I don't have anything helpful to add, but I will be following your posts, as we are just starting down this road. My newborn DS has some physical quirks that don't point to one obvious diagnosis, but may or may not be part of some syndrome. His doctor in NICU sent off a couple chromosome panels (one microarray that will take a couple weeks to come back, and a shorter, simpler one that is supposed to take 72 hours). Waiting on both results at this point.<br><br>Hope your results come back and give you a clear direction of what's next and how to best help your little guys.
(((HUGS)))) Sorry that you are going through this now as well with your newborn. Please KUP on how the results come back and any other way we can offer you support! Unfortunately Nicky does have that btdt experience to share and can be a resource for you.
I am sorry you are doing through it as well. Was your newborn early? Just wondering. I hope you get some results and answers
Oh are you still in the NICU?
Sorry about the all the questions.
So if I can help in anyway please let me know. I am pretty much an open book and Missy knows my story well. I have been around and not around Preg.org for quite some time. (crazy to think it's been like 12 years...)
I bookmarked your blogs, read a little bit of the backstory, and will be following them.<br><br>I know you read my other post, but I'll answer some here too. DS was born full term, no issues anticipated or seen on any prenatal ultrasounds. Taken to NICU at about 21 hours old because of breathing issues. Biggest diagnosis was pulmonary hypertension. Spent 9 days there, discharged home.<br><BR>Initial chromosome test came back normal, 46XY. Waiting on microarray.<br><br>Also trying to get this little guy to gain weight.. He nurses well but spits up a lot and so far has not gotten back up to his birth weight.