Hiya ladies. It's been forever! Life is just complete madness right now - with my job and the kids and all our appointments it's just crazy.
Ben has seen a GI a couple times over the past several months for his continuing reflux and regurgitation. PPI's and other traditional medications have not worked, even an adult dosage of Prevacid. He has elevated eosinophils, a form of white blood cell, that are often related to food allergy but not normally seen in the esophagus. So, he's having an gastroscopy and biopsy on Feb 7 to look for those white blood cells in the esophagus. This could very well be linked to his asthma and allergic rhinitis (remember he had his adenoid out 2 years ago?). If the biopsies are positive we'll have to undergo a battery of allergy testing and he could be put on an oral dose of steroid. He'll take the same steroid puffer but without the chamber so that the med goes into his mouth and not his lungs (he'll still need to inhale his daily steroid for the asthma maintenance). I'm quite shocked the test is so close. He was only at the GI on Tuesday and they called yesterday with the day surgery date. He'll be under a general anesthetic.
Claire has had no further UTIs or issues with her implants since her second surgery in Nov 11, so she's doing great. no other health issues at all, though we can't seem to keep up with the teeth she's losing! She's 5 and about to lose her 4th tooth with 2 more loose on the top. Crazy.
I am going to endeavour to read all your posts and catch up with everyone!
Good to hear from you!
Alana had elevated eosinophils in the past too. That led to an allergy referral and the eventual asthma diagnosis. Once the asthma was under control her levels went back down. Hopefully the biopsies are negative because steroids are no fun. I'm surprised they'd have him put the inhaler directly in his mouth though. That can cause thrush. I know it sounds crazy, but have you tried taking him off the reflux meds to see what happens? When Madi's reflux got worse her dose was upped and then she was put on an adult dose of Nexium. Even that didn't work. The doctor said that was an indication that she likely didn't need the meds and that they were actually making her worse. I thought he was a nutjob, but when we took her off the meds she really did get better. Just a thought. I hope the EGD goes well!
Ben was put on Prevacid by the GI for 3 months to see if there was an erosion that just needed to heal. After 3 months were up he was taken off the meds to see how he reacted. The reflux came back bad (never really went fully away) and we were giving him Tums at bedtime a lot of nights.
It just seems like one more piece of the puzzle, KWIM? The asthma, adenoids, skin rashes, reflux, chest infections. If it's EE then we'll cross that bridge when we come to it.
He reminds me so much of Madi, minus the rashes. She was on reflux meds for over a year but did eventually outgrow it. Her reflux was diagnosed as LPR, or silent reflux. All of her symptoms were respiratory and she was never in any pain from it. Her EGD didn't show a whole lot but her bronchoscopy did. Has Ben ever had an EGD before (sorry I can't remember)?
Good luck figuring it out. All of the asthma/rash kinds of things definitely sound like a food allergy or intolerance. Finding out what can be so freaking hard though. Good luck!!!
Natalie & Dan - June 2, 2001
Samma - Nov. 5, 2004
Tommy - Oct. 19, 2007
Her bronchoscopy showed cobblestoning and inflammation in her airways which was indicative of LPR. So in addition to the reflux meds they started her on a daily inhaler and that helped more than anything. At that point she wasn't diagnosed with asthma, just chronic croup and inflammation. I suppose she could still have LPR but there's no real way of knowing without another bronchoscopy.
And good thing about the EGD is that there is no prep involved
Endoscopy looked completely normal! We are just waiting for the biopsy results.