Hello
+ Reply to Thread
Results 1 to 10 of 10

Thread: Hello

  1. #1
    Posting Addict Coconut2's Avatar
    Join Date
    Jan 2007
    Location
    Lake City, FL
    Posts
    6,439

    Default Hello

    Hello, I lurk here often and thought it was time I introduced myself especially since I just posted in another thread.
    My name is Stephanie, I am a stay at home mother to 3, student finishing up my bachelor's in accounting online, and married to my best friend Shane.
    Victoria was born with hip dysplasia but after a year of wearing a brace her hips were perfect and she hasn't had any problem since. She is 6 1/2 years old and in the first grade. She has a different father from my husband and her brothers, so she has some emotional problems we are dealing with but it has a lot to do with the confusion of having two houses and families. She is seeing a nutritionist because she is extremely overweight although we exercise, don't eat sweets, eat healthy, and she is very active. Her thyroid, colesterol, and diabetes were all tested but came back normal so her doctors are stumped on the severe weight gain but we are working to get it under control and hopefully have her grow into the weight or at least get a little older before we worry about weight loss. I just want her to be comfortable in her own skin and not worry about weight.
    Vincent is severly speech delayed due to weak oral and facial muscles. He is also OCD, flat footed, and has celiac disease. He has been evaluated because he is very aggressive but for now they want to see him back next year because they feel it correlates with his speech. Sometimes I wonder what people think is wrong with him because of how he acts, sometimes I don't even want to go in public but I also don't want to seclude us. He is 4 1/2 years old and in a special education pre-k class at the local elementary school were he receives speech therapy and he also goes to speech therapy after school twice a week. He has come a long way from only saying da at 2 1/2 years old to being more intelligable to us not so much to strangers, he still has a long way to go but I'm happy for the progress. I'm nervous about him starting a regular kindergarten class next year but I'm trying not to stress yet. He had clogged tear ducts at birth that was resolved with tear duct probbing surgery at 1 years old. He also had chronic strep, snoring, and severe sleep apnea which lead to his tonsils and adeniods being removed this June 2011. The sleep apnea and snoring has resolved itself and he has only had one case of strep. He also sleep walks which has gotten better since surgery but not completely resolved, I think it is because he is in a deeper sleep than before when he was having episodes. This poor baby has seen so many specialists it makes me sad for him, he now officially hates doctors but I know it is what is best for him.
    The baby of the family and our last is Vance, he is 2 1/2 years old and has RADS which is reactive airway dysfuntion syndrome also another way of saying asthma but he is too young to test for it. He was born 3 weeks early and spent time in the NICU with fluid in his lungs and low blood sugar. At 6 months old he got RSV and was extremely ill, from there it all went down hill. He has several ear infections which caused them to put tubes in his ears, he has only had one ear infection since then. He has had bronchiolitis, bronchitis, pneumonia, RSV many many times which causes him to need a neubulizer with albuterol and sometimes steriod treatments. He has allergies as well, definitely got all of my bad genes. A simple cold turns into a severe RADS episode which is never fun so we have to be careful we don't take him around sick people, keep him bundled especially his head in the cold. He was also born with a double hernia which was repaired last year in surgery, that wasn't fun but thankfully seems to have healed and not return.
    Sorry for throwing it all out but figured I would give the whole story of my beautiful babies, we have had our ups and downs with each of their needs but together as a family we work through it and I know we will overcome. I look forward to talking to everyone and it is nice to know I am not the only one with a special child.
    Stephanie & Shane Proud Parent's To
    Victoria (7-28-05), Vincent (6-5-07), Vance (6-5-09), Viking (5-13-10), & Valiant Batman (6-5-11)
    3 monkeys

  2. #2
    Posting Addict wishing4agirl's Avatar
    Join Date
    Jan 2008
    Location
    Washington
    Posts
    13,111

    Default

    Welcome!!! I'm so glad you came out of lurkdom.

    I'm Angela I have four kiddos total. Two of which are special needs. Dakota is high functioning autistic. He's doing great, with a few minor issues. Eli is the one I end up talking the most about. He was born with Shone's Syndrome, Subclavian Steal Syndrome, developmental delays, and some other issues we are trying to figure out. He's had lots of surgeries.

    When you talk about the aggression in your son, have they considered (and isn't just like some stranger to ask this lol of course it's me) sensory issues and a combination of social issues? Just a thought. And the "da" talk you son did is the EXACT same thing that Dakota did. It was "da da da da da da da da da" for EVERYTHING. I finally talk him some signs and he learned a few of those words but that was it until he was almost 3 yo. Seriously he is a COMPLETELY different kid than what he was 3 years ago. Almost unrecognizable.

    Anyway, this isn't the dream group everyone hopes to join, but we are glad you joined us. This is an AWESOME group of ladies.

  3. #3
    Posting Addict
    Join Date
    Dec 2005
    Location
    Southwestern PA
    Posts
    11,678

    Default

    Hi. Nice to meet you. You have a lovely family! I was wondering if Vincent has been evaluated for Autism Spectrum Disorder? Just curious because Autism can involve speech delay and aggression, and many get diarrhea from eating gluten-based foods. Not sure if that is what Angela was thinking about when she asked about sensory and social issues, but it was the first thing that came to my mind when I read your description. Does he have sensory issues too? (e.g. prefers or avoids specific clothing, textures, foods, smells, movements, etc.)

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  4. #4
    Posting Addict
    Join Date
    Dec 2005
    Location
    Southwestern PA
    Posts
    11,678

    Default

    Oh, and have you visited the large families board?

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  5. #5
    Posting Addict wishing4agirl's Avatar
    Join Date
    Jan 2008
    Location
    Washington
    Posts
    13,111

    Default

    Quote Originally Posted by 2sonsplus1 View Post
    Hi. Nice to meet you. You have a lovely family! I was wondering if Vincent has been evaluated for Autism Spectrum Disorder? Just curious because Autism can involve speech delay and aggression, and many get diarrhea from eating gluten-based foods. Not sure if that is what Angela was thinking about when she asked about sensory and social issues, but it was the first thing that came to my mind when I read your description. Does he have sensory issues too? (e.g. prefers or avoids specific clothing, textures, foods, smells, movements, etc.)

    Pretty much.

  6. #6
    Posting Addict
    Join Date
    Dec 2005
    Location
    Southwestern PA
    Posts
    11,678

    Default

    ^I kinda figured

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  7. #7
    Posting Addict Coconut2's Avatar
    Join Date
    Jan 2007
    Location
    Lake City, FL
    Posts
    6,439

    Default

    Quote Originally Posted by wishing4agirl View Post
    When you talk about the aggression in your son, have they considered (and isn't just like some stranger to ask this lol of course it's me) sensory issues and a combination of social issues?
    Quote Originally Posted by 2sonsplus1 View Post
    I was wondering if Vincent has been evaluated for Autism Spectrum Disorder? Just curious because Autism can involve speech delay and aggression, and many get diarrhea from eating gluten-based foods. Does he have sensory issues too? (e.g. prefers or avoids specific clothing, textures, foods, smells, movements, etc.)
    We thought he was on the Autism Spectrum but although he hasn't been officially evaluated everyone from his speech therapists to the behavioral therapists say he is in no way shape or form autistic so basically they just leave us with he is an usual child. The first time it crossed my mind was right before he was 2 years old he started clenching his fist a lot, still does when he is stressed or upset. He likes to line things/toys up and separate colors. He is very particular about everything and things need to be done a certain way or he freaks out. I assumed this has to do with his OCD but who knows I'm not even sure the specialist know because a lot of the times they aren't sure why he does the things he does other than it just being him. I'm hoping his aggressions lessen as his speech improves because I worry about him and the fact that he is always hitting someone and almost seems to take enjoyment in their pain. He also has a very high pain tolerance level we worried at one point he wasn't properly feeling the pain or something because he would laugh at inappropriate times and laugh at getting spanked so that does nothing for him when disciplining. The only time he would cry was when he was frustrated, if he thought you laughed at him he would freak out on you really bad as well. I would love answers so we can come up with solutions to help him.

    Quote Originally Posted by 2sonsplus1 View Post
    Oh, and have you visited the large families board?
    I lurk there often but always wondered if I really "qualified" as a large family. LOL Although I did get the "you are done?" when we got pregnant of our third and many comments when in public especially alone about how "my hands are full". Sometimes the nerve of people baffles me I would never say anything like the comments I hear to another person and certainly not someone I don't know.
    Stephanie & Shane Proud Parent's To
    Victoria (7-28-05), Vincent (6-5-07), Vance (6-5-09), Viking (5-13-10), & Valiant Batman (6-5-11)
    3 monkeys

  8. #8
    Posting Addict wishing4agirl's Avatar
    Join Date
    Jan 2008
    Location
    Washington
    Posts
    13,111

    Default

    I am going to say follow your instinct. It YOU don't think he's on the spectrum then he's more than likely not. If it's just THEM telling you that and your instinct says their wrong follow it. Before Dakota was diagnosed I would have never really said he was on the spectrum. I just knew he was not typically developing. ALL the drs told me he was fine. It was a therapist who finally told me he should be evaluated. I still didn't know if that really was it, but I knew he needed to be evaluated if anything just to rule it out. The dr was not going to give the referral for the eval. But I pushed until he did. Once they did the actual ADOS it was discovered he really was on the spectrum. There were behaviors I was missing, mainly because they didn't bother me. I'm so glad I did push. I also have a friend who for some reason they will not really complete the ADOS on him. He shows some of the same EXACT behaviors your son does. Luckily my friend's son also sees a neurologist. The neurologist finally said "he is on the spectrum, we just really don't know where exactly he fits". This neuro also works in the autism clinic so his opinion is very well taken by her. My whole point of the at was just to follow your instincts and yours alone.

    The other thing I was going to ask is if he's had genetic testing done as I know there are several syndromes that can mimic autism but not be autism. For some reason I can't remember the names.

    Anyway, I know it's rough. We as parents just want to help our kids and when we don't exactly know how it frustrating. I don't know that any of that helps, but thought I would put it out there just in case.

  9. #9
    Posting Addict
    Join Date
    Dec 2005
    Location
    Southwestern PA
    Posts
    11,678

    Default

    I'm not going to say they're wrong, because I have never met your son, and they have. I'm just curious what makes them so certain he doesn't have autism.

    Secondly, in my experience the number one biggest factor in minimizing aggression in children is teaching them how to communicate. For some kids, it's the only thing needed, and for others it's coping skills to minimize frustration and anxiety and play skills to minimize boredom.

    In terms of compliance, I think you're going to find that the biggest key is going to be finding ways to reward positive behaviors and ignoring negative behaviors. It means finding out what really makes him tick (e.g. what does he get out of to the negative behaviors that motivates him to keep doing it, and what can you give him when he demonstrates good behaviors to motivate him to keep doing them instead?)

    You have a long road in front of you, but you are doing an awesome job. Just keep up the good work. So much of parenting is trial and error.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  10. #10
    Posting Addict
    Join Date
    May 2004
    Location
    NY's Southern Tier
    Posts
    22,132

    Default

    I missed this yesterday. Welcome to the group! My son was born with a cleft lip.

    I hope you can get some answers! It sounds like you have a lot on your plate right now.
    Natalie & Dan - June 2, 2001
    Samma - Nov. 5, 2004
    Tommy - Oct. 19, 2007




+ Reply to Thread

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
v -->

About Us | Contact Us | Privacy Policy | Sitemap | Terms & Conditions