Pulmo Appt.

9 posts / 0 new
Last post
Joined: 11/28/06
Posts: 848
Pulmo Appt.

Both girls saw the Pulmo today and Alana got a very good report. The only thing she tested positive for was mold so we're all very excited about that. She insisted that we have tomato slices with dinner tonight, lol. At this point we're going to put her back on the Nasonex because her ears continue to feel plugged and she has a few more reflux pills left. We're holding off on any other medicine at this time and taking the wait and see approach. The doctor wasn't thrilled about me keeping her off the inhaler and I promised to start it back up at the first signs of a flare up. She's just doing so well right now and I want to keep her off all that crap as long as possible.

Madi didn't get such a good report. Her PFTs showed inflammation and I was shocked to hear that. She hasn't shown any signs of a flare up and I was actually going to ask if we could try her off her inhaler again. He didn't change her medicine since she hasn't had any symptoms, just told me to keep a close eye on her and call if she has a flare up.

So.....overall a very good appointment and we don't have to go back until August!

Joined: 12/01/05
Posts: 1000

That's awesome! I'm glad the girls are doing so well, even if Madi's report wasn't so great. I'm so happy for Alana after all she's been through.

Joined: 05/05/04
Posts: 435

Hopefully Madi will follow in her sister's footsteps and start outgrowing things!!

Joined: 11/28/06
Posts: 848

I'm afraid the downward spiral has started again. Alana spent all evening in bed complaining of what sounds like hemorrhoids. This morning she is still in pain but at least she is out of bed and playing with her sister. I'm going out to buy some witch hazel today....any other suggestions?

gardenbug's picture
Joined: 03/12/07
Posts: 2025

I find our pharmacists have very good advice. Speak to yours. They often have print-out sheets too.

sarahsunshine's picture
Joined: 11/29/06
Posts: 1462

I have found flax seed to be very helpful over the past few weeks. It helps to increase fibre content. Could the tomatoes be contributing simply because Alana's digestive system is't used to them?

Joined: 11/28/06
Posts: 848

I ended up with some Tucks pads for her bottom and some Cortizone cream for the rash on her back and legs. The last flare up she had started with a rash too, but at the time I thought they were unrelated. Now I'm convinced the rash is a part of this mystery illness since it doesn't appear to be allergy related. And 2 days off the reflux meds and it came back full force - burping and spitting up uncontrollably. So needless to say she is back on the omeprazole and hopefully it will start helping soon.

On a brighter note, Madison is learning to use her inhaler without the spacer! I hadn't bothered to teach her before because I figured she'd be off of it soon enough, but with the possibility of an asthma attack looming I thought it'd be best if she could use the inhaler by itself (I don't always carry the spacer with us everywhere we go).

Joined: 12/01/05
Posts: 1000

Poor girl. I wonder if it could be a food sensitivity or an allergy to something she hasn't been tested for. Did she have any recent diet changes?

Joined: 11/28/06
Posts: 848

We've done several food journals and elimination diets and haven't been able to pinpoint any particular foods that she reacts to. She had a GI follow-up scheduled for this Friday but the office called and canceled saying that the doctor had an emergency of some sort. I'll have to call back today to re-schedule. She had a relatively good weekend, just tired easily and was a little on the whiny side. Her reflux is much more under control now and I think that contributes to her feeling a bit better.