Sleep Study Complete!

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Joined: 11/28/06
Posts: 848
Sleep Study Complete!

Thank goodness Madi's sleep study is over! I got about 2 hours of choppy sleep on what felt like a sidewalk! lol Seriously, I don't know why the parents can't get a semi-comfy bed to crash in too.

Anyway, our respiratory therapist was great and Madi was her typical dramatic self. This clinic uses different adhesive which is MUCH easier to clean, so I'm grateful for that. She wasn't thrilled about the "hat" she had to wear but it really did work better. It also made more sense to put the O2 sensor on her finger and not her toe since she thrashes her legs around and rubs them on the bed (the last study the nurse kept having to come in and put it back on).

So since I stayed awake basically all night I got a full picture of how Madi really sleeps. She snores, thrashes, snores some more, has some funky breathing, whines, thrashes, cries out......and the pattern continues all night. There was a motion sensor nightlight with a timer...it was on more than it was off, lol.

When the RT came in this morning his first words were, "Man, she has a LOT of leg movements!" Yep. He said he wasn't sure if it would be diagnosed as PLMD but he said it was definitely abnormal. Apparently PLMD is actually extremely rare in children. He said he's only seen 2 cases of it in his 13 years at the sleep clinic. Not sure when we'll get the results but probably a week or two.

Just glad that's over with and I hope to get a good night's sleep tonight!

gardenbug's picture
Joined: 03/12/07
Posts: 2025

Sleep well Mama, and I hope progress is made for your beautiful drama queen!

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Somehow I thought I posted on this thread. I'm sorry. Well glad she slept like she usually does. Most of the time they don't. They sleep better which is irritating. What is PLMD?

Joined: 11/28/06
Posts: 848

PLMD = Periodic Limb Movement Disorder

And Madi doesn't have it.

You know when you answer the phone and the doctor is on the other end that something is wrong. Otherwise the nurse would call. The doctor let me know right away that Madi doesn't have PLMD but she does have obstructive sleep apnea. My heart sank. I totally wasn't expecting to hear that.

He thinks her adenoids may have come back and asked us to go back to the ENT to have that checked out. He wants her upper airway evaluated so he can determine if medication, surgery, or a CPap is needed. I'm still waiting on the official report to see just how bad it is.

Makes me feel a little differently about putting her to bed tonight.....

gardenbug's picture
Joined: 03/12/07
Posts: 2025

I look at it as a good thing. I like the fact that the doctor takes a personal approach to solving these mysteries! Seems he has considered many options. I hope results come soon!

Joined: 05/05/04
Posts: 435

OSA isn't that uncommon in children. We had a PTA presentation about it. It's good to find out - it's linked to all sorts of issues so once you get her sleeping better I'm sure that things will be better!

Joined: 11/28/06
Posts: 848

OSA is fairly uncommon in kids that are not overweight and that have already had their tonsils and adenoids removed though. It is possible that the adenoids have grown back despite her being on a nasal spray. Her ENT appointment is only a few weeks away so we'll see what he says. It is probably just time for a medication adjustment considering Madi has been well for several years and only since last summer have I noticed a difference in her sleeping habits. She had severe OSA as a baby and perhaps this is something she'll have intermittently throughout life. Now that the shock has worn off I'm feeling better about the situation today.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Well good and blah. I too have heard how common OSA in children is and none of the kids I know or have heard of having it are overweight because in kids OSA is caused by different things than adults. That's what I was told anyway (Dakota had a mild mild mild case when he was younger but we declined the medicine and he's fine now and my kids are not overweight in the least). Glad they found it though so you can deal with it, but yet another thing. (((Hugs)))

Joined: 11/28/06
Posts: 848

Obesity in children absolutely can cause OSA, just as in adults. More and more American children are overweight and obesity can have detrimental effects to the health of a child.
Vicious cycle of sleep apnea and obesity in kids – The Chart - CNN.com Blogs

I will say though, that the most common cause of OSA in children is enlarged tonsils and adenoids. Other, more rare causes would be cranial/facial abnormalities or airway abnormalities. Madi was born with laryngomalacia so that probably needs to be evaluated again. I did receive a copy of her report yesterday and she was noted to have "moderate OSA with corresponding desats and arousals."

Joined: 11/28/06
Posts: 848

Just a quick update: Madi's adenoids have indeed grown back and are quite large. She is scheduled to have them revised the 25th of this month. If they grow back again I think I deserve a refund! lol

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Frustrating. Yes a refund should be given if they grow back. LOL

Joined: 05/05/04
Posts: 435

I didn't realize they grew back. That's crazy. I hope that this time it sticks.

Joined: 11/28/06
Posts: 848

That is her super power - regrowing body parts! lol

The doctor said it is more common for them to grow back if they have them removed before they turn 4. Now that she's almost 6 hopefully they won't come back!

Hubby will be taking her for the surgery. I'm crushed that I won't be there but I know she'll be fine. I've just missed too much work with all of Alana's appointments lately. Ready for summer break.....