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  1. #11
    Posting Addict gardenbug's Avatar
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    Skyler is doing quite well now. His color has improved. He's breathing on his own and talking, mostly coherently. He has a fine male nurse, named Archie. Perhaps tomorrow he'll have tubes removed and move out of intensive care and into another area. That's when his brother and sister can see him!

    He'll remember this for sure...but it won't all be bad. He's had this hanging over his head all his life. I believe he will feel so much better physically than ever - and I'm excited about that!

    Nana Marie
    Last edited by gardenbug; 11-29-2011 at 10:51 PM.
    Leo (3 1/2) with Malcolm the cat

  2. #12
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    I'm glad he's doing better! Wonderful news!!

  3. #13
    Community Host sarahsunshine's Avatar
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    Thanks again for the well wished! They are working!

    Skyler continue to steadily improve. He went through the "critical period" with flying colours and no issues other than his blood pressure is on the slightly elevated side. He has used up his allotted amount of a certain medication to decrease his blood pressure, so they were just going to wait it out.

    At 12:30ish they extubated him, and he has dealt with that swimmingly. He has been swimming out of his morphine induced stupor more and more frequently throughout the afternoon. At times he is perfetly aware of everything going on, telling us exactly where he is and what has been going on (I'm in the PICU. I'm starving Can I have more water?), and other times asking where he is and whether he's had his surgery yet. He has started coughing a little and has tried using his bear but he can't give it a firm enough hug yet. By the time we left to pick up the little ones he had been eating ice chips for several hours. When I told him that we were leaving he told me he loved me and wanted to give me a huge hug and kiss which was rather awkward with all the wires and tubes (not to mention the fact that his mom has been insisting that he's terrified of his dad and I for the past month and she was standing right there). I got a bunch of good photos for the memory book that I told him I would make for him, and he insisted on SMILING, and giving a thumbs up (with his glowing red thumb) for a lot of them!!! What a ham.

    Right now they expect that he will be out of the PICU tomorrow afternoon or evening, and into the children's cardiac ward where he will have a shared room (it's all they have) instead of being one bed among 5-6 in an open row. He will be allowed unlimited visitors at that point, and considering he's invited his entire school for a visit, that is likely important! He will also have a cot in his new room for an overnight visitor which will make things easier for everyone.

    The only difficult thing that we have had to deal with was that they have had to close down the PICU several times today to do various "procedures". When that happens they make everyone leave. Unfortunately that means that nobody could be with Skyler for a couple hours when he was first extubated and waking up. He didn't like that one bit.

    There was another set of parent whose 5month old twin son had just come out of OHS (the other twin was with them and fine) and they had been told that they could see him in 2 minutes when the PICU was closed and they were quite frantic believing that it was their son having difficulties. As it turned out it was not, and their son was doing spectacularly after a Yasui procedure.
    Skyler Dylan 22 April 1999
    Reed Aslan 17 June 2007 ~ 8 September 2008
    Ivy Rayne 3 May 2009
    Leo Spencer 2 Sept 2010
    Forrest Reed 15 Aug 2012


  4. #14
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    Wonderful news to wake up to this morning! Yay Skyler!!

  5. #15
    Community Host sarahsunshine's Avatar
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    We just got a phone call from the hospital (mom is there right now). They are "in the process of" pulling his drainage tubes, and moving him out of the PICU to the pediatric cardiac ward. We are packing up our stuff to head over right away.

    Skyler has also been eating a lot of ice chips and they are slowly getting him back to clear liquids and solids. Chicken soup sounds about right so we are going to bring some. If he eats it, fine. If he doesn't, I will!
    Skyler Dylan 22 April 1999
    Reed Aslan 17 June 2007 ~ 8 September 2008
    Ivy Rayne 3 May 2009
    Leo Spencer 2 Sept 2010
    Forrest Reed 15 Aug 2012


  6. #16
    Posting Addict cmljll's Avatar
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    How's he doing? Any updates?
    Connie
    Wife to Jesse (October '96)
    Mommy to Ethan (July '07) & Gabriel (December '09)

    Follow my journey to a healthier me! http://cmlhealth.blogspot.com/

    Parenting blog http://christian-ap-momma.blogspot.com/



  7. #17
    Posting Addict gardenbug's Avatar
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    I spoke to him on the phone last night! He can only say "HI!" really...throat is so sore and he's so thirsty. Still had a few tubes in him in case a pacemaker is needed, but that seems less & less likely with time. His sternum was re-shaped which may make his recovery a bit slower. He has slept well and has lots of attention from family and nurses. He may get to see his brother & sister soon because he is out of intensive care. Then...his whole school is invited! Good grief.....
    Leo (3 1/2) with Malcolm the cat

  8. #18
    Posting Addict jd6405's Avatar
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    Glad he is doing so well Sarah!!! I hope his recovery goes smoothly!
    Jess My Blog
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    RIP Reed Aslan

  9. #19
    Posting Addict gardenbug's Avatar
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    Report from Sarah - Thursday evening.

    He's been up a couple times, had his morphine taken out around 10am, eaten a little, drunk a bit, sprinted to find pizza, and slept a whole bunch. The nurses talked about sending him home tomorrow, but his parents are both hoping that he will be in for longer (Sunday).
    Leo (3 1/2) with Malcolm the cat

  10. #20
    Mega Poster rachelperry1983's Avatar
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    How's Skyler doing today, any updates?

    Makayla-11, Andrew-6, Jake-3
    January '09 Angel 10wks 4days/Partial Molar 6.24.08


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