Well, the day finally happened…
Skyler’s doctors said at 6mo that he would probably need his prosthetic mitral valve replaced when he was 3 or 4 years old. Results of the tests, however, kept coming back that it was working fine. Well, he’s now 12, and last week he had another cardiac cath, and the results were not so good (I wasn’t actually there, DH was). The Dr. said that they are looking at doing open heart surgery in the next 3 months. They want to replace his mechanical mitral valve, and put in a mechanical aortic valve (he has aortic stenosis).
On Wednesday this week they will have a meeting and give us a plan of attack. Last I heard the idea was to do a ‘Ross Procedure’ where they remove the mitral valve, and replace it with his current working pulmonary valve (which grows with him and is his tissue) so that in the future they don’t have to do open heart surgery if they have to replace either prosthetic valve. I don’t quite understand it because any research I read on the Ross procedure says that it’s used to replace the aortic valve, not the mitral valve, so I have a couple questions about that.
In any case, it looks to be an eventful time pretty soon.
DS is supposed to have minor surgery too, to see if they can find his missing testicle….