Our Miracles

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SparkleMomma's picture
Joined: 04/24/02
Posts: 648
Our Miracles

Born December 19th 2003
~*~Missing 6.5 Fingers {Congenital Bilateral Transverse Amputation}, Brown's Syndrome, Amniotic Banding & liver calcifications, Recurring Epigastric Hernias, Symbrachydactyly, Hearing Impairment, Hypospadia with Chordee~*~
Diane & Justin{SparkleMomma}'s Miracle!

Born June 22nd 2004
~*~Congenital heart defects including severe coarctation of the aorta, hypoplastic aortic arch, dysplastic aortic & mitral valves with mild regugutation, mild aortic stenosis, tricuspid valve regurgitation, multiple food allergies & respiratory issues~*~
Kerry {connorsmum}'s Miracle!

Born April 18th 2003
~*~Mitochondrial Myophaty, gerd, Cistrna Magna, Asthma, Ebstien's Anmoaly (heart condition), MVP, ASD~*~
Andrea {anns_angels}'s Miracle!

Born February 7th, 2001
~*~Moderate Autistic Disorder - aka Autism (High Functioning), Moderate Verbal Apraxia, Mild Oral Apraxia, Mild Sensory Processing Disorder, Possible Hyperlexia, Temporal Lobe Epilepsy, Asthma, Eczema~*~
Mish {MishNKids}'s Miracle!

Born December 26th, 1998
~*~Downs Syndrome, Has Had Deudonal Atresia, Has Had VSD~*~
Tara {Tara Dawn}'s Miracle!

Keiran Hope Little
Born to heaven January 26, 2006
~*~Trisomy 13~*~
Jamie (jamielittle) and Trey (treylittle)'s Miracle!
Visit Keiran

Madeline Emiley Klingbeil
Born January 18, 2006
Passed January 20, 2006
~*~Diaphragmatic Hernia, Coarctation of Aorta, Ventricular Septal Defect. ~*~
Kim {ldkbaby00}'s Miracle!

Kassandra Karen Hedlund
Born December 24, 2005
Passed December 29, 2005
~*~Severe Ebstein's Anomaly, Cystic Hygroma, Hyperextended Left Leg, Severe IUGR ~*~
Katie {katycat99}'s Miracle!
Visit Kassandra

Emily Blake
Born May 16, 2006
~*~Tetrology of Fallot & Pulmonary Atresia~*~
Erin & Stephen {kerina313}'s Miracle!
Visit Emily or her Journal

Born May 19th 2006
~*~Pulmonary Sequestration~*~
{angwalts}'s Miracle!

Born March 6th 2005
~*~Mild Questionable Cerebral Palsy, Failure to Thrive, Macrocephaly, Hydrocephaus~*~
{Gillian_and_Bean}'s Miracle!

Born July 22nd 2006
Passed August 1st 2006
~*~Coarctation of Aorta & Ventricular Septal Defect~*~
Visit Cayman
{Frosty's Girl's} Miracle!

Born Feburary 15, 2004
~*~ Neurofibromatosis, Speech Delays, Developmental Delays ~*~
Stacey {Mommy2kodantj}

Born May 6, 2005
~*~ Neurofibromatosis, Developmental Delays~*~
Stacey {Mommy2kodantj}

Michael John
Born March 5, 1995
~*~Downs Syndrome~*~
Annie {annieq}'s Miracle!

Joseph Milton
Born to Heaven Janurary 8, 2007
~*~Noonan Syndrome(?), Cystic Hygroma, Club Feet, and Heart failure ~*~
Janel {CamelNoodle's} Miracle!

Born September 1, 2000
~*~Sclerelcornea of the right eye, Coloboma of the left eye~*~
jennifer & Donny {jene1973}'s Miracle!

Born 1997 & Adopted in 1997
~*~Celiac Disease, Asperger's Syndrome, Asthma, Eczema, Stereotypic Movement Disorder, IS-GID, Ataxia, Auditory Processing Learning Disability, ADHD, Sleep Disorder, Multiple/Severe Allergies, Prenatal Alcohol & Drug Exposure ~*~
Meira's Miracle!

Born July 24, 2006
~*~Atresic Ears, Epilepsy, Scoliosis, Deaf, Multiple Joint Anomalies, GERD, Torticolis~*~
{snangel}'s Miracle!

Born April 22, 1999
~*~artificial metal mitral valve, constricted aortic arch, Deafness in left ear, loss of 20% upper hearing range in right ~*~
{sarahsunshine}'s Miracle!

Born June 12, 2007
~*~ fetal hydrops & Down Syndrome ~*~
Rose's {r4444444} Miracle

Joined: 03/16/15
Posts: 53852

Updated 4-29-07
please let us know any updates.

Joined: 03/16/15
Posts: 53852

Can u please add logan

Logan Andrew Stewart
born: 5/14/07 at 5:04 p.m. (i think LOL)
dx'ed with possiable- mitochondrial myophaty, preemie and heart murmmer(spelling)
still to young to know everything..

Joined: 03/16/15
Posts: 53852

We will add him as soon as we get our Mod powers back......with the changeover we cant edit right now.

snangel's picture
Joined: 10/27/06
Posts: 6

Can you add Martin's DX (FINALLY) of Goldenhar Syndrome, and also his ASD, and global developmental dx.

Joined: 03/16/15
Posts: 53852

"snangel" wrote:

Can you add Martin's DX (FINALLY) of Goldenhar Syndrome

I'll get it up there as soon as we get mod powers back. Smile

Joined: 03/16/15
Posts: 53852

Jacob was dx'ed with senceroy disorder yesturday.. so can u please add that to his name.. thanks Smile

mommytime's picture
Joined: 08/04/06
Posts: 11

wow I dont even know what to put for Mataiah an Sacarii's diagnosis... can we put something to the affect, just plain ol bad luck..lol

lets see

Mataiah 10-24-02, micro preemie, inner uterine growth ******ation (I didnt know R.E.T.ARDation was a bad word, thats what the dr's told me), arthro gryposis, structural damage in mouth and trachia, BPD, brain damage from lack of oxygen in uttero (if you can pull something better out of my introduction then great)

Sacarii 9-29-07 micropreemie, grade 4 IVH, Hydrocephalus, an i dont know what the technical name for missing half of his brain on the left side, cerebral palsy, epilepsy, BPD

jereed's picture
Joined: 06/01/07
Posts: 9

could you add Hayden to this please?

Hayden Christopher
born October 17, 2007
Tracheoesophageal fistula (T.E.Fistula), Esophageal Atresia, bronchomalcia, VATER Syndrome, single umbilical artery, right simian crease, functional heart murmur, chylothorax, GERD, hypertension, hyperbilirubinemia, anemia, and prematurity.

Joined: 03/16/15
Posts: 53852

as soon as we can edit and get mod powers back we will add everyone and get everything fixed Smile Soon i promise!!!!

Joined: 03/16/15
Posts: 53852

Whenever mod powers are restored, could you please add my miracle too? Thanks!

Noah Patrick
Born 05/24/03
Dx: Right Hemiparesis/Hemiplegic Cerebral Palsy, Neonatal Stroke in the Left Basal Ganglia
Mattie and Andrew's miracle

Joined: 04/22/07
Posts: 1

When you get a chance can you add

Alex Michael
DOB: 02/18/2002
DX: Cleft Lip/ Palate

Joined: 05/05/04
Posts: 435

Thomas Anthony
Unilateral Cleft Lip

Joined: 03/16/15
Posts: 53852

can u please add 2 things to logan's name....

hydrocephalus and plumanry(spelling) stanosis(spelling)

plumanry stanosis- deals with the heart.. it's the artery that hook's the lungs to the heart and it has a narrowing in it....

Joined: 03/16/15
Posts: 53852

"anns_angels" wrote:

can u please add 2 things to logan's name....

hydrocephalus and plumanry(spelling) stanosis(spelling)

plumanry stanosis- deals with the heart.. it's the artery that hook's the lungs to the heart and it has a narrowing in it....

pulmonary stenosis Wink

luvmynenes's picture
Joined: 04/19/07
Posts: 4

Kristen & Rafael's Miracle Baby Smile

Greyson Noel
November 30th 2007
Dx: Coarctation of the Aorta

Joined: 03/16/15
Posts: 53852

logan dosent have pulmonary stenosis... the dr said what he had was normal for baby's to have when born.. so is heart is good..

logan dose have an inacent heart murmer(spelling)..

alexsbabymomma's picture
Joined: 08/05/07
Posts: 1084

Noah Yusuf
born April 4 2008
Downs Syndrome, VSD

lovelymomma's picture
Joined: 11/04/05
Posts: 88


jen_3200's picture
Joined: 02/08/05
Posts: 7

Could you please also add:

Samuel Owen
Born 11/10/2007
Large ventricular septal defect, small atrial septal defect, and moderate pulmonary stenosis
Jenny's miracle

betsy0040's picture
Joined: 03/28/08
Posts: 121

Please add
Joshua James
Born 11/23/2008
Mild Myotonic Dystrophy, Sensory Issues, Global Developmental Delays

jgriffith's picture
Joined: 08/20/10
Posts: 420

Helen Grace
Born 05/24/11
Multiple Hemangiomas, PELVIS Syndrome, Tethered Spinal Cord with Lipoma, Exstrophic Bladder
Rhabdomyosarcoma resulting in radical cystectomey (complete removal of bladder and urethra)