Hi there. I'm Heidi, mama to Luken (3). From infancy, I knew that he was different than most other children I've been around. He had "blank spells" and "seizure like episodes". He'd repeat behaviors such as rocking or flapping. He didn't crawl and was slow to walk (18 months). He's always been VERY verbal and is far ahead of most kids his age there. He had early cardiac concerns but those resolved without surgery before his first birthday. His motor skills are there but he doesn't seem to have control over them - as in, he can do things, it's just uncontrolled. He runs into things. He has no self-regulatory skills whatsoever. Ever since he was an infant, his doc commented on his extreme activity level. We've had sleep issues with him since birth. As he got older, I took him to my sister's so she could babysit so I could have a break. She too commented that he was completely out of control. In an hour, he could totally destroy her house, even with her there chasing and trying to keep up with him. It's as if he'd get into a state where it was near impossible to get through to him, let alone contain him. He still does that. He's been dx'd with significant sensory processing issues and we do OT twice a week, PT once a week and see a child psychologist once a week. His anxiety leven is very high and he is very easily overwhelmed by "normal" sorts of stimuli. He struggles with agression at his playschool.
I've been working since August to get him evaluated and see if he meets the qualifications for having an IEP. The person I'm supposed to be working with on this is quite avoidant. I call her at least once a week and she never calls back. It's SO frustrating!
I'm new to the world of services for young children. I feel like the people who are supposed to be helping me just don't care. I live in a rural school district and they contract with a company to provide "special ed" services and therapies. Our insurance runs out at the end of the year and I want to have his services switched over to the school district by they.
I feel quite overwhelmed by all of this. Any encouragement or advice would be greatly appreciated.