Life In & Out of the NICU - Page 2
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  1. #11
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    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  2. #12
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    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  3. #13
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    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  4. #14
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    This and That | Dear Baby P The Sequel

    Where to begin with an update? I know I only have like a day and a half of stuff to write about but I feel like it is so much more. Maybe it’s becuase I am still processing some of it still…

    Let’s just start writing and see where we go with this. So I am going to warn you ahead of time it may get rambling and jumbled but on the other hand if you know me in real life then that’s kind of how my brain works. Go libra brains! always moving and full of tons of information.

    Thursday night into Friday morning the wee one had more desats then usual but he was kicked down to 1/2 liter so I guess in away it is to be expected as he gets used to the lower amount and his body needing to work a little harder. His o2 needs were around 30% most of the night. Nurse Denise was abe to kick him down to 29% in the morning.

    Nurse Denise noticed that he sounded plugged up so she suctioned his nose and got it cleaned out. So that helped and he didn’t have any desats in the am so she thinks that is probably why he had some overnight. Just working harder in general due to the 1/2 liter but also being slightly plugged up made it even harder for his lungs to do their jobs.

    He took 28 mls by bottle at 12midnight and then his 3am feed he took 38 mls. Then at his 6am he must have been hungry as he took the whole bottle orally. Go baby go

    Nurse Denise mentioned he was bumped up to 58mls a bottle on 10/18. I had no idea and no one told me when I asked prior about changes so that kind of ticks me off. I didn’t really expect the doc who has been rouding at Ridges hasn’t been good at calling about anything. She also noted from notes, etc I guess most of desats are after feeds.

    At night when we ewent to visit they were doing his measurements and Nurse Kim asked me to help a bit which was nice.

    He was 7.7 pounds

    18 inches around for his head

    20 inches long

    I need to double check on his chart by his bedside as I didn’t write down while at the hospital what the exact measurements were.

    The end of the visit was awesome as the brothers finally got to meet sort of…Nurse Kim said to knock on the window and she would bring him to the window to see his brother. It was awesome i can’t wait till they meet IN PERSON.

    Yesterday Nurse Annie was there and said he was doing good with feeds. Overnight it was pretty much the same as the night before 30 mls on one feed and 28 on other. He was fairly wipped over so they just did the ng tube at 9am.

    Late in the afternoon the doctor called and let us know that she thought he was ready to start cue based feedings as he took 75% of his feeds orally on Friday. The peanut was on cue based feeds for his last week or so when he was in the NICU so we have experience with that which is nice. For the wee one he needs to get 205 mls in every 12 hours.

    We also discussed 02 and when he goes home. She was talking about how he will probably need it at home and training we would have to go through. The idea in general makes me nervous but I know with training it should hopefully go well. I do worry about the hubby at home alone with him, the peanut and the cats (I mention the cats as I worry one of them may try and chew something associated with the 02). I know the husband worries about it as well. We shall see how it all plays out.

    When I called last night he was doing great with the cue based feeds. he took 55 ml at 7:45 and 60 at 5:30. they had officially started the cue based feedings at 4 so not to shabby.

    This morning he had Nurse Annie again and she started off by letting me know how he scared her but in the end it was all good. He was eating quite well this morning but got to good and some desats and was spitting up, chocking, etc. He needed some extra 02 during those times as he was struggling to breath. She was like he really scared me…and I thought you are scaring me now.

    In the end he is still working on getting the whole suck, swallow breath thing down and was struggling a lot this morning.

    Otherwise doing well which is always nice to hear. I guess Annie cuddled him a lot after the issues so that was nice to hear. I really like Nurse Annie but I think it helps that she knows us from the peanut’s stay and her daughter played sports with my sister in law. So she very loosly knows the family too.

    and to end it I just go off the phone with the doctor who we missed early as she was hung up at Southdale I believe.

    We had a talk about his issues this morning and it was most reflux related and that he needs to be paced. So we are going make some arrangements with OT to teach us how to feed him with pacing as we didn’t need to do that with the peanut.

    She did say despite the issues this morning his o2 needs have been around room air/21%-23% which is a huge difference from the past few days which he was around 30%. The doctor believes it si due to the daily lasik along with his other duiretic.

    The doctor was happy with his growth. He is 21.5 inches long and puts him at the 80% for his age. Shocker my child is long

    His head is in the 90% which is good as when he was born I guess his head a bit larger then they like to see for his gestation age. News to me really but I am glad it is where it should be. She said that it shows he has good brain growth. With the lasik she is happy with where his weight is at as well.

    So long story short, he’s doing overall really well with eating and growing but those lungs are still having some issues but slowly doing better.

    Well I should close this out and run back up to the NICU.
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  5. #15
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    Down | Dear Baby P The Sequel

    Addition to the previous post;

    Looks like the reflux could be a bug issue. He had another spell of needing a major kick of o2. Nurse Annie felt so bad having to tell me about.

    Poor wee one is just spent.

    He?s getting tube fed at 6:30

    His weight is down tonight to 7 pds 5 ounces
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  6. #16
    Posting Addict
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    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  7. #17
    Posting Addict
    Join Date
    Dec 2002
    Location
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    12,496
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  8. #18
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
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    12,496
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  9. #19
    Posting Addict
    Join Date
    Dec 2002
    Location
    Burnsville, MN
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    12,496
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

  10. #20
    Posting Addict
    Join Date
    Dec 2002
    Location
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    12,496
    Nicky Married to Dan on 2/28/08
    Mom to Sebastian, my lil guy who came 6 weeks early 8/27/11
    Mom to Samuel. my extra lil guy who came close to 14 weeks early 8/1/12
    and always in my heart forever s 1/23/03 &7/23/03
    Letters to Sebastian http://librababy.wordpress.com/
    Letters to Sam and also our NICU journey http://scorpiobaby.wordpress.com/
    Rasing the Brothers Phttp://raisingthebrothersp.wordpress.com/

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