So trying to be the rational person that I am (stop laughing) I am trying to think of other reasons that Eli would be getting short of breath. He does it when he is really active and when he cries. In fact when he cries he actually has to stop because he can't breath. Everyone notices it including his PT who has commented on this. He does almost nothing and is short of breath. But I don't want to jump to conclusions because he was short of breath before his last cardio appt and when I mentioned it he said although his heart has issues they shouldn't be causing shortness of breath yet. I know low iron can, but can anyone think of anything else.
Inflammation in his airway? Enlarged adenoids or tonsils? Madi had these sort of problems a few years ago and we literally had to do our best to keep her from crying for fear that she'd stop breathing again. When she cried that awful sounding stridor started; and if she played she'd have to lay down and rest every few minutes.
Does he have an ENT? If you don't think it is heart related I'd start at the ENT's office.