The neurologist said there's no way to know if he will ever get another one and he could just get one a year or so. He really is very nice and thorough and made me feel a lot better. I know it is scary and I do hope he never has another episode, whatever it was, but knowing that it's not likely serious and we don't have to go to the ER as long as his breathing and pulse are fine (they were) makes me feel even better. It is quite possible that's what it was since with his disorder he is at risk for them. The doctors at the hospital were very reassuring as well, didn't think it was anything more serious. I know things can always be worse, I know a lot of you ladies have to deal with more health issues with your kiddos so I know I am lucky that Joshua is so healthy. 75% of the kids with his disorder have recurring infections, when we first met with the neurologist last year right after Joshua's diagnosis he said that since Joshua has been so healthy it's likely he will stay that way, so we're already beating the odds.
I hope it was just the fluid and he's feeling better by now. That must've freaked you out to no end. Big hugs, babe.
Amanda ~ DH James ~ DSs Patrick + Daniel
Accept. Understand. Tell a friend. Include. Support. Matter.
That is awesome you have such a nice neuro. Glad he gave you advice on what to do if something happens again. Videotaping would be awesome. And glad you don't have to rush off to the ER if he's breathing and pulse are okay. Praying he never has another one, because even though there is no damage I bet it's still scary to watch your baby go through it.
I've been following this and thinking good thoughts for Joshua. And I'm so glad you got such good news from the neuro! Yay! I'm so sorry you and Joshua had such a scare though. Give your guy a hug for me...such a trooper!!!
DH married 6/24/06
DS born 4/29/08
Twin DD's born 5/10/10 at 35 weeks