Anti-Anxiety Meds
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    Posting Addict wishing4agirl's Avatar
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    Default Anti-Anxiety Meds

    Does anyone take them because of your kids special needs. We are still dealing with what to do for Eli to deal with the Subclavian Steal Syndrome. The doctors here have absolutely NO experience in surgery to correct it. It's very complicated and makes me not be able to breath and feel like I'm going to pass out whenever I think about it. I can't really afford the dr visit or meds (my hubby and myself are not covered 100% like the kids are). However, I may be reaching a point that it's necessary. But as I told a friend the other day, I just keep thinking "when things get better I won't need it". And that's what keeps me from getting any. Can anyone relate?

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    I took Ativan many years ago for some anxiety issues I had. I found it VERY helpful! But if you're not 100% sure you want to go the medication route, maybe you could try some daily relaxation/meditation techniques. I recently did some Yoga with Alana and that really helped calm her nerves before a dance class she was nervous about (not the same thing, I know, but just a suggestion). Whatever you decide, I'll be praying for you guys!

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    there are some anxiety things at health food stores too, like Rescue Remedy, that you just use when you need it. I've used it once or twice. It made me slightly detached feeling, like I could tell stuff was still crazy and chaotic but it wasn't getting to me quite as much. It might work for the bad times.
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    Posting Addict CamelNoodle's Avatar
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    I understand anxiety. I think it's worse BEFORE things are happening out heads are saying "what if" and second guessing out decision. It's easier after the decision is made.

    Will took Ativan during chemo, it reduces nausea somehow. BUT, Ativan is quite addictive. You might be better served by the natural remedies Natalie talks about, since this is new and (hopefully) short-lived. I think finding a way to take more time for yourself will also help. Being responsible for too much piles on top of anxiety.

    Janel
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    Posting Addict wishing4agirl's Avatar
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    Oh thank you for the suggestion Natalie. That would be WAY better. I don't feel like I need something all the time, but there are times (like Sunday) I seriously needed it (I lost it at church). But today I'm okay. I guess I need to go to the health store with my neighbor again.

    I do need something like Yoga or something also to help. Now if I had a nanny and a maid it would help me to be able to accomplish it.

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    Community Host sarahsunshine's Avatar
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    There aer a whole bunch of natural aids to help with stress levels. They are different for each person, and definitely cutting out some time for yourself to just "chill". There are many "directed meditation" CDs that you can get to help you meditate if you want, or you can probably even download some from the internet for free.

    I know that it's tough with 4 kids around, but perhaps after they go to bed, or when the little ones take a nap, and the others are at school? A Yoga class would probably help in that it would have a time and place that you have to be somewhere so DH can support you by taking the kids at that time. My friend owns a yoga studio that has a parent and kid class, so you can even see if there's one of those that you could take Faith to.
    Skyler Dylan 22 April 1999
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    Community Host sarahsunshine's Avatar
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    Angela,

    I was just reading back on your journal and read about your APD with Eli. Skyler doesn't have APD (I don't think), but because of his deafness knows some sign language. We use Signed Exact English instead of ASL because it's a lot better for learning grammar. It has different tenses, suffixes and prefixes instead of the "shortcuts" of ASL. Just an idea, though.

    Skyler also has an FM system - which sounds exactly like what is being proposed for Eli, except that the FM system basically attaches to Skyler's hearing aid that he already wears. There are many benefits to this, but tere are some drawbacks, so you need to keep an eye out for Eli. The benefits are that Eli will hear everything going on (including the teacher talking to other students and staff, or going to the bathroom if the teacher forgets that it's still on). However, it's obviously a benefit in class. A drawback is if the child is already easily distracted. As much as they will hear what is going on, if the kid is like Skyler, it will actually enable the distraction because he doesn't have to pay attention since it's being spooned directly in his ear. In fact, the best weeks Skyler had in Junior high were when he LOST his hearing aid and actually had to actively pay attention and participate! But, of course, it depends on the kid. Last year Skyler had his FM system (1st year of Junior High), and he didn't like being different so he rarely used it. His attention, however, was drastically improved, and he made sure he was sitting in a place he could hear (most of the time).

    I hope this helps Eli - he can use all the help he can get.

    I am also thrilled to hear that DH has stepped up in terms of dealing with the doctors. Keep us posted on developments with Eli, if you have time. We're all routing for him!
    Skyler Dylan 22 April 1999
    Reed Aslan 17 June 2007 ~ 8 September 2008
    Ivy Rayne 3 May 2009
    Leo Spencer 2 Sept 2010
    Forrest Reed 15 Aug 2012


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    Do you knit? That's one way I relax. I "anger-knitted" a bunch of wash cloths for the bathroom a couple weeks ago. Speed knitting seed stitch squares actually helped. LOL. I also find for some stress singing really helps, although it helps better when the kids either like the song I'm singing or aren't around. I'm big on things like The Phantom or Les Mis and they hate those, but if I choose to belt it out to some Adele they're fine with it
    Natalie & Dan - June 2, 2001
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    Posting Addict wishing4agirl's Avatar
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    I will forewarn you, this could get long. And it is probably going to be a combo of a ramble and a vent.

    Cutting out time for myself would help in so many ways, but it's like anything else you have to "change" I need to work on putting it into practice. Part of my problem is my kids are in my face almost literally 24/7 (yes even the middle of the night). You know how the moment you are on the phone your kids start up? Well my kids the moment I read my bible, or do a walking tape/yoga tape (the weather gets too yucky here sometimes to go outside) are there somehow some way in my face. So even if it's after they go to bed they are up. And DH is NO help. He'll help AFTER I've already stopped the tape and started to take care of whatever it is that needs taking care of. I'd say join a yoga class, but I'm determined to get us out of the financial hole my DH dug us into. I'm honestly almost there. After I pay this month's bill I will only have 4 payments left and then I can start working on getting the vehicle paid off. Once we get the bills paid off we can afford more things. I can afford to go to a yoga class and things like that. And it's not just me that has to get use to the "change" of mommy getting me time. My husband did literally NOTHING but go to work and come home and rack up our bills for years because he couldn't deal with Eli's medical issues. So my husband honestly almost never has all 3 kids by himself. A couple weeks ago I went to my parents house (a 2 - 2.5 hour drive) completely by myself and EVERYONE at church was floored he brought the kids by himself, because he NEVER has them by himself. And by the time hubby gets home and I were to do anything I would have to hurry to get done whatever it is I need to do and then rush back to cook dinner (DH won't unless he's BBQing or it's fish/pizza/premade burritos etc. and we don't eat like that). And that would stress me out MORE making null and void anything I just did to relieve the stress. It just feels like a never ending cycle.

    Sarah - that is REALLY REALLY helpful about the FM system. I don't think it would work for Eli then. Because Eli rely's so heavily on visual cues (my friend thinks he reads my lips even and I actually think she might be right) I am sure he'd still get distracted. And about the SEE sign. I actually have friends whose children are deaf. One does SEE sign and one does ASL. As far as I understand it (and this is going by what my friends say NOT any research I've done and one is going to college to be an interpreter and her teachers are all deaf), the deaf community does not recognize SEE sign, because while it is true it does teach grammer better it doesn't have all the words ASL does. So it ends up being like misusing the word there/their/they're only in sign. And even in SEE sign they don't sign the suffix's ect (-ing, -er, -y etc.) because you understand in context what's being said so they are ommited most of the time. They are taught (in both ASL and SEE sign), but they are never used in ASL and rarely used in SEE in every day communication. Therefore you end up with poor grammer anyway. We are actually doing Pigeon (sp?) Sign with ASL signs so we are learning all the ASL signs, but we end up without words like are, the, and, etc. (if that makes sense). Even then the deaf community won't teach me because it's not ASL. They said it would be too hard (my friend asked at the deaf church she goes to).

    I'm glad DH has stepped up too. It helps greatly. The only issue that frustrates me is that DH does NOT understand the medical jargon and doesn't understand how medical things work. So things like what happened yesterday frustrate me. Yesterday DH called the lady who is setting up Eli's MRA of his brain, aortic arch, and neck. She told us to call Children's Hospital (that is where it's being done) and get on the schedule since she has sent over the paperwork ordering it. When I called, the scheduler needed to speak with the radiologist that will be doing the test (I don't know why). DH went off about if I have questions ask to talk to the radiologist. I then had to explain the person doing the test can only speak to what was ordered. Not why, or what else should be ordered, what we are looking for, making sure he looks for what I want. The radiologist might call and talk to the dr who ordered the test, but that just ends up being another step when really I need to talk to the ordering dr since he may have already ordered what was needed. (We had problems before where an MRI was done, but without contrast. We then learned in order to check for strokes and some other problems you must do pics without contrast and then WITH contrast. Well we were checking for a stroke. So we we ended up doing a 2nd MRI the correct way which showed a small stroke. So we are a bit worried the correct things aren't being ordered. But this is a totally different dr so it could just be fear because of before.) Does that make sense?

    Also his cardio does not think any of his other symptoms will go away once they stop the Steal. He believes the neuro issues he has are permanent. He thinks they are part perment steal damage and part of all the things he's been through. It's extremely frustrating because his hypoxic injuries are below the level to show on an MRI. While some think that is a good thing, it's NOT. Doctors either don't know how to help him or new drs don't believe there are issues because you can't see most of it on the MRI. So we are left with LOTS of issues and NO help. And most of the tips people give are from that of typical children with NO neurological damage of any kind, it's no help. People mean well. They just don't live with Eli so they don't quite understand.

    Natalie - I tried knitting once. It didn't go so well. I wish though. I'd be "mad" knitting some coasters for my new end tables. LOL There are so many things I wanted to learn or take up, but I have a hard time learning because my brain is so full of Eli's medical stuff. At the moment I get to learn all about the Circle of Willis and all the arteries that are suppose to carry blood to the brain.

    Anyway, I warned you this was going to be an all over the place/ramble/vent. If you got this far you're a saint.
    Last edited by wishing4agirl; 08-15-2012 at 11:21 AM.

  10. #10
    Super Poster jgriffith's Avatar
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    Ellie takes it for chemo nausea as well. (Ativan) my DH took it for a long time for PTSD. It is addictive and not designed for daily long term use, but it can be great for occasional use!

    Having a child with severe health problems is very, very hard, as you know! You might benefit from sitting down and talking to someone, like a pastor or priest, or a family therapist, to help process the emotional roller coaster!
    Jamie
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