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Thread: Introduction and looking for stroller recommendation

  1. #11
    Community Host sarahsunshine's Avatar
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    Hi Deb!

    Welcome to this board! I don't have much help on the stroller front. I haven't had to deal with that. Is this as a result of the mix-up at the pharmacy?

    I just wanted to say "welcome". This board is a little sow, but everyone usualy comes back regularly to check on each other so don't dispair! Newcomers are always welcome!
    Skyler Dylan 22 April 1999
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  2. #12
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    Hi Sara! Yes, it's due to the pharmacy mix-up. He's had nothing but trouble since then. His meds don't seem to be as effective, and he's having more side effects (probably due to the fact that he needs much higher doses, though the side effects could be directly from the Risperdal.

    For those who don't know me from the Large Families board, Isaiah was given Risperdal by the pharmacy instead of Ropinirole. The names sound similar, but they do the exact opposite. The pills were actually mixed in the same bottle and look identical other than the imprint on one side. After taking unknown quantities of these meds for 9 days, Isaiah woke up from a nap and couldn't move his legs, talk, eat, etc. He ended up in the ER and then admitted to Children's, where they found the med mixup. He had so much trouble that he couldn't go more than 4-5 hours without meds or he'd wake up in pain. So we ended up getting him a feeding tube to give him meds at night. That's the abbreviated version of the story. I'm sure I will share more later.

    ETA: Isaiah has a genetic disorder called dopa-responsive dystonia. He takes the same meds as someone with Parkinson's.
    Last edited by 2sonsplus1; 08-08-2011 at 08:19 PM.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  3. #13
    Posting Addict wishing4agirl's Avatar
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    Deb - I'm so sorry your family has had to go through this. Dealing with a child with medical issues but dealing with someone's mistake that causes your child to be harmed further has to evoke emotions you can't put on paper. (((Hugs)))

  4. #14
    Posting Addict lil96's Avatar
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    Sorry to hear about the difficulties from the pharmacy, that sounds really frustrating!
    I love strollers, so I had to lurk on this. I have heard wonderful things about the special tomatoes strollers. There are a few different types. Here is their website: http://www.specialtomato.com/

    I am pretty sure they work with insurance (but not positive?). They cost slightly under 500. I first heard of them because I follow a blog called Rhett Girl. I think she has a review somewhere on her blog.

    My neighbor's son is special needs and they use a single mountain buggy urban jungle. Their son is ~6 yrs old. I don't know how big or his weight, as I have only seen him in the stroller.

  5. #15
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    I know next to nothing about strollers but wanted to welcome you to our board anyway. I hope you find a stroller that works for you!

    My name is Tanya and I have 2 little girls - Alana is 6, Madison is 4. Alana has allergies and asthma and is currently undergoing some GI testing. Madison was born with laryngomalacia and had chronic respiratory issues but she is now medicine-free and doing well.

  6. #16
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    Quote Originally Posted by lil96 View Post
    Sorry to hear about the difficulties from the pharmacy, that sounds really frustrating!
    I love strollers, so I had to lurk on this. I have heard wonderful things about the special tomatoes strollers. There are a few different types. Here is their website: http://www.specialtomato.com/

    I am pretty sure they work with insurance (but not positive?). They cost slightly under 500. I first heard of them because I follow a blog called Rhett Girl. I think she has a review somewhere on her blog.
    Thanks. We were looking at the Special Tomato strollers last night. They look pretty reasonably priced and include a lot of "accessories" that aren't included in others, like padding, 5 point harness, shopping basket. It's pretty small, though. I am not sure how much time we'd get out of it before he outgrows it. The urban jungle is even smaller, I believe. The Special Tomato might be our best bet, because anything bigger or adjustable to growth is going to cost about twice as much money at least.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

  7. #17
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    I didn't say welcome! Sorry about that. Welcome to our group!

    My name's Natalie and my son was born with an incomplete unilateral cleft lip.
    Natalie & Dan - June 2, 2001
    Samma - Nov. 5, 2004
    Tommy - Oct. 19, 2007




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