Introducing us
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  1. #1
    Mega Poster Caiomhe's Avatar
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    Default Introducing us

    I think we've belonged over here for awhile, I just haven't been able to move past the lurked stage.

    I'm Amanda, stay at home therapist mommy of two. My oldest (3 1/2) is diagnosed with Classic Autism Spectrum Disorder, and my youngest (18m) currently says maybe 3 sound-words (aa sounds means 'help', ss means yes, ss ss means sit) and is showing some autistic traits, but he doesn't seem quite as obsessive as his brother and often is polar opposite (sensory seeking rather than avoidance). We're unsure at this point whether we will be sending him for testing regarding autism.

    It's a whirlwind around here between the two of them, our four specialized therapists, community aid, early intervention, therapy playgroups, and Patrick starting school in 3 weeks (special Ed/early education). but I'm sure you ladies are all too familiar with that havoc. Haha!

    Trying to stay on the brighter side, but I have to admit to feeling a little overwhelmed with the possibility of our youngest being diagnosed. Patrick was always.... It was no surprise for us at all, to say the least. He feels everything all the time and he can't shut it off or tone it down. Daniel was everything I thought a normal baby should be until around 9-10 months or so, then the anxiety started and he lost a whole slew of words, foods became problematic whereas before he would eat anything and everything. I feel like I'm losing him sometimes.

    Anyway, getting a bit ranty and sidetracked. Mostly I just wanted to say hi, so.... Ya know, hi. Haha. I look forward to getting to know you ladies.
    Last edited by Caiomhe; 08-21-2011 at 02:50 PM.
    Amanda ~ DH James ~ DSs Patrick + Daniel

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    Nice to meet you! I'm Tanya and I have 2 little girls, Alana and Madison. Both of my girls have respiratory issues but are doing well for the time being.

    I am an Elementary ESE Teacher and I can sympathize with what your daily schedule must be like. From what you've said it looks like you're getting your little guy tons of help and that will be extremely beneficial for him when he starts school! You'll have to let us know how that first day goes (for him and you! lol).

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    (((hugs))) We have at least one other autism family on here. Probably more but my brain's really not waking up today

    Welcome to the group. As we always say, it's not a fun group to join but it's a TON of help. We all have different issues (Tom was born with a cleft lip) but we all know what it's like to have life be different than what you'd expected.
    Natalie & Dan - June 2, 2001
    Samma - Nov. 5, 2004
    Tommy - Oct. 19, 2007




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    Mega Poster betsy0040's Avatar
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    Hi! I'm Elizabeth mom to 2 almost 3 year old Joshua who has a chromosomal disorder. He is developmentally delayed so we also do all the therapies and he goes to preschool 2 days a week. We recently had him evaluated and they decided that he is on the spectrum as well. Part of his disorder can be Autistic like tendecies/traits so we're not 100% convinced he belongs on the spectrum. He does have some sensory issues so maybe SPD although I don't think he has enough for that either. From what we've been told Autism is a constellation of behaviors and can be very different in each child, still not sure I'm buying it for Joshua but that was their explanation. Anyway, welcome!
    Elizabeth & Jamie - 7/17/2004
    Joshua - 11/23/2008, breastfed for 17 months!



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    Welcome! I have a son with dystonia and one with ADHD. I work with kids on the spectrum. (I'm a Behavior Specialist Consultant.)

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  6. #6
    Super Poster jgriffith's Avatar
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    Welcome!
    Jamie
    Katherine 7/5/02 Olivia 8/2/04 Freddie 5/31/07 Ellie 5/24/11 and Owen Benjamin 10/31/12

    http://www.caringbridge.org/visit/he...egracegriffith

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    Mega Poster Caiomhe's Avatar
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    Thanks for the welcome, ladies.

    Tanya, my youngest has a possible asthma diagnosis. He's been on a 2x daily inhaler for the last 4 months because we just could not get him over all the colds/lethargic/etc. I have it too, what's funny is that we now share the same emergency inhaler. I'm glad to hear your kids are doing so much better these days. How often do you have to get them checked now? Do you find it affects their weight? Since Daniel's symptoms started he's dropped from just under the 90th to 45th, but I'm not sure how much is from the colds?

    Oh yes, we're finalizing his IPP for Specialized Services (with 6 people) on the same week we meet his teacher (in home) - all 4 days before school. I'm sure I'll be a nervous wreck! lol

    Natalie, thank you for the welcome. Did you guys get any indications pre-birth about his cleft lip? I can't imagine facing surgery with a baby so little. I dread Daniel's and he'll be nearly 2 when it comes time!

    Thank you for the welcome, Elizabeth. I'm sorry Joshua's diagnosis is so conflicting. Will it help him get any additional aid in school or at home? Yeah, we're way too familiar with the variances in autism, it can be hard to see them all as being one "thing." I think that's definitely where I struggle with the idea for Daniel, because he is just *so* different from Patrick and by 18 months we didn't need someone to tell us he was autistic. Daniel I just plain don't know.

    Deb, I imagine your job gives you a lot of insight with your kids (enter envy here - haha). Love your siggy. Looks like a lot of love in your home.

    Thank you, Jamie - your daughter is beautiful.
    Amanda ~ DH James ~ DSs Patrick + Daniel

    Accept. Understand. Tell a friend. Include. Support. Matter.

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    Mega Poster betsy0040's Avatar
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    Yes, it will get him more help, that's mostly why I'm not fighting it. I just let people know (like at the transition meeting for school) that they shouldn't put him a box or label him since we don't think that is who he is. I think it's harder to agree with since at least partly it's someone's opinion, unlike his other disorder which you can't argue with a blood test, you know?
    Elizabeth & Jamie - 7/17/2004
    Joshua - 11/23/2008, breastfed for 17 months!



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    My husband spotted a line on Tom's lip during an ultrasound. We were having it to look for possible digestive defects because I had more water than normal. After Dan spotted the line we had another better ultrasound and it was obvious there that something was going on. We couldn't get a view of his palate though, so we knew he'd be born with a cleft lip. Fortunately for us (and him) the palate was fine so he was able to nurse and he's only had one surgery.

    It wasn't easy to take him to the OR though - definitely one of the worst things we've had to go through (especially knowing he'd come out looking different).
    Natalie & Dan - June 2, 2001
    Samma - Nov. 5, 2004
    Tommy - Oct. 19, 2007




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    Both of my girls are short and I do wonder if it is due to the medicine they've taken. Growth restriction is apparently a side effect. Alana is the only one that's lost weight but her asthma is pretty well under control now so I'm not sure that's the cause. Just curious, but what daily inhaler does he take? Madison used to be on QVar 40 but is now medicine free (hopefully that will last!) and Alana is on Advair 115/21.

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