Pulmo Appointment

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Joined: 11/28/06
Posts: 848
Pulmo Appointment

The girls had their Pulmo check-up today and things went well. We saw a different doctor in the practice and I REALLY liked him. He took a lot of time explaining things and answering my questions.

I asked if Madi could be taken off her inhaler and he agreed that she could come off for a "trial period." He said the true test would be when she got a virus, so we'll see. I have high hopes that she'll be fine. I admit, it is strange to think she won't be on any medicine when she has taken medicine for over 1/2 her life! He wants to see her back in 4 months, and if all is well she'll be moved to yearly check-ups. I definitely didn't think this day would come so soon!

I spoke with him about Alana's GI and respiratory problems and how they seem to go hand in hand now. The diarrhea has gotten much worse and she frequently doesn't make it to the bathroom in time. She's worried about going back to school and I feel awful for her. The Dr. thinks she may have a minor case of reflux and some malabsorption issues so he wants us to go back to the GI. I really liked her GI doctor so I guess my next step is to call and make her an appointment (hopefully before school starts). Alana's meds stay the same for now and he wants to see her in 4 months after she's seen the GI.

So thankful for a good appointment!!

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Yay for a good appt. Crossing my fingers for a good trial period as well. I'm so sorry for Alana's GI problems. Dakota has that problem. And I don't send him to school until he has it under contro . (meaning he can control it not that it's better because for him that could be weeks and weeks on end). The school knows and they (meaning Dakota's school since Eli and Dakota go to completely different schools for now) know of all Eli's issues so they are VERY understanding. For Dakota i6 was a problem digesting fructose. Hopefully you find the culprit that is causing it.

Joined: 11/28/06
Posts: 848

Alana has a GI appointment for the morning of August 3rd. So glad I was able to get her in before school starts!

To show you how random these "episodes" are.....she was perfectly fine at the appointment this morning and at dance class this afternoon. Shortly after we get home she starts complaining she is hot and takes all her clothes off. I take her temp and she has a slight fever. About an hour later she is complaining of stomach cramps and the coughing begins. So far no diarrhea but that could come in the middle of the night as it often does. Or she could wake up tomorrow and be absolutely fine. There has to be SOMETHING going on with her and I just hope we can FINALLY figure out what it is. I really trust this GI doctor I'm just praying for no invasive tests.

How did you figure out exactly what was causing Dakota's digestion problems?

sarahsunshine's picture
Joined: 11/29/06
Posts: 1462

Glad to hear about the great appointment!

I hope the trial goes well. No meds is certainly a great progression.

It sounds like it's time to do a food diary... Not that much fun, but it will probably at least give some clues.

Joined: 11/28/06
Posts: 848

We've done food diaries and elimination diets in the past and never came up with anything. We did suspect that she was allergic to citrus and the allergy test confirmed that she was. Funny thing about allergies is that you don't always react immediately and each reaction can be different. Very frustrating!

I probably will keep a food diary starting when we come back from vacation until her appointment. I want the doctor to see how much she eats but still doesn't seem to gain weight. She's only gained 2 lbs. since she last saw this doctor and that was about a year and 1/2 ago. Thanks for the idea!

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

It was by fluke chance I came across a comparison of Celiac Disease and Fructose Malabsorption and their symptoms. They originally thought Dakota had Celiac Disease (because of his tests) so we did the diet but it didn't help. So I basically did what some allergists will do and that is took him off fructose. The symtoms went away. I reintroduced fructose the symptoms came back. Took way.......you know the drill. I did it like 5 times and the symptoms consistently went away when we eliminated it and came back when we reintroduced it. And it was the ONLY ingredient we took away. I also spoke with a lady in Australia and her GI tests came back EXACTLY like Dakota's and she had the testing for it and she was positive. The GI drs here were NO help so I did the elimination on my own. I don't know that he actually had Fructose Malabsorption, but he definitely has a problem with fructose. He still is at risk for diahrrea when a tummy bug comes around, but it's easier to get rid of now since he doesn't get the fructose.