Hi everyone -
I'm Carisa, and my daughter is Clara. She's 8 months old (so big! :eek: ) and has been getting Early Intervention services since she was 8 weeks old for unlabeled "sensory issues." She's extremely sensitive to seemingly innocuous noises, textures, movements etc. It really affects her ability to get to sleep and stay asleep, and makes diaper changes, getting dressed and bath time super difficult. At first they thought maybe her nervous system was just really immature (she wasn't a preemie, but I was induced due to gestational diabetes, so she came before she was "ready") and it would improve with time, but is hasn't. Its just morphed into new and different sensitivities as she develops.
She had her Early Intervention assessment a few weeks ago (they do one every 6 months) and the review was today. I was totally expecting her sensory profile to be "abnormal" which it was, in basically every area. What I wasn't ready for was the news of a "significant delay" in the area of receptive language. I've thought for a while that its a little funky that she doesn't turn when I talk or say her name, but never really thought about it too much. Apparently she scored a 0 out of 3 on every marker in the category. So now on top of her OT, they are adding a speech and language pathologist and a developmental specialist, and right after her first birthday they want to see where she falls on the M-CHAT (autism diagnosis tool). I know she's way too young for any kind of formal diagnosis to be made, but obviously all of the early indicators are there, and they're concerned enough to bring in two more people to work with her.
I feel kind of sick. I love her, I'll love her no matter what, I've considered this as a possibility in the past and it never really phased me. But talking to the EI people and them bringing out the "big guns" just makes me want to cry. I just want her to be happy. I want other kids to be nice to her. I don't want her life to be hard. I know its good that's she's getting such excellent care, and will continue to if the outcome is what we think it is. I'm just scared. And sad.