CT Results

13 posts / 0 new
Last post
Joined: 11/28/06
Posts: 848
CT Results

Well, the CT scan was a nightmare. Let's just say the Barium didn't settle too well and I spent the majority of the day cleaning it up. She was a trooper when it came to the IV though and I was very proud of her.

Unfortunately the CT scan was negative and didn't show anything. I say unfortunately because her symptoms are getting worse daily yet we have no real answers. She now vomits at least once every single day, has diarrhea and doesn't always make it to the bathroom in time, cries several times a day that her stomach hurts, and still has the awful reflux. I feel like we've reached a point where there is nothing else we can do but just pray that she miraculously gets better. Talk about an awful feeling....

On top of all that she now has an ear infection. So that means antibiotics and more diarrhea.

I started giving her aloe vera juice last night and I'm hoping that will help. At this point we're pretty desperate. I have considered that she may have developed more food allergies which is contributing to the problems she's having. She's having allergy testing again in March so we'll see.

But please pray for her (and me). It just kills me to see her so sick and I can't "make it better."

Joined: 12/01/05
Posts: 1000

Will definitely pray for her, poor girl! I'm wondering too if she has some allergy or food sensitivity. My nephew when he was a baby had some food allergies and had similar symptoms (vomiting, reflux, diarrhea, blood in the stool), and he was only getting exposure to the foods through breast milk. I believe it was wheat, eggs and dairy that he was allergic to. My SIL had to go back to a very basic diet (plain grilled chicken, plain vegetables, etc.) until he stabilized. Once he got over it and healed up, he is now able to eat everything. I'm just wondering if you should just take her down to a diet of a few things that are unlikely allergy foods (green veggies, chicken, rice) and cut out things like wheat, dairy, eggs, sea food, tomatoes and berries, etc. If she improves and stabilizes, you can always start adding foods back one at a time.

Joined: 05/05/04
Posts: 435

I think I'd try Deb's idea too. There's a diet that Dr. Sears wrote for nursing women who are trying to figure out what's bothering their baby. I think it's basically plain chicken, sweet potato, and a couple other VERY neutral things. I've got a friend who's daughter is allergic to bananas, so anything is possible.

(((hugs))) to you

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

I agree with Deb too. And Dakota has problems with fructose (Fructose Malobsorption - I may have spelled that wrong). It's like a severe allergy to stuff in certain fruits and veggies and HFCS, etc. He had all the same symptoms she has but that was before he was 3 (I took it away at 3 realizing that was the problem). Prayers things get better. I totally understand the helpless feeling. (((Hugs)))

Joined: 11/28/06
Posts: 848

Over Christmas break we tried a very bland diet for about a week or so to see if she would improve. She ate rice, crackers, applesauce, chicken, and green beans for about a week. Didn't help. Not even a little bit. She was tested for some sort of sugar malabsorption when she had the colonoscopy. Apparently that was fine because they didn't tell me otherwise.

But, last night when she went to bed she told me that her stomach didn't hurt! That was the first time in so long that she didn't have any pain at all! She also didn't have diarrhea or throw up yesterday! So I'm hopeful that her symptoms will start easing up a bit and maybe the aloe vera juice is helping (or at least I'd like to think it is). This morning she is hurting again but at least she had some relief last night.

Joined: 05/05/04
Posts: 435

I'd skip crackers. I've found out that I'm gluten intolerant and corn also upsets me. If I cut those out of my diet I don't have IBS symptoms. I'm actually on the paleo diet (meat, eggs, veggies, nuts, seeds, berries, some fruit) and feeling REALLY good.

Joined: 11/28/06
Posts: 848

After some research I've decided to take her off the Singulair for a trial period. Stomach aches, diarrhea, and reflux are all common side effects so I'm wondering if that is the culprit. It is definitely worth trying.

The crackers we had happened to be gluten free.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Yeah she probably doesn't have it then. Hope the symptom's easing up trend continues.

Joined: 12/01/05
Posts: 1000

Really hoping she is turning a corner.

sarahsunshine's picture
Joined: 11/29/06
Posts: 1462

I was wondering how Alana was doing. If you have time, can you update? Is the Aloe Vera helping? What about being off her singulair?

I really hope she gets some repreive.

It's a long time until March. I know you haven't been keen on alternative therapy. I just wondered if it is an option since you haven't had much luck so far with the traditional health care.

Joined: 11/28/06
Posts: 848

Thank you for asking about her, but unfortunately I haven't seen any improvements in her. Thursday was her last night taking Singulair and she's complained of a headache since Saturday afternoon. She also has ear infections that don't seem to be getting any better. She's been on an antibiotic since Wednesday but it obviously isn't helping. She will likely have to go on the Nasonex again to kick it. So frustrating to add another med again. My Mom had to pick her up from school today because she was vomiting. She vomits every day but she has gotten really good at hiding it so usually no one notices. She'll either run to the restroom quickly when she feels it coming on (no one asks questions because they know she has bathroom issues) or hold it in her mouth until she can get there. But apparently she couldn't get up from the lunch table fast enough today and she was busted. Silly girl was mad because she had to miss out on making a groundhog for tomorrow, lol.

So being off of the Singulair and drinking the aloe juice weren't the "miracle cures" I was hoping for. At least not yet.

I have a lot of ideas running through my head right now but I'm definitely more open to your suggestions at this point. I'm desperate and traditional medicine certainly isn't my best friend right now. For now I want to give the juice and break from Singulair a bit longer to work but I'm definitely making plans for our next trial. I'm looking into a few herbal supplements that I'd like to try because Maalox certainly can't be good for you if taken on a daily basis. I'll meet with her GI again in March and depending on what she says (and how Alana is) I may seek a second opinion. Shands has a decent Pediatric GI program but Atlanta has a better one. Something to think about anyway. And looking forward to allergy testing in March!

Dixiemom1st's picture
Joined: 09/07/07
Posts: 620

Elimination diets take at least 2- 6 wks to have an effect. So it is a long process, it takes them at least 2 wks to get the old food out of their system, with our sons milk allergy we saw an effect after 4 wks.

But hopefully you found what is the issue now and that works.

Joined: 11/28/06
Posts: 848

We've done so many "elimination diets" I cringe just hearing the name. At this point it really isn't worth eliminating any foods because she is scheduled for allergy testing in a month. If allergies are the problem (which is quite possible) we'll know very soon. But eliminating Singulair just seemed like a good starting point because the only way to tell if that is what is causing her issues is to take her off of it for a trial period.

Looks like we're headed back to the Pedi tomorrow because her ears still hurt and she only has one more dose of the antibiotic. Fun stuff. At least she didn't vomit at school today. She waited until she got home for that, lol.