We had Alana's follow-up appointment yesterday with the nurse practitioner. I really like her because she takes a lot of time with us and doesn't try to sugar coat anything (the doctor doesn't like parents to worry and only wants to talk about the here and now which drives me crazy, lol).
The biopsy showed inflammation in Alana's stomach (gastritis) but her colon looked healthy. The biopsy did not indicate Crohn's, however, the nurse practitioner and doctor both feel that she has it based on her symptoms and positive blood test. She said it could be hiding in her small intestine or the locations that were biopsied may not have been the "perfect spot" (Crohn's tends to be patchy). Basically, they need more to make an official diagnosis and start the appropriate treatment.
So, Alana is scheduled for a CT scan on the 23rd to check the bowels. She's less than enthused about another IV (they won't use Lidocaine this time for some reason) and having to drink the barium. I'm trying not to have any expectations when it comes to the results. If they find something, okay we'll deal with that. If not, we have to have yearly follow-ups because according to the nurse practitioner it is only a matter of time before the Crohn's shows up.
Alana has been able to go to school but is extremely exhausted in the evenings. She hasn't been eating much but has somehow gained a pound since her last doctor's visit. Perhaps the key to losing weight is to eat everything in sight! lol Her reflux has gotten worse and she was prescribed Prilosec so we're hoping that helps. Unfortunately she's getting a cold right now so we're just hoping the asthma doesn't flare up too. So far this winter her asthma has been very controlled and that has been one less thing to worry about.
So, not huge news from the biopsies but we're excited about the Prilosec. I now understand why getting the "Crohn's Disease" diagnosis can take such a long time.....