Life In & Out of the NICU
+ Reply to Thread
Page 1 of 10 12345 ... LastLast
Results 1 to 10 of 99
Like Tree1Likes

Thread: Life In & Out of the NICU

  1. #1
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496

    Default Life In & Out of the NICU

    I have a Wordpress blog about our 2nd NICU journey. The link is in my signature. When I am not on my phone I will share entries here too
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  2. #2
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496

    Default

    well so far I have failed and trying to keep the journal here too. i was going to cut and paste the entries here:

    Off the Vent Again… | Dear Baby P The Sequel

    The big news of the day was the wee one was taken off the vent, again. Thank goodness! I guess the nurses could tell he was starting to be an upswing of feeling better as he started to pull and fight with it in comparison to the other since he was put back on it when he just was lethargic and just left it alone.

    We were there when they came to take it out but I wasn’t in the nursery, the hubby was which I was o.k. with. I am not sure I was ready to watch them taken him off of it. It was hard enough seeing him look like he had been through a war over the weekend. I did see the nurse put the feeding tube back in though. He wasn’t happy with that either but I guess after all the poking and tubes going every which way I would be putting up a fight too.

    He is on day 4 of the meds for the infection and they seem to be working. He is still rather puffy in the face but his stomach looks so much better. The distension in his belly over the weekend was really hard to see so I am glad that has lessened.

    He is back on the nasal cannula at 4 liters on the high flow which as of tonight was handling pretty well. The nurse said he had a couple of quick self resolved desaturations.

    He handled his first feed since this whole infection business started and I guess that went well too. They are going to try another feed at 10 tonight.

    Otherwise he has been mostly sleeping today which I suppose is what is to be expected and I would probably be doing it myself if I had went through everything he has in the last few days along with fighting the infection.

    He did have one test today in regards to his breathing or something (I need to clarify for the husband as he talked with the NP about it) and I forgot to ask the bedside nurse about it.

    So far he hasn’t needed the blood transfusion they talked about possibly doing today so I will have to ask tomorrow if it’s a possiblity or not.

    Other then that he is finally on the mend it seems and that makes my day. I was really worried about heading back to work with him so sick. I am still worried about balancing work with the NICU life but now that he is on the mend it helps.

    Lastly I guess is just a random tid bit. We got into a conversation with a grandma and grandpa in the Family Longue. Their grandbaby had been in the NICU since April. Her parents are finally really close to getting her to come home. I hope she surgery went well today and she is able to to head home soon.

    Wait there is one other small tid bit. There was some paperwork at his bedside about a study for ROP and taking pictures of babies eyes, etc. I need to read through it again but i think we may o.k. him to be in on the study as the photographs they talk about in the information I guess are a part of the ROP testing. We aren’t totally sure yet but I guess if the study can help other preemies I don’t see why not and also it is not hurting him in anyway.

    With that I think it’s time to sign off and make sure the peanut is sleeping. We have been trying to get him back into a routine lately and getting him to be in his crib before falling asleep, etc and it’s been a rough ride to say the least. Hopefully it will even out soon.

    As always thanks for reading and the recent good thoughts for the wee one. Here’s to hoping he keeps on the upswing.
    ))))))))))

    and I created a facebook page today. http://www.facebook.com/index.php?lh...BabyPTheSequel

    I feel kind of weiird dong it but I figure if sharing my story may help some other preemie parents why not.
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  3. #3
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  4. #4
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496

    Default

    Time hasn't been my friend since coming back to work so my time to put my entries here have been faling yet again

    Hi Ho Hi Ho…. | Dear Baby P The Sequel
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  5. #5
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496

    Default

    Short & Sweet | Dear Baby P The Sequel

    This entry will be short and sweet as there is not a lot to report on the wee one.

    It seems as though all the nurses and doctors love him and find him cute. When neonatalogist (sp?) called me yesterday he started the conversation with well he is in his room just looking cute as ever. Then proceeded to give him the update after he rounded on him and whatnot.

    He didn’t have much to tell me as they really did not change anything with his care. He is still on the o2. They attempted to wean again but a few to many desats so he is hanging at his usual 21-25% on the good ol low flow.

    The nurse in the morning told him that his eye was goopy again which it had been the night before when we visited so I asked about that but the doctor said it seemed to have let up. So they are just going to watch it.

    Otherwise in nurse reports in the am yesterday when I called he had a good night and they attempted as oral feed with him but he struggled to know what do with it which does not really surprise anyone. So in additional to his usual OT stuff they are going to add some oral exercise to prepare him for feeds. He does well with a nuk so that is good and helpful.

    Last night when we got there it was time for his cares again so I helped with the diaper changing and temp taking.Thankfully there was no play dough fun factory in the evening.

    His eye was goopy again so the nurse was going to pass it along to the nurse on the overnight shift to keep an eye on it.

    He seems to have gained 3 ounces in a day so they are going to monitor that. He is now 5 pounds 9 ounces which is up from the 5 pounds 6 ounces he was the night before. For the life of me I can’t remember what he is measuring at but there was no change from the last time he was measured.

    Well the peanut is picking on the cat so time to sign off and figure out what’s up with that. Also i should probably go get cleaned up to go pay the wee one a visit.
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  6. #6
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  7. #7
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496

    Default

    PDA, O2 and Bath Day! | Dear Baby P The Sequel

    Sorry I haven't been doing this to each update and I haven't had time to cut and paste them into here
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  8. #8
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  9. #9
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496

    Default

    77 days | Dear Baby P The Sequel



    Oh my dear wee boy

    While I sit here working it dawned me that you have been calling the NICU home for 77 days.

    77 days! I know it’s been a long ride but I find myself not taking the time to think about exactly HOW long of a ride it has been and still continuing to be. Maybe I learned that from your brother’s journey.

    For 3 weeks with him I was a emotional mess and just wanted him home. I am internally a emotional mess now but I don’t show it as much I guess and I am learning to just go with it now and let you do what you need to do so you can come home. I want you home but I also know that you need to get all the care you need and the growing done, etc.

    Life hasn’t felt complete and I know it won’t till you get home.

    I look forward to the day I get to call your daddy and see how the morning is going with you and your brother. It’s hard calling every morning to see how your night went and how your morning is going. I am thankful for the nurses that take care of you but I want to hear that information from your daddy, not them…

    I look forward to tucking you at night into your sleep sack and not having to call the nurse to find out how you are doing at night.

    As crazy as it sounds I look forward to waking up in the middle of the night seeing how you need and/or making sure you are o.k.

    I look forward to early morning episodes of Law & Order with you and your brother if he is awake. It makes for a long day but it was some special bonding time I got with your brother when he was a wee one just like you.

    Oh my dear boy I hope you will be home soon and this ride will be over. Momma is tired of it and just wants all her boys under one roof, you, your brother, your daddy and even those furr balls.

    Love you so much

    Mom
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  10. #10
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
    Posts
    12,496
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

+ Reply to Thread
Page 1 of 10 12345 ... LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
v -->

About Us | Contact Us | Privacy Policy | Sitemap | Terms & Conditions