Madi had her sleep study on the 21st and I was told by the tech that the hospital would forward the results to the doctor in approximately 10 days. After 2 weeks I decided to give the doc a call and spoke with the nurse. She assured me that everything was within normal limits, no need to worry. I said, "That's great! Could you send me a copy of the report please?" She seemed very confused by my request and said, "But I told you everything was fine." I told her that I appreciated her relaying that information to me but I like to have a copy of reports for my self. She made a kinda big deal about it, told me she'd have to charge me, to which I said, "go for it."
Anyway, I got a copy of the report yesterday and I'm confused and frustrated. I'm no expert, but I can say her results don't look terrible. However, in conjunction with her symptoms (which are terrible) I think I should have been notified of the exact findings so the situation can be monitored.
Her sleep efficiency was 93% (good) but she does have mild prolongation of REM latency from sleep onset. She had 4 episodes of mixed apnea, 3 episodes of central apnea, and 3 episodes of hypopnea. Her lowest saturation was 90%. Her longest apneic event was 20.9 seconds. She had 37 arousals throughout the night. Her results were considered "borderline" and she was diagnosed with "mild sleep disordered breathing marked by a nature of mixed apnea and hypopnea." She also has mild snoring.
I'm just frustrated that the Pulmo didn't think this info was important enough to disclose, especially considering my concerns for her behavior. I plan on taking the report to our Pedi so she can advise us what our next course of action should be. At the very least I want another study done in the next 6 months-1 year. And, I don't plan on returning to the Pulmo because I feel he can't be trusted. I've let him know before that as a parent I have the right to know the full details about my children's reports, even if they aren't in the severe range (which is all he seems to care about). I like details and I deserve details. I was so mad that I could hardly sleep last night! lol