Leo has a hospital appt (XP) - Update

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sarahsunshine's picture
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Leo has a hospital appt (XP) - Update

UPDATE!

We went to Leo’s appointment fully expecting that we would have to wait a long time. They were running “on time” (only about 15-20 minutes behind) however. Pretty much everything went as expected. Pretty much all the research I did was what the doctor said.

The resident came in and introduced herself, then she tried to feel for Leo’s testicle. No Luck (like everyone else). She said that the Doctor usually could magically find them when no one else can. No luck, though he thought at one point that he could feel a shrivelled up one. He wasn’t sure, though.

Since he didn’t feel it for sure, it’s possible that
1) Leo never developed it for some reason
2) It shrivelled up due to torsion/blood supply
3) It’s hanging out in all the fatty bit inside his leg and no one can feel it.
3) It’s somewhere in his abdomen (they develop next to the kidneys so it could potentially still be up there).

So, the plan is:
Sometime in September/October Leo will have laproscopic surgery to find the testicle. They try to do it before their 1st birthday, but surgery is closed for holidays in August. This is a day surgery where they go in from his belly button.
1) If they find it “lower down”, they will put it where it should be. If it’s higher up, it may require 2 surgeries. One to bring it halfway down, one to bring it the rest of the way down.
2) If they don’t find it then we’re done.

Anyway, that’s pretty much what happened.

DH was a little worried about this whole thing since the whole reason that DSS had huge heart problems is because of a routine procedure that went wrong.
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No, he doesn't have a big issue, but sice I been hanging around here for years, I thought I'd post!

Leo has an appointment at the hospital next Wednesday. He was born with 1 testicle. Usually when that happens, the other descends by the time the child reaches 3 months, and at the latest 6months. Unfortunately, Leo is 9.5mo now, and there is till no sign of it!

From the research that I have done, it’s not that big a deal (fertility-wise). The main issues, as I see it, are:
1) that an undescended testicle usually means that there is an ‘inguinal hernia’. This means that there a hole between the abdominal cavity and the top of the leg, leaving the possibility for intestines, testicles, and other “stuff” to possibly get pinched off in the upper leg where they aren’t supposed to be.
2) If the testicle remains undescended that it has a much higher rate of testicular cancer (because it is at a higher temperature AND because it’s harder to monitor if you don’t know where it is)
3) There may not be a second testicle (which is fine)

Unfortunately, from the research that I’ve read, it seems that x-rays, and even MRIs are very unlikely to pick up a testicle in the wrong place, so the only way to look for it is to do exploratory surgery… Also, they generally want to do surgery before 1 year, since the longer a testicle stays undescended, the higher the rate of improper development and cancer…

So, Leo has an appointment on Wednesday with a young doctor at the children’s hospital, and I’ll find out if my research was any good… Likely it's just an evaluation and then in a couple months he'll have to have surgery.

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How weird that they can't find it without surgery and yet an ultrasound while they're still in our belly can spot their boy parts.

Hopefully the whole process is relatively peaceful for you!

sarahsunshine's picture
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I'm not particularly worried... Not now, at least. We'll see on Wednesday!

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How do you feel now? Waiting is so tough - it's stressful to know that your baby has to have surgery and then just sit around waiting for it to happen. We're thinking about you!!

ClairesMommy's picture
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DO you have a children's hospital there or are you coming down to the ACH?

wishing4agirl's picture
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I'm glad it went well. Praying everything goes well with surgery.

On another note because you brought it up..... DSS wasn't born with CHD's. I'm just being nosy. One of my awesome friends from college wasn't born with a CHD. She went to the dentist when she was 19 yo and developed that infection I fear. In fact at first she thought she had the flu. She waited so long she had a stroke. I think she is lucky to be alive. She now has a mechanical mitral valve.

sarahsunshine's picture
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I'm not particularly worried right now, and DH doesn't act it, but I think he is trying to manage it logically and trustingly for now.

I keep going back to "how necessary is this?" and "what are the risks"?

It should be no problem...

skylersmomma's picture
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you guys are in my thoughts and prayers. kup on when surgery is. ((hugs))