Chiari Malformation

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mujul79's picture
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Chiari Malformation

As some of you know Heath has a special needs and on Sat we are going to be part of a nation wide walk for awareness. Heres the link to Heath's page. If you can post to your FB page it would mean the world to me. So many don't even know what Chiari Malformation is and I just want to spread the word out about it we walk in 48 hours. https://www.conquerchiari.org/ccwaa11/HeathNorthup

We have been talking to his Nero S and it is so back and forth on if the brain surgery would help him at all. They still need to call me back after they talk to the ENT more about his sleep apnea. But he started at his Hearing impaired preschool last week and he loves it. AND his teachers are so supportive with is IEP.

wishing4agirl's picture
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Posted to my FB page.

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Hi Jules! Thanks for sharing. I know a couple of people with Chiari. I was away from PO for awhile, so I didn't know about Heath. I'm glad he is enjoying his preschool and you have an awesome IEP team!

mujul79's picture
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The walk was awazing. Our team raised over 500 and the walk made alittle over 10k.
Our team

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Last seen: 3 years 3 months ago
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That's awesome! Thanks for sharing the pic!

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That's great! Congratulations! Love the picture!

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awesome!!!