Surgery date pushed back *UPDATE*
Claire's surgery was yesterday and went very well. No problems at all except she flat out refused to put the hospital pajamas on. DH and I almost had to hold her down to get her changed. Those are the times when you realize how strong your kids really are!
Just before she was discharged her urologist came in to talk to us and he said everything went great. I asked if he could see any deterioration or small holes that had opened up in the implants she had done in the first surgery last year, and he said that those implants had completely disintegrated.:eek: Her body attacked them, broke them down and absorbed them. Hence the reason why she continued getting UTIs after the first surgery - literally within 4 months they started up again. I asked if these new implants could do the same thing and he said that yes, since it happened once she's at a higher risk of having the new implants disintegrate too. Crap. Double crap. We're hoping the new ones will hold for their 'life expectancy' which is about 10 years, but if they too dissolve then I don't know what the next step is. Like, how many sting procedures can she have without having permanent kidney damage when the implants disintegrate? She might have to eventually have an open surgery where they cut her ureters and reimplant them deeper into the bladder. IDK. Hopefully it won't get that far and that these new implants will hold!
Claire was scheduled for a repeat bilateral sting this coming Friday, but it's been pushed to Nov 2. No big deal except that I would have preferred her to have the operation on Friday to give her the weekend to recoup. She had like zero issues after the last one (except for the anaesthesia) and I'm not expecting her to have problems after this one. I guess the one good thing is that she will be totally fine for Halloween instead of maybe being a big sore.
About Ben, his allergy testing was completely normal. The whole panel was negative. So, his allergist thinks that his non-allergic rhinitis and asthma and every other thing he's dealt with is all due to the GERD. He had an upper GI a couple weeks ago and sure enough it showed the reflux. The acid has been coming up into his mouth and nose for a long time and that's probably why his adenoids were so bad and his nose never stopped running. It also explains the ENT actually seeing stomach acid in his throat when he scoped Ben to see the adenoids, and also why Ben had so many bad ear infections and throat infections. It also explains the asthma and chronic chest infections. I never would have connected acid reflux and asthma, but once the connection was made I just kept finding study after study.