Please pray for Joshua

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Joined: 11/28/06
Posts: 848
Please pray for Joshua

Just wanted to update everyone that Elizabeth's (betsy0040) son Joshua is in the hospital having had a possible seizure this morning. Please keep him (and the entire family) in your thoughts & prayers.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Thanks for posting for her. Prayers and (((Hugs))) going out for them.

betsy0040's picture
Joined: 03/28/08
Posts: 121

Thank you for posting this Tanya. Joshua was having trouble holding his head up this morning, was wobbly, I put him down to walk and he couldn't do it. His balance was completely off and he was angry. It lasted probably about an hour and then he started to get better. We called our pedi's nurse line and she told us to go the children's emergency room. We went and got a room in the emergency department and he started doing a lot better. By lunch time he was walking and had complete motor control back. He has been great since then, aside from not being happy being in the hospital and having a needle stuck in his arm. They did bloodwork, urinalysis, and a ct scan. All of it came back normal. We went to a farm with a petting zoo and he rode a horse last night, so we were a little concerned something came from that but they weren't able to find anything. They said if he got bit by a tick then it would have come up in the bloodwork and it didn't. We are going to see neurology tomorrow, earlier they were thinking of a MRI, EEG & spinal tap, now that he has been fine the rest of the day they aren't thinking of doing any of that tomorrow as long as nothing changes. So if all goes well he will be going home tomorrow and if needed we can do those tests outpatient. Thanks again for posting.

betsy0040's picture
Joined: 03/28/08
Posts: 121

We are home! The doctors conferred with the neurologist who said that there was no point in doing any other tests since he is doing well. We have to follow up with the neurologist and pediatrician. They said if it happens again to video tape it. We should have a video of him normally (we already do) as well so they can compare. They said that all the serious problems he would not have bounced back so quickly so they are relieved that he did. They said it could have been as simple as a virus, they don't know for sure if he had a seizure but it is an excellent sign that he bounced back so quickly.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Glad he is doing better. How scary though. (((Hugs)))

Joined: 09/02/11
Posts: 13

I'm so glad that he's doing better! I can't think of anything more stressful than when our child is in the hospital. By the way, my name is Anne and I'm new to the board. I'll pray that Joshua continues to do well. I hope you're doing ok handling the stress.

Joined: 05/05/04
Posts: 435

I'm glad he bounced back so quickly! How scary!!! (((hugs))) Take care of yourself - the post-stress sort of relief can really be overwhelming while you sit there going through all of the what-ifs, even if you know they didn't happen.

rubber_da_glove's picture
Joined: 12/31/07
Posts: 1527

I saw on FB just just wanted to give you some hugs xx

Glad he's better now

betsy0040's picture
Joined: 03/28/08
Posts: 121

Thanks everyone. We've got an appt to see his pedi on Thursday and I left a message to make an appt to see the neurologist. He is still a little unsteady on his feet but in every other way he is completely back to normal.

betsy0040's picture
Joined: 03/28/08
Posts: 121

Did I mention that Sunday at the hospital I dropped Joshua's iPad on my foot? Yeah then I spent the rest of the day hobbling around and I must have pulled a muscle in my right calf as it's been hurting all day. DH stayed at the hospital with Joshua overnight since I told him with my foot the way it was if I needed to get up quickly I might not be able to, wouldn't want anything else to happen and he was in a bed rather than a crib there so we had the sides up but still anything can happen. He did bump his head sometime (I don't remember it happening when I was there) probably on one of the rails so now he has a nice pink mark right between his eyes.

kerina313's picture
Joined: 09/10/05
Posts: 60

I'm glad he is better. I hope it's just the virus like they thought.

I hope your foot/leg is better too!

betsy0040's picture
Joined: 03/28/08
Posts: 121

Thanks, it's better. We go see his pediatrician this afternoon and the neurologist tomorrow morning.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

"betsy0040" wrote:

Thanks, it's better. We go see his pediatrician this afternoon and the neurologist tomorrow morning.

KUP

betsy0040's picture
Joined: 03/28/08
Posts: 121

The pediatrician was thrilled that he is walking so well now, she hasn't seen him for a few months and she said he looked fine. He does have a little clear fluid in one ear and that could throw him off balance a little so we are to give him allergy meds for a few days to see if that helps.

Joined: 11/28/06
Posts: 848

I was wondering if it could be ear or sinus issues. I have a yucky cold and have fallen pretty hard the last 2 mornings I tried to get out of bed. Almost like I'm in a drunken stupor....strange. Anyway, glad the Pedi seems to think it is nothing major.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

That is actually great news. Well not that he has the fluid, but that is what could cause it because that on the grand scheme of things could overwhelmingly cause it. Still KUP on what the Neuro says though.

betsy0040's picture
Joined: 03/28/08
Posts: 121

Actually she didn't think that was what caused it. She said one ear had just a little fluid in it and the other was just red, no fluid. She said it could be what's got him a little off balance now but the way his body reacted Sunday morning was way off, maybe if he had a double ear infection although still I would have been suspicious because he has had them before and nothing like this has ever happened. So yeah we're seeing the neuro this morning at 11. Funny thing is they checked his ears at the hospital and the dr who did said nothing about any fluid in either ear.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

I'm sorry I meant it's what could be making him off balance. Eli use to get so bad that he couldn't walk, couldn't eat or drink, would throw up and would end up in the hospital from dehydration. That wasn't a fun couple of years. And I've learned not all drs are created equal when it comes to ears. My children's pedi can spot an ear infection or fluid a mile away, and 4 days before it happens. The other drs in the clinic there ears have to be ready to burst just about. It's just another one of many reasons why I only go to mine. And for fluid they don't do anything unless the fluid is infected so most of the time drs don't even mention it.

betsy0040's picture
Joined: 03/28/08
Posts: 121

The neurologist said it could have been a seizure, no way to know for sure just keep an eye on him. He said he wouldn't put him on medication even if it was one until he has another he could only have them one or two times a year and that doesn't warrant medication. He said we could do a MRI which would have to be done under sedation but that might or might not show anything. He told us to take some time to think about it and get back to him if we want to do it. He is super nice, I had forgotten that since it had been over a year since we saw him, he really took the time to talk to us and explain things to us. He said if it was a seizure then what we saw was the after period, not unusual for after a seizure in children. He might have had it in his sleep. 99.99% of the time seizures do not cause brain damage so even though it's scary it's not serious. If it does happen again we should video tape it if we can and check his breathing and pulse, if they are normal there's no reason to go to the ER just call his office or Joshua's pediatric office and let them know. His office can be very busy so we may not get a call back immediately that's why we would call the pediatrician.

Joined: 11/28/06
Posts: 848

Angela - I agree about the ears! Alana had her first ear infection a few months ago and it was awful! We were at the Pulmo's and she told him her ears were hurting. He looked and said they were fine - no fluid or redness. By the time we got to the pharmacy (about a 45 minute drive) she was screaming hysterically that they hurt. Took her to the Pedi's the next day and they were infected - red with fluid. Not sure why the Pulmo couldn't see that! For about a month (she had a hard time getting over the infection) her balance was WAY off. It was most noticeable in dance, but she struggled in every class. I think some people are extremely sensitive and others just aren't.

I'm hoping Joshua is one of those sensitive ones and that it wasn't a seizure. Even though they don't typically cause damage they sure are scary! I've had several students with seizure disorders and I never get used to seeing one, always upsets me.

betsy0040's picture
Joined: 03/28/08
Posts: 121

The neurologist said there's no way to know if he will ever get another one and he could just get one a year or so. He really is very nice and thorough and made me feel a lot better. I know it is scary and I do hope he never has another episode, whatever it was, but knowing that it's not likely serious and we don't have to go to the ER as long as his breathing and pulse are fine (they were) makes me feel even better. It is quite possible that's what it was since with his disorder he is at risk for them. The doctors at the hospital were very reassuring as well, didn't think it was anything more serious. I know things can always be worse, I know a lot of you ladies have to deal with more health issues with your kiddos so I know I am lucky that Joshua is so healthy. 75% of the kids with his disorder have recurring infections, when we first met with the neurologist last year right after Joshua's diagnosis he said that since Joshua has been so healthy it's likely he will stay that way, so we're already beating the odds.

Caiomhe's picture
Joined: 10/16/07
Posts: 185

I hope it was just the fluid and he's feeling better by now. That must've freaked you out to no end. Big hugs, babe.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

That is awesome you have such a nice neuro. Glad he gave you advice on what to do if something happens again. Videotaping would be awesome. And glad you don't have to rush off to the ER if he's breathing and pulse are okay. Praying he never has another one, because even though there is no damage I bet it's still scary to watch your baby go through it.

Joined: 02/22/10
Posts: 22

I've been following this and thinking good thoughts for Joshua. And I'm so glad you got such good news from the neuro! Yay! I'm so sorry you and Joshua had such a scare though. Give your guy a hug for me...such a trooper!!!