community Host ChristaM's Avatar
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    Hi:

    First of all, hugs! While I don't have experience with your situation, my daughter has ADHD and sees a neurologist. Overall, it has been a good experience.
    Me: Christa, 41
    DH: Craig, 47 (Married: 8/19/05)
    DD: Kendall Evelyn (10/6/06)
    DS: Quentin Vincent (4/14/09)

    : November 2012@ 10 weeks (due date: 6/22/13)
    : June 2013 @ 7-1/2 weeks (due date: 2/10/14)
    : December 2013 @ 4 weeks (due date: 8/9/14)
    : April 2014 @ 4 weeks (due date: 1/1/15)
    : July 2014 @ 4 weeks - Chemical (due date: 3/5/15 )

  9. #9
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    Quote Originally Posted by ChristaM View Post
    Hi:

    First of all, hugs! While I don't have experience with your situation, my daughter has ADHD and sees a neurologist. Overall, it has been a good experience.
    Thank you
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  10. #10
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    So Sam had a EEG which came back showing seizure activity.

    I was wondering if anyone may have experience with focal seizure disorders?
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

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