Seeking ADHD info
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  1. #1
    Community Host ChristaM's Avatar
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    Default Seeking ADHD info

    Hi:

    My 6 year old daughter was recently diagnosed ADHD; we go for a neurologist exam on Feb. 26. In the mean time, I'm looking for information on good resources, online or print, tips, advice, etc. We live in Illinois if that makes a difference at all. Trying to educate myself so that I can be a positive advocate for her. We are fortunate this year that her kindergarten teacher has an adult son who is also ADHD, so she is well educated and prepared to assist in the classroom this year. But, I want to be sure we set her up for success moving forward as well.

    Thanks,
    Christa
    Me: Christa, 41
    DH: Craig, 47 (Married: 8/19/05)
    DD: Kendall Evelyn (10/6/06)
    DS: Quentin Vincent (4/14/09)

    : November 2012@ 10 weeks (due date: 6/22/13)
    : June 2013 @ 7-1/2 weeks (due date: 2/10/14)
    : December 2013 @ 4 weeks (due date: 8/9/14)
    : April 2014 @ 4 weeks (due date: 1/1/15)
    : July 2014 @ 4 weeks - Chemical (due date: 3/5/15 )

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    Prolific Poster CrysRee31's Avatar
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    I'm a fan of ADDitude Magazine they have a great website even if you don't subscribe. I get a regular email newsletter (free) from them as well. Tons of information and tips not just for parents. You may find it even more helpful than I because there are plenty of articles related to education that don't pertain to us as we're in Canada

    My daughter was diagnosed at 7 and let me tell you as hard as it is it gets better! The more you know the easier it can be

    Oh and any questions feel free to PM me
    Crystal







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    Posting Addict HockeyTownMom's Avatar
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    I'm going to keep my eye on this, ds age 5 was just diagnosed in November.
    Kristina, (formerly known as ~Kristina~)
    doula and apprentice midwife
    Wife to Jesse 8.18.01
    Mom to Ayden 12.18.01, Kailey 7.1.03,
    Ashlyn 6.11.05, Dylan 9.29.07 & Riley 12.8.09

  4. #4
    Online Community Director MissyJ's Avatar
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    Hi Christa (& all),

    I know we have a number of articles onsite that you may find beneficial. Here are a few:

    Is Your Daughter a Daydreamer - Undiagnosed AD/HD (This has additional resources listed.)

    ADHD and Sleep

    Friend-Making Skills for Kids with ADHD and Asperger's Syndrome

    Physical activity may help kids with ADHD do well in school


    Most families I've worked with (volunteer) following a diagnosis of ADD or ADHD have found CHADD (Children and Adults with Attention Deficit/Hyperactivity Disorder) helpful both for online resources and local chapters support. There is a fee for membership though. If you need additional connections, drop me a note and I'll see what I can find out.

    HTH,
    ~Missy
    DrakePlusOne likes this.

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    Posting Addict AVoiceInTheWilderness's Avatar
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    Have you looked into controlling through diet, supplements, theraputic essential oils?. My son was diagnosed with grand mal, frontal, absence seizures, 1 1/2 yrs ago. We went the med route first. 3 failures and I decided to take a natural approach. Since then, NO status epilepticus in 14 months and only 3 break throughs (frontal), that we know were due to diet/sleep being off. Just a consideration..Hang in there
    Marie
    Old username ~ Mom@41

    Missing my many lo's in heaven....
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    DS ~ Carson

    ~Thank you God... for healing what doctors could not fix~

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    Posting Addict wishing4agirl's Avatar
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    Diet isn't actually such a strange idea Christa. I know lots of people who have done things with diet and the more natural approach and it helps greatly for Autism and I think I have heard of people mentioning ADHD. Especially eliminating gluten as it can cause behavior problems in some children while medical tests show negative for celiac disease. Just thought I'd ditto Marie's response.

  7. #7
    Posting Addict HockeyTownMom's Avatar
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    It's a great idea...if they aren't picky eaters. My ds has only a few foods he'll actually eat.
    CrysRee31 likes this.
    Kristina, (formerly known as ~Kristina~)
    doula and apprentice midwife
    Wife to Jesse 8.18.01
    Mom to Ayden 12.18.01, Kailey 7.1.03,
    Ashlyn 6.11.05, Dylan 9.29.07 & Riley 12.8.09

  8. #8
    Posting Addict wishing4agirl's Avatar
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    Quote Originally Posted by HockeyTownMom View Post
    It's a great idea...if they aren't picky eaters. My ds has only a few foods he'll actually eat.
    I can relate. My son who is 7 is high functioning autistic and has SEVERE sensory issues. At one point they thought he had celiac disease and because testing was so inaccurate for his age at the time they needed us to try the diet. We did for a year. However he ate very little because of his food sensory issues. It was achievable but definitely challenging.

    Christa, I think that is one of the diets I've heard some say that has helped their child with ADHD as gluten can cause behavior problems is some who are sensitive. And it's doesn't mean that you have to have Celiac Disease. You just have to be sensitive to gluten and the only way to test it is to go on the diet.

  9. #9
    Mega Poster DrakePlusOne's Avatar
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    Hi Christa! I wanted to respond b/c I have a severe ADHD son who was diagnosed at 3yo. It was a looooong hard battle to get his behavior under control and I understand how helpless you can feel in the beginning; looking at the long road ahead. I would compel you to look up the book '1, 2, 3 Magic' for yourself and the teachers addition to help out. For me, the tricky part was transitioning behavior modification to a school setting. Things that you find will work for you at home..... will a teacher be able to carry out in a school setting? I actual bought the book for teachers and brought it in to my son's K teacher and we devised a plan together. PPs suggested diet modification and I hope hope hope that it might work for your son. When I was trying anything before going to meds, we tried the diet. Our therapist suggested eliminating Red Dye as well as Gluten free. That might be something to look into as well.
    As far as websites, I loved CHADD. It gives you info about laws and regulations schools MUST follow b/c your child is considered special needs. It really helped me feel armed with knowledge when sitting down with just about the whole school faculty. When I was at my wits end, this message board really helped me out ------> ADD Forums - Attention Deficit Hyperactivity Disorder Support and Information Resources Community - Powered by vBulletin Other parents going though the same issues as you, sharing their stories and leaning on each other. There's also some great info on medications and side effects there as well, if you need to go down that path. Having other people to talk to and feel..... I guess, normal, about your situation is the biggest stress reliever in my opinion.
    My son is just now getting his ADHD under control and he is 9. It takes awhile to get things figured out, and what works for one kid probably won't work for the next, but just know that you are an awesome mom and you WILL get this figured out! ((((hugs)))) Please, PM to vent, say 'hi', or just drop a line whenever. HTH
    wishing4agirl and CrysRee31 like this.
    ~~Marie~~
    Paul (DH)
    Drake (9 )
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    Philip 12-25-12

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  10. #10
    Community Host ChristaM's Avatar
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    Thank you Everyone -- does anyone know we can test for sensitivities? I know we can do alergy testing, but not sure on the sensitivity. We are looking at all options at this point -- and may just try and combine approaches Really wish the neurology testing would get done sooner so we know for sure what all we are dealing with. Lots of useful info shared and I really appreciate it!

    I did find some free webinars if others are interested:
    Additudemag.com/webinars
    Me: Christa, 41
    DH: Craig, 47 (Married: 8/19/05)
    DD: Kendall Evelyn (10/6/06)
    DS: Quentin Vincent (4/14/09)

    : November 2012@ 10 weeks (due date: 6/22/13)
    : June 2013 @ 7-1/2 weeks (due date: 2/10/14)
    : December 2013 @ 4 weeks (due date: 8/9/14)
    : April 2014 @ 4 weeks (due date: 1/1/15)
    : July 2014 @ 4 weeks - Chemical (due date: 3/5/15 )

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