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rubber_da_glove's picture
Joined: 12/31/07
Posts: 1527
Hi

I'm just lurking really but I wanted to introduce myself and have a question

I took DS2 to his 10 month development review last week and I was told things were quite normal with his gross motor development. He's 11 months this week and he cannot roll all the way over from back to front, can't get from laying to sitting, doesn't crawl, doesn't pull up, only just started putting weight on his legs so also no cruising. He can sit up and has been doing that since 7 months and rolling front to back since 3 months

Right now they aren't sure if he's just a bit slow on learning this or if there is something wrong. He's got a follow up review in 2 months and if he's not doing any of the above still he's going to be referred to a ped for an evaluation.

It's obvious there is nothing mentally wrong with him as he happily sits and figures out things like stacking blocks and doing peg jigsaws but he just won't/can't get mobile.

I have been told in the worst case scenario he could have Duchenne Muscular Dystrophy but best he's just lazy (which I'm not sure about because I can see he desperately wants to play with DS1 but can't) and of course everything in between.

So anyone else got any children who have been late with gross motor development?

Like I said, I don't know if I really belong on this board but I also feel I can't talk to anyone on his BB about it (I love the ladies but it's difficult when your child is "different" for other people to understand)

Joined: 11/28/06
Posts: 848

Both of my girls were pretty late with their gross motor skills, my oldest being the latest. She had very low muscle tone and poor motor planning as well. She was about 8 months old before she could sit on her own and about 10 months old before she managed to crawl (and even then she drug one leg behind her). She cruised at about 14 months and finally walked a week before she turned 16 months old. Now she is 6 and is doing back handsprings! lol With a lot of work (no therapies, just dance and gym) she has completely caught up to her peers.

I would definitely recommend getting him evaluated but I also wouldn't stress at this point. Kids do things in their own time. Keep us updated on his progress!

Joined: 05/05/04
Posts: 435

I have friends with kids with hypotonia. In at least once case it also involves the bowels - the poor muscle tone causes GI issues because digestion happens so slowly that the little girl gets constipated. Does your son have problems with that?

rubber_da_glove's picture
Joined: 12/31/07
Posts: 1527

funnily enough he does. It's not as bad as it used to be as he does go every day now he's on solid food but it's nearly always rock hard. I will tell them when I see them again in a few weeks as I never thought of that being anything related. Thanks!!

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Welcome! Feel free to hang out with us. Hopefully your little guy is just "lazy". Some kids just develope at their own rate. My little guy Eli was delayed gross motor wise and had very poor tone. But Eli is a different case because he has massive heart problems and has "crashed" which can cause brain issues so some of the cause for his issues are from that. He has caught up to some degree but will never be typical developing because of his other issues. Talking to people whose children are typical developing can be difficult. They don't understand what it's like. They try to say things to make us feel better. It's not their fault and I can't blame them. But that is what this board is about. Being able to talk, vent, share joys and triumphs and have people to lean on who "get it".

:bigarmhug: Please come and vent any time.

betsy0040's picture
Joined: 03/28/08
Posts: 121

:wavehello:

Hi Sarah!

I know just where you're coming from! Although Joshua was and still is globally developmentally delayed, I had an experience with my BB just after his 1st birthday and they did not understand what I was going through. Some of the girls have been more understanding though so you never know, may be something you want to approach certain people with who you think will be more understanding or you are closer to.

Anyway, we noticed something was up at 7 months when Joshua wasn't sitting up on his own. His pedi was willing to wait but I was not so we had him evaluated at 9 months and he's been in early intervention ever since. He was diagnosed with a rare chromosomal disorder October 2010. He's making great progress, started walking in March. There are many possibilities out there, I hadn't even considered that Joshua's might be a gene disorder. I hope for your sake he's just lazy. You have to follow your gut if you're worried then you won't feel better until he's been evaluated.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

"betsy0040" wrote:

You have to follow your gut if you're worried then you won't feel better until he's been evaluated.

Overwhelmingly yes! Follow your gut and don't let anyone deter you.

Joined: 05/05/04
Posts: 435

For what it's worth, the little girl with severe hypotonia is BRILLIANT and always cheerful, despite the struggles she has. She's Tom's age and not quite walking yet but working her butt off in that direction. She has prune juice frequently and things like that to help reduce the constipation.

It's entirely possible that's not what is going on at your house, but even if it is at least you have heard a happy story about it now Smile

rubber_da_glove's picture
Joined: 12/31/07
Posts: 1527

Thank you so much for all your replies ladies. I always give him prune juice, I have done since he started on solids but it's still always hard as a rock-poor boy. It is starting to feel like that might be what's wrong with him. I have been looking up hypotonia and seen their are various different levels and things that cause it so I'll have a talk with the doc when I go again about the poop so I never even brought that up. It is great to hear that the child you (Natalie) know with severe hypotonia is such a happy bright girl despite her difficulties Smile

Elizabeth-A lot of the mums on DS2's BB are all FTM's and don't really know what to say when I tell them about my worries. They are all really fab woman but it's nice to talk to other people who have "different", no not different.. EXTRA SPECIAL Smile children!

I have a couple of IRL mum friends who have very severely disabled children and I love talking to them, finding out how their LO's are doing. I just never really saw myself having to deal with issues too. DS1 has been in speech therapy since he turned 2 as he didn't speak a word, but he just woke up one day (about 4 months ago) and started talking. He needs some more therapy now for pronunciation as only I can understand what he's saying but he's made great progress. I do find mums who've got normal children and known he's got speech issues tend to treat him like he's stupid, and he's not which does make me get defensive but they just don't understand.

Anyway,I've digressed Smile I just need DH and my MIL to stop telling me that he's fine and stop worrying because I'M his mum and I know best!!

:bighug: everyone, your a great bunch of ladies!!

Joined: 12/01/05
Posts: 1000

Nice to meet you. You're welcome on here any time. I know what you mean about people treating him like he's stupid. I have a special needs child and also work with special needs children. I hate when folks talk about them and their problems in front of them, as if they don't understand.

Joined: 05/05/04
Posts: 435

I'm glad I could help Biggrin

When we found out that Tom was going to be born with a cleft lip I just poured over pictures trying to figure out what to expect, how "normal" he'd look as he grew, etc.

Joined: 09/02/11
Posts: 13

Hi, I'm new here as well. My daughter (Alexa) is 16 months and in occupational therapy to help with sensory issues and low muscle tone. She was a little late to roll, sit up, crawl, etc. OT really helped her (she started at 9 months). In her case it was sensory issues in her hands and just not being aware of where her body was in space that caused some of her delays. She also has issues with constipation and has seen a G.I. specialist to try and sort things out. She's doing much better, just needs to refine her skills. I totally get what you mean about other people not "getting it". It's hard to have to try and explain things on a regular basis to friends who aren't experiencing similiar struggles. Best of luck to you and your family.