New neurogist, new opinion
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    Mega Poster isisgoddess_1's Avatar
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    Default New neurogist, new opinion

    I took Josh to his appointment with the other neurologist. I was very matter of fact with.me, but overall seemed like he is a good fit. He thinks Josh has PDD, SPD, and that he is showing signs of ADHD. I dont know how I feel about the last one though. He said yes there are issues there and yes he can grow out of them, but I also need to step back and take a look at how I am responding to him. I get what hi is saying. I tend to let Josh get away with acting certain ways and that isnt helping. He wants us to do at 24 hour vidio study but dh is adamently against that because Josh reacted so badly to the EEG. Now I am not sure what the next step is. I am going ro check out the ABA therapy on thursday. This is another thing dh is not sure about because it would consist of 10 to 4 hours a week of therapy and he thinks this is too much. I am sure we will be doing atleast the OT. I just wonder if he would benefit more from the ABA therapy more. Hmmm. Decisions, decisions.


    Joshua- 04/08/08
    Sofia- 06/10/09
    11/2012, 12/2012, 2/2013

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    Posting Addict wishing4agirl's Avatar
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    I'm glad you went. One thing about the therapy is that the sooner you get started and the more you do the better chance for helping DS. It would probably be better to dive into it and after some considerable time if it's not going according to plan then reevaluate. Dakota was in therapy starting at about 16 months old and I really believe it helped a TON and I really credit it to where he is at today.

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    Posting Addict gardenbug's Avatar
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    I agree with Angela. The earlier the better and re-evaluating over time makes good sense!
    It's always easier to hesitate and delay, but not always smartest.
    Glad you feel this neurologist is a good fit!
    Leo (3 1/2) with Malcolm the cat

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    Good luck!! It's possible that by diving into a ton of therapy now he'd outgrow some. I know my friend's son had lots of sensory therapy and then didn't need it anymore once he started school.
    Natalie & Dan - June 2, 2001
    Samma - Nov. 5, 2004
    Tommy - Oct. 19, 2007




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    Mega Poster isisgoddess_1's Avatar
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    So I found out today that my company doesnt cover therapy for an autism diagnosis. That is horrible. If he had an accompanying diagnosis besides SPD then they would cover therapy except ABA. So since ABA therapy is far more than I can afford I guess we will be going with OT when he gets off their wait list. Hope it doesnt take to long..


    Joshua- 04/08/08
    Sofia- 06/10/09
    11/2012, 12/2012, 2/2013

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    Posting Addict wishing4agirl's Avatar
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    We had to fight with ours to cover stuff. And it's even in their policy to cover the therapies until he turned 7. My DH's union finally got involved and then they started paying 100% and they even went back a bit to pay stuff. It really is quite sad. I know that a LOT of people try to do some of the ABA on their own. In our school district our Special Education PTSA actually has a support group once a month for parents with children on the spectrum. They even have some classes. I'm not sure but maybe you could contact your local school district to see if you have something like that. Or try to find another support group even if it's not through the district. I say that because they may know of local resources to help you.

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    Oh man. I'm sorry. That's horrible. I have to fight to get some of Tom's dental stuff covered (related to his teeth around the cleft). I didn't know that insurance could say no autism. That's messed up.
    Natalie & Dan - June 2, 2001
    Samma - Nov. 5, 2004
    Tommy - Oct. 19, 2007




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    Posting Addict wishing4agirl's Avatar
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    Quote Originally Posted by NatalieL View Post
    Oh man. I'm sorry. That's horrible. I have to fight to get some of Tom's dental stuff covered (related to his teeth around the cleft). I didn't know that insurance could say no autism. That's messed up.
    Yes insurance coverage in this country is messed up with the things they are allowed to deny. It's why I've always wanted insurance reform. It's one thing to say no to someone who wants to get breast implants just because (not part of reconstructive surgery that's completely different), but it's a whole other thing to deny a child or person treatment to help them live a somewhat "normal" life. Makes me angry.

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    Mega Poster isisgoddess_1's Avatar
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    Well I now found out that the All Children's hostipal occupational therapy office I was going to take Josh to just lost 3 OTs and has frozen the waitlist. The next closest office has a waitlist of 13 kids. We are looking at December being the earlist they can get him in. Ugh. I guess I am off to research sensory diets and sensory therapy to try and put something together myself for now.


    Joshua- 04/08/08
    Sofia- 06/10/09
    11/2012, 12/2012, 2/2013

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    good luck!! Do you have any friends who are OTs? Or who have kids who've been to OT? I know my friend's son had paint brushes rubbed on his arm. I don't know what else they did though.
    Natalie & Dan - June 2, 2001
    Samma - Nov. 5, 2004
    Tommy - Oct. 19, 2007




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