Helpful Links

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SparkleMomma's picture
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Helpful Links

Here we will post links for different conditions & defects. Please feel free to PM me if you have a link that you would like to share with everone Smile

~*~Some people may find some of the links upsetting. But keep in mind, they are all important & touch all of us differently.~*~

AMNIOTIC BANDING SYNDROME

AMPUTATIONS

ANENCEPHALY

AUTISM SPECTRUM DISORDERS BB

BROWN'S SYNDROME

CHILDREN'S HEART INSTITUTE

CHORDEE

CONGENITAL HEART DEFECTS

HOLOPROSENCEPHALY

HYPOSPADIA

PULMONARY ATRESIA

PULMONARY SEQUESTRATION

SHRINER'S

SPEECH DELAYS & DISORDERS BB

SYMBRACHYDACTYLY

TETRALOGY OF FALLOT

TRISOMY 13

CHAMPS/WAR AMPS

MishNKids's picture
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Diana, would you mind possibly putting up a link on here to the Autism Spectrum Disorders board as well as the Speech Delays and Disorders board on Pregnancy.Org just in case people end up coming here first and don't see the other boards listed?

SparkleMomma's picture
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You got it Mish!!!

luvmynenes's picture
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Thanks for all of the great links!

snangel's picture
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http://www.faces-cranio.org/Disord/Golden.htm
There is one for Martin it's about Goldenhar Syndrome.

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Check out http://www.cpfamilynetwork.org/ for all things cerebral palsy! This site also has great resources that apply to other disabilities, such as advice on choosing a wheelchair or a therapist.