News Story: Newborn Battles Rare Genetic Disorder

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cayxcee1's picture
Joined: 11/22/10
Posts: 70
News Story: Newborn Battles Rare Genetic Disorder

Hi ladies. I am from Indiana and my mother saw this on our local news today. It is about a little boy who is only a month old with a very rare disease so rare its 1 out of 1,000,000 in every child. At the very bottom of the article there is a link you can click on to fallow him on facebook. I would love to get the word out about this little boy and his family.

http://www.wlky.com/news/28349279/detail.html

MissyJ's picture
Joined: 01/31/02
Posts: 3218

I am so sorry to hear of this story and agree that it is heartbreaking to watch any child suffer. The physical and emotional turmoil for families going through these type of battles is horrific. Add in the financial strain and the burden is unbearable.

While I am allowing this post to remain with an edited title, please do know that by our community guidelines regarding donations/solicitations we can't allow the same post to be spammed throughout the site.

Please know that absolutely I am not suggesting that this cause is not worthy. Unfortunately, there are so many, many families facing these type of battles with their own children... including our very own Pregnancy.org members that are equally as desperate for our support and prayers. You likely can read about some on this board.

I do thank you for sharing Brody's story and I will be keeping him and his family in my thoughts and prayers.

If you have further questions / concerns, please let drop me an email anytime.

~Missy (missyj@pregnancy.org)

cayxcee1's picture
Joined: 11/22/10
Posts: 70

Im sorry i must have missed that part while reading them when i first joined. I now know that and i will edit my post. Thank you for the info Smile