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  1. #1
    Posting Addict gardenbug's Avatar
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    Default Today

    Skyler is in surgery now...for the next 5 hours or so.
    Leo (3 1/2) with Malcolm the cat

  2. #2
    Posting Addict CamelNoodle's Avatar
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    Thanks for keeping us updated. We'll be thinking about them.
    William 10/6/2004
    Visit his CaringBridge
    Joseph stillborn 01/08/2007
    Thomas 05/05/2008
    John 6/5/2010
    m/c 12/23/2012
    m/c 01/02/2014 twin angels

  3. #3
    Community Host sarahsunshine's Avatar
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    Thanks for posting, Gardenbug. I'm hooked up to hospital WiFi so will send updates when I can.
    Skyler Dylan 22 April 1999
    Reed Aslan 17 June 2007 ~ 8 September 2008
    Ivy Rayne 3 May 2009
    Leo Spencer 2 Sept 2010
    Forrest Reed 15 Aug 2012


  4. #4
    Community Host sarahsunshine's Avatar
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    Skyler was at his mother's house last night, so we met them at the hospital a few minutes after 6am. We were told that surgery time was changed from 8am to 7am, but it ended up being about 7:40am when he was put under. I gave him the box that Larry (mentu) sent that had a couple letters and a wonderful "cough buddy" bear in it. Skyler was very happy to get it. He was so excited to have something to distract himself with, gave it lots of practice hugs, and proceeded to wrestle with very roughly on the bed. The poor "cough buddy" got a hole in it and I spent the next couple hours trying to find a needle and thread to fix him up. He's fixed (don't know about the quality of the mending job), but hope he will last. I don't know that Skyler will be up to rough-housing with him for a while!

    Besides the few last-minute panics (when the cot was wheeled in and asked to get on, when they asked him to take the first oral medication to make him relax and go to sleep) he did great. I must say that I am very surprised by how well he has been coping. Lastly, he voiced that he much preferred being at dad's house (because the weather is warmer and it doesn't bother his breathing)!

    It also seems that he much prefers the way his dad and I gave him the heparin than the doctor friend that his mom had do it. He said that it hurt a LOT more where the doctor did it, and that the pain lasted a lot longer and it bruised...
    Skyler Dylan 22 April 1999
    Reed Aslan 17 June 2007 ~ 8 September 2008
    Ivy Rayne 3 May 2009
    Leo Spencer 2 Sept 2010
    Forrest Reed 15 Aug 2012


  5. #5
    Community Host sarahsunshine's Avatar
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    We just spoke to the surgeon (Dr. Ivan Rebeyka). Surgery is not yet finished. Skyler is being "warmed up" on the heart/lung machine.

    Dr. Rebeyka put in a 25mm On-X valve in the Mitral Valve location. He replaced the Aortic Valve with a 23mm On-X valve as well. He said he could have repaired the aortic valve, but that he felt that it would only hold between 1-10 years. Going for the option of "no future re-surgery", he put in an On-X.

    Lastly, and surprisingly, he found that Skyler's ascending Aorta was very thin and 5cm in diameter. He took it out and replaced it with a dacron graft.

    He is happy with the way things went. We wil have to watch out for the size of the Aorta in the future, though.
    Skyler Dylan 22 April 1999
    Reed Aslan 17 June 2007 ~ 8 September 2008
    Ivy Rayne 3 May 2009
    Leo Spencer 2 Sept 2010
    Forrest Reed 15 Aug 2012


  6. #6
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    Hope he has a speedy recovery! Please keep us updated, we'll be praying for him.

  7. #7
    Posting Addict wishing4agirl's Avatar
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    I'm so glad that is behind you all. It seems you have amazing drs. Thank you for the update. I have been thinking about you. I tried to wish you well last night, but my computer wasn't cooperating.

  8. #8
    Community Host sarahsunshine's Avatar
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    With a bunch of things going on, I haven't had a chance to update.

    Skyler made it to the PICU at around 3:30pm, making the whole surgery around 7 hours approximately. They are going to keep him sedated and unconscious for about 24h - until tomorrow afternoon.

    Throughout this afternoon and evening they have been dealing with various issues relating to bleeding and maintaining his blood pressure between 85 and 100 systolic. From 4:30-5:30 they decided to try to wean him from some of the drugs. It seems however that they either switched, or put him back on because he was waking up and moving around quite a bit. By 5:30 he seemed to have settled down a bit.

    Mom has been doing some "healing energy" work with him until 7-8pm and then went home to get some rest. Dad and I came home for some dinner and to help put the little ones to bed (some family friends took care of them for us today), and then dad went back to the hospital until about 1am. Tomorrow morning Mom is planning to be at the hospital at around 7am, and Dad will get in later in the morning. I will deal with the little ones and get in to be there for noonish. At least that's the plan.

    As the surgeon said, the 12-24hr period is the critical time.
    Skyler Dylan 22 April 1999
    Reed Aslan 17 June 2007 ~ 8 September 2008
    Ivy Rayne 3 May 2009
    Leo Spencer 2 Sept 2010
    Forrest Reed 15 Aug 2012


  9. #9
    Posting Addict fudd8963's Avatar
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    Thank you for the update. I will continue to keep you all in my thoughts and prayers.
    ~ Tara

    April 19, 09: 37 week Take Home Twins!!!!
    Addison Bree - 5lb 6oz
    Brooke Isabella - 5lb 12oz



    4,043oz of BM donated!


  10. #10
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    Thanks for updating us. I can't imagine going through all that on so little notice. I hope and pray tonight and tomorrow go well for him.

    Deb ................. DH Norm
    DS Caleb, 13 ...... DS Patrick, 12
    DS Isaiah, 8 ......... DS Thomas, 7

    DD Cherish, 6....... DD Emily, 7\18\13 ....... Ripple, 17
    William, 14 weeks, 4/11/12

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