Our Miracles
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Thread: Our Miracles

  1. #1
    Posting Addict SparkleMomma's Avatar
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    Default Our Miracles



    MICHEAL AIDAN {MIKEY}
    Born December 19th 2003
    ~*~Missing 6.5 Fingers {Congenital Bilateral Transverse Amputation}, Brown's Syndrome, Amniotic Banding & liver calcifications, Recurring Epigastric Hernias, Symbrachydactyly, Hearing Impairment, Hypospadia with Chordee~*~
    Diane & Justin{SparkleMomma}'s Miracle!

    JAIME ALEXANDER
    Born June 22nd 2004
    ~*~Congenital heart defects including severe coarctation of the aorta, hypoplastic aortic arch, dysplastic aortic & mitral valves with mild regugutation, mild aortic stenosis, tricuspid valve regurgitation, multiple food allergies & respiratory issues~*~
    Kerry {connorsmum}'s Miracle!

    JACOB ROBERT CARLTON
    Born April 18th 2003
    ~*~Mitochondrial Myophaty, gerd, Cistrna Magna, Asthma, Ebstien's Anmoaly (heart condition), MVP, ASD~*~
    Andrea {anns_angels}'s Miracle!

    DYLAN MICHAEL
    Born February 7th, 2001
    ~*~Moderate Autistic Disorder - aka Autism (High Functioning), Moderate Verbal Apraxia, Mild Oral Apraxia, Mild Sensory Processing Disorder, Possible Hyperlexia, Temporal Lobe Epilepsy, Asthma, Eczema~*~
    Mish {MishNKids}'s Miracle!

    PAIGE ELIZABETH
    Born December 26th, 1998
    ~*~Downs Syndrome, Has Had Deudonal Atresia, Has Had VSD~*~
    Tara {Tara Dawn}'s Miracle!

    Keiran Hope Little
    Born to heaven January 26, 2006
    ~*~Trisomy 13~*~
    Jamie (jamielittle) and Trey (treylittle)'s Miracle!
    Visit Keiran

    Madeline Emiley Klingbeil
    Born January 18, 2006
    Passed January 20, 2006
    ~*~Diaphragmatic Hernia, Coarctation of Aorta, Ventricular Septal Defect. ~*~
    Kim {ldkbaby00}'s Miracle!

    Kassandra Karen Hedlund
    Born December 24, 2005
    Passed December 29, 2005
    ~*~Severe Ebstein's Anomaly, Cystic Hygroma, Hyperextended Left Leg, Severe IUGR ~*~
    Katie {katycat99}'s Miracle!
    Visit Kassandra

    Emily Blake
    Born May 16, 2006
    ~*~Tetrology of Fallot & Pulmonary Atresia~*~
    Erin & Stephen {kerina313}'s Miracle!
    Visit Emily or her Journal

    JONATHAN
    Born May 19th 2006
    ~*~Pulmonary Sequestration~*~
    {angwalts}'s Miracle!

    ALEXANDER BRAYDEN
    Born March 6th 2005
    ~*~Mild Questionable Cerebral Palsy, Failure to Thrive, Macrocephaly, Hydrocephaus~*~
    {Gillian_and_Bean}'s Miracle!

    CAYMAN SINJIN
    Born July 22nd 2006
    Passed August 1st 2006
    ~*~Coarctation of Aorta & Ventricular Septal Defect~*~
    Visit Cayman
    {Frosty's Girl's} Miracle!

    Dakota
    Born Feburary 15, 2004
    ~*~ Neurofibromatosis, Speech Delays, Developmental Delays ~*~
    Stacey {Mommy2kodantj}

    Tristin
    Born May 6, 2005
    ~*~ Neurofibromatosis, Developmental Delays~*~
    Stacey {Mommy2kodantj}

    Michael John
    Born March 5, 1995
    ~*~Downs Syndrome~*~
    Annie {annieq}'s Miracle!

    Joseph Milton
    Born to Heaven Janurary 8, 2007
    ~*~Noonan Syndrome(?), Cystic Hygroma, Club Feet, and Heart failure ~*~
    Janel {CamelNoodle's} Miracle!

    KAYLEIGH ELLIS
    Born September 1, 2000
    ~*~Sclerelcornea of the right eye, Coloboma of the left eye~*~
    jennifer & Donny {jene1973}'s Miracle!

    NATALIE ELIORA
    Born 1997 & Adopted in 1997
    ~*~Celiac Disease, Asperger's Syndrome, Asthma, Eczema, Stereotypic Movement Disorder, IS-GID, Ataxia, Auditory Processing Learning Disability, ADHD, Sleep Disorder, Multiple/Severe Allergies, Prenatal Alcohol & Drug Exposure ~*~
    Meira's Miracle!

    MARTIN BRUNO
    Born July 24, 2006
    ~*~Atresic Ears, Epilepsy, Scoliosis, Deaf, Multiple Joint Anomalies, GERD, Torticolis~*~
    {snangel}'s Miracle!


    SKYLER DYLAN
    Born April 22, 1999
    ~*~artificial metal mitral valve, constricted aortic arch, Deafness in left ear, loss of 20% upper hearing range in right ~*~
    {sarahsunshine}'s Miracle!

    JULIA ROSE
    Born June 12, 2007
    ~*~ fetal hydrops & Down Syndrome ~*~
    Rose's {r4444444} Miracle




  2. #2
    ~JBJS~
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    Updated 4-29-07
    please let us know any updates.

  3. #3
    anns_angels
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    Can u please add logan

    Logan Andrew Stewart
    born: 5/14/07 at 5:04 p.m. (i think LOL)
    dx'ed with possiable- mitochondrial myophaty, preemie and heart murmmer(spelling)
    still to young to know everything..

  4. #4
    ~JBJS~
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    We will add him as soon as we get our Mod powers back......with the changeover we cant edit right now.

  5. #5
    Supporter snangel's Avatar
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    Can you add Martin's DX (FINALLY) of Goldenhar Syndrome, and also his ASD, and global developmental dx.
    Last edited by snangel; 06-20-2009 at 05:50 PM.
    Momma to Caleb, 9yrs, Zechariah, 6yrs
    Baby Martin 4yrs, born perfect with Goldenhar Syndrome and partial chrome deletion
    Just because they're boys doesn't mean they have less rights to genital integrity.

  6. #6
    ~JBJS~
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    Quote Originally Posted by snangel View Post
    Can you add Martin's DX (FINALLY) of Goldenhar Syndrome
    I'll get it up there as soon as we get mod powers back.

  7. #7
    anns_angels
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    Jacob was dx'ed with senceroy disorder yesturday.. so can u please add that to his name.. thanks

  8. #8
    Posting Addict mommytime's Avatar
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    wow I dont even know what to put for Mataiah an Sacarii's diagnosis... can we put something to the affect, just plain ol bad luck..lol

    lets see

    Mataiah 10-24-02, micro preemie, inner uterine growth ******ation (I didnt know R.E.T.ARDation was a bad word, thats what the dr's told me), arthro gryposis, structural damage in mouth and trachia, BPD, brain damage from lack of oxygen in uttero (if you can pull something better out of my introduction then great)

    Sacarii 9-29-07 micropreemie, grade 4 IVH, Hydrocephalus, an i dont know what the technical name for missing half of his brain on the left side, cerebral palsy, epilepsy, BPD
    ~Dusti~

    "When you judge another, you do not define them, you define yourself."
    -- Wayne Dyer (Psychotherapist, Author and Speaker)


    Learn from the mistakes of others. You can't live long enough to make them all yourself.
    --Eleanor Roosevelt

  9. #9
    Prolific Poster jereed's Avatar
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    could you add Hayden to this please?

    Hayden Christopher
    born October 17, 2007
    Tracheoesophageal fistula (T.E.Fistula), Esophageal Atresia, bronchomalcia, VATER Syndrome, single umbilical artery, right simian crease, functional heart murmur, chylothorax, GERD, hypertension, hyperbilirubinemia, anemia, and prematurity.
    Last edited by jereed; 03-25-2008 at 12:28 AM.
    Jessica ~ mommy to Hayden 10/17/07 and Camden 8/03/09

    Lilypie Third Birthday tickers
    Lilypie

  10. #10
    ~JBJS~
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    as soon as we can edit and get mod powers back we will add everyone and get everything fixed Soon i promise!!!!

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