No More PT
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  1. #1
    Posting Addict wishing4agirl's Avatar
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    Default No More PT

    Not for Eli anyway. Not necessarily because he doesn't need it. His muscles and tone are pretty good. He does have LOTS of stamina problems (the school notices this too) but she is seeing that as a cardiology issue and until they fix his heart again there is nothing she can do. She does think he has lots of balance issues because of his feet. But she thinks if we do better supports for his feet he will do much better. She is doing the paperwork and helping us get get them. She said since we already did "off the shelf" type inserts that the ones she's recommending should be approved. I actually agree with her recommendations. Now the time we spent in PT will be done doing speech instead.

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    That's great news! You can do your own PT type stuff at home anyway. I'm sure you already have a lot of ideas from watching his therapy sessions. I've found the park to be a perfect PT arena. In fact, we went several times a week when Alana was little and struggling with her gross motor skills. And my stepdad made her a balance beam that she could practice on and that was tons of fun for her. Keep us posted on his progress!

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    Posting Addict wishing4agirl's Avatar
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    Yeah I've seen enough through both Dakota and Eli to know what I'm doing. Plus just letting kids play sometimes is all they need. However in Eli's case it's a huge stamina issue. They actually listed it on his IEP for next year as one of the reasons they don't want him to move on. And now the PT is saying she can't go further with therapy because of his stamina. I figure we will see (regardless of what the drs say) him go down hill further and further and not be able to keep up the closer and closer it comes time for them to go back in. Once he has had another repair I will just encourage lots of play. Plus Dakota does a good job with attempting to force Eli's stamina anyway. So not something I'll need to worry about really. It's just hard in the meantime. I can't wait to get the new inserts to see how it helps his balance.

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    I wouldn't let them stop PT simply because he has low stamina (unless the cardiologist recommends it as well). I could see them doing shorter sessions, but not stopping it completely if he would still benefit from it. Maybe 2-15 minute sessions a week would be more effective than 1-30 minute session for example.

  5. #5
    Posting Addict wishing4agirl's Avatar
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    I'm actually ok with them stopping it because that is what the cardiologist would recommend. His heart is not in a place to go back in and fix yet and it's activity that starts most things. So they reduce activity limits. So you end up not being able to work on stamina at all and that's what needs worked on. If he truly needs it later I can always go back. Luckily Eli is good at regulating himself too or he'd have even more problems than he already has.

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