ASD Mommies Roll Call/Introductions
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Thread: ASD Mommies Roll Call/Introductions

  1. #1
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    Default ASD Mommies Roll Call/Introductions

    Hey Ladies, thought I'd set up a roll call/intro topic so we can all get to know each other better and get this board going more.

    Here's a sample format:

    Name:
    Childs Name (dx'd with ASD):
    Current Age:
    Age at DX:
    Diagnosis:
    If the dx is PDD-NOS, What criteria your child did not meet to get a Autistic Disorder/Aspergers Syndrome, etc. dx:
    Other Children/Ages:
    Anything else you want to share:

    Edited to add: PDD-NOS is the official diagnosis, PDD (Pervasive Developmental Disorder) is a definition not a diagnosis, PDD/ASD is the term that covers all the disorders within the autism spectrum. PDD-NOS is Pervasive Developmental Disorder - Not Otherwise Specified, it's a specific diagnosis just as Autistic Disorder (Autism), Aspergers Syndrome, Rett's Syndrome and Childhood Disintergrative Disorders are specific diagnosis. PDD by 'doctors' terms is PDD-NOS (which is the actual proper diagnostic term)...it means the child has signs of autism but not enough to fit the diagnostic criteria for any of the other disorders/syndromes in the autism spectrum. Hope this clears it all up.
    Proud Mom to 2 Handsome Little Men:
    Dylan - 2/7/01
    Brendon - 5/21/03
    And our Furbabies (cats):
    Simon & Molly

    Autism Spectrum Disorders

  2. #2
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    Name: Mish (Michelle)
    Child's Name (dx'd w/ASD): Dylan
    Current Age: almost 9 years (born Feb. 7, 2001)
    Age at DX: 29 months w/ PDD-NOS & 40 months w/Autistic Disorder (High Functioning), Sensory Processing Disorder at 31 months, Oral & Verbal Apraxia at 36 months (formal dx), Allergies at 39 months, Asthma at 39 months, and Epilepsy (Complex Partial Seizures) around 5-6 yrs old.
    Diagnosis: Autistic Disorder (High functioning) [previously PDD-NOS]/SPD/Oral & Verbal Apraxia//Allergies (Feathers)/Asthma/Epilepsy
    If the dx is PDD-NOS, What criteria your child did not meet to get a Autistic Disorder dx: His first diagnosis was PDD-NOS based on ADOS, CDI and ASQ questionnaires and videotape observation. His diagnosis revision was based on the ADOS, ADI-R, as well as a few more testing scales and video tape observation. He is high functioning but didn't get Asperger's due to his lack of language as he didn't develop language normally due to Oral and Verbal Apraxia.
    Other Children/Ages: Brendon Nicholas, almost 9 years (born May 21st 2003)
    Anything else you want to share:
    [Updated]
    Dylan currently is in grade 5 in school now. He doesn't have an aide to himself in the classroom anymore and he doesn't have a formal IPP (aka IEP) now. He is doing really well. He still has fluency issues with his speech but it has improved a lot over the years. They have adaptations in place in the school and this year things have looked better for him. Not as many behavioral issues as a few previous years. Academically he's doing about average in school. Has a few select friends and is trying to participate in social activities. He loves listening to music and playing video games.

    Child's Name (dx'd w/ASD): Brendon
    Current Age: almost 9 years (born May 21st, 2003)
    Age at DX: 8 yrs 7 months (officially)
    Diagnosis: Autism Spectrum Disorder (fits Aspergers Syndrome but due to DSM changes, felt it was better to use ASD as dx)
    If the dx is PDD-NOS, What criteria your child did not meet to get a Autistic Disorder dx: He was placed with an ASD dx for now due to as I said about upcoming changes in DSM, Autism and Aspergers Syndrome will be all placed in one dx in 2013.
    Other Children/Ages: Dylan, 11 yrs 1 month old (born February 7th, 2001)
    Anything else you want to share:
    Brendon has been followed in an infant sibling study of children with autism since he was 6 months old. Took a while to really see most of his issues because the social things weren't as evident till he was in school with other children. He also has a high IQ and is high functioning.



    Just updating things as it has been so long since I have been on the forums and moderated this board as well.
    Last edited by MishNKids; 03-27-2012 at 09:19 AM. Reason: Updating
    Proud Mom to 2 Handsome Little Men:
    Dylan - 2/7/01
    Brendon - 5/21/03
    And our Furbabies (cats):
    Simon & Molly

    Autism Spectrum Disorders

  3. #3
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    Name: Sue

    Childs Name (dx'd with ASD): Morgan

    Current Age: 7

    Age at DX: 6

    Diagnosis: PDD

    If the dx is PDD-NOS, What criteria your child did not meet to get a Autistic Disorder dx: I'm not sure what you mean by this. Morgan was referred to a psychologist by his pediatrician. They diagnosed PDD after we filled out a questionnaire and the doctor observed my son.

    Other Children/Ages: twin girls Arianna and Brianna age 3 1/2.

    Anything else you want to share:It was a very tough diagnosis to deal with. I started with a whole lot of denial and then feeling like it was something I did during pregnancy. Then it kind of turned into acceptance with me deciding that I was going to learn as much as I could about it and do what I can to help my son. My twin girls have been tested as well and came out with no disorders.
    Sue..mom to Morgan 5/14/96, Arianna and Brianna 11/12/99

  4. #4
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    Name: Stacy
    Childs Name (dx'd with ASD): Sian (pronounced like the colour cyan)
    Current Age: 4
    Age at DX: still going through the process
    Diagnosis: no dx yet but both ped and speech/language path think that she is high-functioning and that she will probably be dx'd as asperger's when she is older. I personally think she may have hyperlexia too.
    If the dx is PDD-NOS, What criteria your child did not meet to get a Autistic Disorder/Aspergers Syndrome, etc. dx:
    Other Children/Ages: My eldest DD is Erika, she is 10.
    Anything else you want to share: I'm still pretty new to this so I don't have a lot to share but I am really glad that this board is here

  5. #5
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    Name: Angel
    Childs Name (dx'd with ASD): Chanda
    Current Age: 7 yo
    Age at DX: 7 yo
    Diagnosis: High Functioning Autism and ADHD..she also has a diagnosis of learning disabilities form the school.
    Other Children/Ages: Houston- 9 months
    Anything else you want to share: I have know since Chanda was an infant that she was different. She walked and talked and did everything early..then when she was 2 she started perseverating.She reagressed as the years went on and I couldnt find a doctor to help my find out what was wrong with her...(appearantly they think it is ok for a child to perseverate for hours on end- the docs here I mean) When Chanda was 5 we got the diagnosis of ADHD but I knew that there was more to it than that. Her ped didnt think there was anything else though. When she went to kindergarten they knew that there was more to it and gave me the name of a specialist( the only dev ped i our state). When Chanda was i n1st grade we began seeing the dev ped and finally on Sept 19th got her diagnosis. HFA and a comfirmation of the ADHD. My son Houston is also a special needs child as well so I keep pretty busy!!!

    Angel

  6. #6
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    Name: Kim
    Child's Name (dx'd w/ASD): Rachel
    Current Age: 14 years
    Age at DX: 8 years
    Diagnosis: PDD-NOS, ADHD dx at age 4, Mild Mental Retardation
    If the dx is PDD-NOS, What criteria your child did not meet to get a Autistic Disorder dx: She is verbal and friendly
    Other Children/Ages: Emily 17, Heather 9, Katie 7, Eric 3, Abby 17 months
    Anything else you want to share: Rachel is currently placed in a residential Neurorehab center five hours away, and has been there for over 3 years. We thought she might be able to come home this fall, but her behaviors (such as burying baby birds alive) make that not feasible. She does not know how to keep herself and others safe. It is horribly heartbreaking, especially when she recently got her first period and I was not able to be there and help her through it. She had a very hard time with it. I am really not dealing with it very well right now and it is especially hard because I do not know anyone else who is in my shoes and I can really understand. I am going to try and come to this board more often.

  7. #7
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    Name: Karen
    Childs Name (dx'd with ASD):Anthony
    Current Age:9
    Age at DX:8
    Diagnosis:Asperger's and ADHD
    If the dx is PDD-NOS, What criteria your child did not meet to get a Autistic Disorder/Aspergers Syndrome, etc. dx:My son has always carried the Asperger's diagnosis. My DH and my FIL also have heavy Asperger traits.
    Other Children/Ages:Victor, 21 months
    Anything else you want to share:It can be extremely challenging dealing with both my DS and my husband and their "issues." Right now Anthony attends social skills and pragmatic language group once a week, plus he needs a lot of supervision and time from me school-wise. He is in a small private Christian school and doing very well in spite of the Asperger's and ADHD.
    Karen, Mom to Anthony, Victor, and Elizabeth
    http://velocycle.smugmug.com/

  8. #8
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    Name: Nicole
    Childs Name (dx'd with ASD):Allan
    Current Age: Going on 6 in November
    Age at DX: 3yrs 8 mos
    Diagnosis: High Functioning Autism
    If the dx is PDD-NOS, What criteria your child did not meet to get a Autistic Disorder/Aspergers Syndrome, etc. dx:[/b]
    Other Children/Ages: Avryal 2yrs
    Anything else you want to share: Even though with therapy and school he is doing better he is still severely delayed, though I am greatful and happy he is doing well I still can't help but feel sad and worried and depressed that he is still so far behind and still has a long long way to go! Allan has started Music Therapy he hasn't opened up to it yet as it is new to his routine so he shuts down completely and we end up sitting there. But I am sure as time goes on it will get better. I am still waiting on at home PT, SLP, OT and Behavioral Health Therapy which is a long process. Allan is now in a CD1 Program in a new school in Kindergarten they have a mixture of grades in his class and they give him the same stuff as regular Kindergarteners but do it so that he can understand and accomplish it. Teachers think he is just amazing, as they see many of his Autistic Characteristics in the classroom they also see and know he has so much inside that he can do but doesn't know how to let that out so they are trying to teach him that, he is still far behind in speech and still does "baby jargen" but with constant reminders to use his words we are getting there, he is able to spell and read and is learning math and other stuff. He is doing amazing in school. They have noticed if somethign sets him off they lost "him" for the day meaning he is unable to do anything for the rest of the day and shuts down. Over all he is doing great! I expect to see more improvements as time moves on. He is on 2 medications one for his ADHD Strattera and Depakote for Migraines, Abnormal EEG (he is at risk for possible Seizures in the future), and for his behavior I can't express how these 2 medications have helped.
    ~Nicole~
    Proud Mommy to:
    Allan Michael: 11.20.99
    Avryal Nycole: 5.6.03
    Proud Wife to my husband Shawn: 11.13.10 (Together 9yrs)

    "Life is not measured by the number of breaths we take but by the moments that take our breath away."

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    Name:Tara
    Childs name: Noah
    Age: 4 1\2
    Age at dx: 4 1\2
    Diagnosed with Aspergers syndrome and acute verbal dyspraxia

    Well my hubby and I first noticed a problem at about 15 months when words he learned disapeared and were relearned wrong ..like no turned into mo..he also was clumsy and lined things up reprogramed electronics ect.. at 2 he was talking but no one understood him..then the behavior probs started biting, meltdowns, punching kicking, selective hearing. We couldnt potty train him and had to tape his shirt to his pants so he couldnt paint himself and walls at nap time. Hyperactive no eye contact...the worst ..NO FEAR and hurting himself slamming his head onto things.Its been a rough few months and is slowly getting worse his little "quirks" are showing more and more ..guess it will be interesting in 2004 :P

  10. #10
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    Name: Sara
    Childs Name (dx'd with ASD): Elise
    Current Age: 28 months
    Age at DX: 28 months
    Diagnosis: Autism (High Functioning), possibly Asperger's
    Other Children/Ages: Luke, 2 months
    Anything else you want to share: Elise is beginning an intensive therapy program at UCLA this Monday. She will attend 8am-2pm, Monday through Friday for 2-3 months.
    Sara, Mom to Elise (10/01) & Luke (12/03)

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