Biopsy Results
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  1. #1
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    Default Biopsy Results

    We had Alana's follow-up appointment yesterday with the nurse practitioner. I really like her because she takes a lot of time with us and doesn't try to sugar coat anything (the doctor doesn't like parents to worry and only wants to talk about the here and now which drives me crazy, lol).

    The biopsy showed inflammation in Alana's stomach (gastritis) but her colon looked healthy. The biopsy did not indicate Crohn's, however, the nurse practitioner and doctor both feel that she has it based on her symptoms and positive blood test. She said it could be hiding in her small intestine or the locations that were biopsied may not have been the "perfect spot" (Crohn's tends to be patchy). Basically, they need more to make an official diagnosis and start the appropriate treatment.

    So, Alana is scheduled for a CT scan on the 23rd to check the bowels. She's less than enthused about another IV (they won't use Lidocaine this time for some reason) and having to drink the barium. I'm trying not to have any expectations when it comes to the results. If they find something, okay we'll deal with that. If not, we have to have yearly follow-ups because according to the nurse practitioner it is only a matter of time before the Crohn's shows up.

    Alana has been able to go to school but is extremely exhausted in the evenings. She hasn't been eating much but has somehow gained a pound since her last doctor's visit. Perhaps the key to losing weight is to eat everything in sight! lol Her reflux has gotten worse and she was prescribed Prilosec so we're hoping that helps. Unfortunately she's getting a cold right now so we're just hoping the asthma doesn't flare up too. So far this winter her asthma has been very controlled and that has been one less thing to worry about.

    So, not huge news from the biopsies but we're excited about the Prilosec. I now understand why getting the "Crohn's Disease" diagnosis can take such a long time.....

  2. #2
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    I'm sorry she's getting worse. I hope the Prilosec helps. I was on it for awhile before I had corrective surgery. Do they think the reflux is part of Crohn's? Or is it something else? I can't remember you saying if she was tested for food allergies.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

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    I asked her what could be causing the reflux and she said it is difficult to say. In my heart I believe it is from the Crohn's, but since that diagnosis isn't official yet I could be wrong.

    Was the Prilosec helpful for you? My youngest daughter had silent reflux a few years ago and was on Prevacid and then Nexium, but never Prilosec.

    Alana does have food allergies (tomatoes, citrus, and almonds) and we're very careful to avoid those foods. She's due for allergy testing again in March so we're anxious to see if she's outgrown these allergies or developed new ones. Now we've also been told to avoid sodas and limit fried foods.

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    Prilosec worked great for me. I can also recommend aloe vera juice. It heals from the inside out (like putting it on a sunburn). I took 2 ounces 3-4 times a day (especially after meals and bed time), and it worked wonders. I could feel soothing immediately. I bought George's brand, because it is distilled rather than using citric acid as a preservative, so it tastes like water and doesn't need to be refrigerated.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

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    I have thought about trying that and you just made up my mind. Thank you!

    She started the Prilosec today but I guess we can't expect it to work instantly huh? lol She was excited that it was a pill to swallow and not liquid or solutabs. I was excited that it has a generic form and was only $12!

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    (((hugs)))

    If it helps at all, I had lidocane for an IV once and it hurt worse going in than the iv needle. Let her know I said that - since then I've NEVER opted for the lidocane. It burned.

    I hope that you get more answers soon. No official dx seems to make it hard to know how to help her
    Natalie & Dan - June 2, 2001
    Samma - Nov. 5, 2004
    Tommy - Oct. 19, 2007




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    Prilosec takes a few days, but if you do the aloe vera juice too, you may see quicker results. Don't bother with the "gel" because it's just aloe vera juice with thickener in it.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

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    I haven't had a chance to get the juice but the burping and reflux is definitely getting worse. I think I'll make a trip tomorrow evening to find some. Her asthma is flaring up now and she is just miserable. The burping....coughing....spitting up....I just want to "fix" her and I know that isn't realistic.

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