A friend of mine has a baby with Biliary Atresia. She is 3 months old and living in the hospital awaiting a liver transplant. Anyways, her father asked me how to deter her from pulling out her feeding tube and ivs. When Jessica was in the nicu, she did this too, but was much younger. I suggested mittens or socks for her hands.
Anyone else have some suggestions? Also has anyone ever gone through this sickness and offer some words of support I can pass along.
link to their blog..