Chiari Malformation

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mujul79's picture
Joined: 01/22/05
Posts: 1843
Chiari Malformation

As some of you know Heath has a special needs and on Sat we are going to be part of a nation wide walk for awareness. Heres the link to Heath's page. If you can post to your FB page it would mean the world to me. So many don't even know what Chiari Malformation is and I just want to spread the word out about it we walk in 48 hours. https://www.conquerchiari.org/ccwaa11/HeathNorthup

We have been talking to his Nero S and it is so back and forth on if the brain surgery would help him at all. They still need to call me back after they talk to the ENT more about his sleep apnea. But he started at his Hearing impaired preschool last week and he loves it. AND his teachers are so supportive with is IEP.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Posted to my FB page.

Joined: 12/01/05
Posts: 1000

Hi Jules! Thanks for sharing. I know a couple of people with Chiari. I was away from PO for awhile, so I didn't know about Heath. I'm glad he is enjoying his preschool and you have an awesome IEP team!

mujul79's picture
Joined: 01/22/05
Posts: 1843


The walk was awazing. Our team raised over 500 and the walk made alittle over 10k.
Our team

Joined: 11/28/06
Posts: 848

That's awesome! Thanks for sharing the pic!

Joined: 12/01/05
Posts: 1000

That's great! Congratulations! Love the picture!

Joined: 05/05/04
Posts: 435

awesome!!!