Going home tomorrow, maybe?
It looks like we will likely be able to go home tomorrow. There are a few issues to deal with first. Isaiah's doing so well with his stimulator, which is great. However, the excess muscle tone going away suddenly has left him with very low muscle tone. He needs to re-learn how to move and to support himself. Right now, he can't walk, sit up, swallow, move his bowel, etc., because he is used to involuntary muscle contractions doing it all for him. So we need to get a PT evaluation, feeding evaluation (OT), etc. And I have also requested extra nursing care for the weekends for a few weeks while he recovers. I don't want to leave the hospital until we have all of our ducks in a row. Once we get home, it will be a long road to recovery, but we will at least have everything in place that we need. I've requested these two weeks off and a limited work schedule after that until Isaiah's back on his feet.