Well, the CT scan was a nightmare. Let's just say the Barium didn't settle too well and I spent the majority of the day cleaning it up. She was a trooper when it came to the IV though and I was very proud of her.
Unfortunately the CT scan was negative and didn't show anything. I say unfortunately because her symptoms are getting worse daily yet we have no real answers. She now vomits at least once every single day, has diarrhea and doesn't always make it to the bathroom in time, cries several times a day that her stomach hurts, and still has the awful reflux. I feel like we've reached a point where there is nothing else we can do but just pray that she miraculously gets better. Talk about an awful feeling....
On top of all that she now has an ear infection. So that means antibiotics and more diarrhea.
I started giving her aloe vera juice last night and I'm hoping that will help. At this point we're pretty desperate. I have considered that she may have developed more food allergies which is contributing to the problems she's having. She's having allergy testing again in March so we'll see.
But please pray for her (and me). It just kills me to see her so sick and I can't "make it better."
Will definitely pray for her, poor girl! I'm wondering too if she has some allergy or food sensitivity. My nephew when he was a baby had some food allergies and had similar symptoms (vomiting, reflux, diarrhea, blood in the stool), and he was only getting exposure to the foods through breast milk. I believe it was wheat, eggs and dairy that he was allergic to. My SIL had to go back to a very basic diet (plain grilled chicken, plain vegetables, etc.) until he stabilized. Once he got over it and healed up, he is now able to eat everything. I'm just wondering if you should just take her down to a diet of a few things that are unlikely allergy foods (green veggies, chicken, rice) and cut out things like wheat, dairy, eggs, sea food, tomatoes and berries, etc. If she improves and stabilizes, you can always start adding foods back one at a time.
I think I'd try Deb's idea too. There's a diet that Dr. Sears wrote for nursing women who are trying to figure out what's bothering their baby. I think it's basically plain chicken, sweet potato, and a couple other VERY neutral things. I've got a friend who's daughter is allergic to bananas, so anything is possible.
(((hugs))) to you
I agree with Deb too. And Dakota has problems with fructose (Fructose Malobsorption - I may have spelled that wrong). It's like a severe allergy to stuff in certain fruits and veggies and HFCS, etc. He had all the same symptoms she has but that was before he was 3 (I took it away at 3 realizing that was the problem). Prayers things get better. I totally understand the helpless feeling. (((Hugs)))
Over Christmas break we tried a very bland diet for about a week or so to see if she would improve. She ate rice, crackers, applesauce, chicken, and green beans for about a week. Didn't help. Not even a little bit. She was tested for some sort of sugar malabsorption when she had the colonoscopy. Apparently that was fine because they didn't tell me otherwise.
But, last night when she went to bed she told me that her stomach didn't hurt! That was the first time in so long that she didn't have any pain at all! She also didn't have diarrhea or throw up yesterday! So I'm hopeful that her symptoms will start easing up a bit and maybe the aloe vera juice is helping (or at least I'd like to think it is). This morning she is hurting again but at least she had some relief last night.
I'd skip crackers. I've found out that I'm gluten intolerant and corn also upsets me. If I cut those out of my diet I don't have IBS symptoms. I'm actually on the paleo diet (meat, eggs, veggies, nuts, seeds, berries, some fruit) and feeling REALLY good.
After some research I've decided to take her off the Singulair for a trial period. Stomach aches, diarrhea, and reflux are all common side effects so I'm wondering if that is the culprit. It is definitely worth trying.
The crackers we had happened to be gluten free.
Yeah she probably doesn't have it then. Hope the symptom's easing up trend continues.
Really hoping she is turning a corner.
I was wondering how Alana was doing. If you have time, can you update? Is the Aloe Vera helping? What about being off her singulair?
I really hope she gets some repreive.
It's a long time until March. I know you haven't been keen on alternative therapy. I just wondered if it is an option since you haven't had much luck so far with the traditional health care.