Torticollis and Vision Problems (Lurkers Welcome)

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wishing4agirl's picture
Joined: 09/11/03
Posts: 917
Torticollis and Vision Problems (Lurkers Welcome)

Another issue Eli has had for a long time (but doctors ignored me) is that he tilts his head to the left. I counted once when my dad was here and he did it 50 in 2 minutes. Everyone that is around him notices he does it a LOT. It's hard to miss. Since Monday the tilt has been almost continuous and he has complained of pain and his range of motion diminished. You can also tell his muscle in his neck is developing different on each side of his neck. It's very obvious. I took him to the pediatrician today and she said she was diagnosing him with Torticollis (this is one of the things I wondered if it could be before but I didn't know enough about it). She is referring him for PT (again) and to the eye doctor. After doing a tiny bit of research I found that one of the big causes of kids turning their heads was eye problems. I was just wondering if anyone has had any experience with this at all. Everything I read about Torticollis is in regards to babies. Obviously Eli's not a baby at almost 7 years old. So I was hoping someone here had some input. Lurkers welcome.

sarahsunshine's picture
Joined: 11/29/06
Posts: 1462

I no nothing about it, but wondered if a chiropractor could help.

How is Eli doing since his surgery?

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

He is doing AWESOME since surgery! There were some issues that I was hoping it would help but didn't know fully. He still has concentration issues and memory issues (I'm sure those are because of the auditory processing disorder) but NOTHING like it was. He can do cartwheels and doesn't pass out. He uses his arm a LOT more.

I'm thinking a chiropractor is more what he needs more than PT actually. I want to get it figured out first if his eyes causing him to want to tilt his head. What I read was that some kids tilt their heads because of their eyes and once you deal with the eye problem they stop tilting. He still would have uneven muscles but there is a chiropractor close to my DH's work that deals with the muscles not just the bones. And for about $30 a time both of us could get adjusted. I just don't think I'm going to be able to afford it as much as he probably needs it and I don't think our insurance will cover it. I guess I'll need DH to look into it. Thanks for the suggestion.

sarahsunshine's picture
Joined: 11/29/06
Posts: 1462

Check out Chiro coverage. Ours is covered at 80% by both mine and DH's plans.

I read an article a while back about chiropractic treatment with lots of success. I don't remember where. Does he have any hearing issues? They can come up later and could accentuate things. Many kids have hearing issues that don't get recognized for a long time.

And it's so nice to finally hear some good news with Eli. I want to give you and him a great big hug!

Joined: 05/05/04
Posts: 435

I just tried to reply and it went away. Oh well. I think an eye doctor sounds like a good place to start. Good luck with everything! I'm glad it sounds like things are improving from surgery Smile

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

"sarahsunshine" wrote:

Does he have any hearing issues? They can come up later and could accentuate things. Many kids have hearing issues that don't get recognized for a long time.

He is followed by ENT because he has bilateral PE tubes (they've been in for almost 3 1/2 years now). The last hearing test he had was a few years ago though. He mainly just makes sure the tubes are still there, functioning and not infected. He got the tubes because his ears were full of fluid that would not go away on it's own and he would get nasty infections because of it. Maybe at his next ENT visit I'll ask for another hearing test "just to be sure".

sarahsunshine's picture
Joined: 11/29/06
Posts: 1462

The only reaso I ask is that Skyler's hearing issues are a result of antibiotics from infection in the hospital as a baby. If Eli ever had some hard core antibiotics the hearing is a place to look. I hope he's clear!

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Well he had hearing issues and it was from the fluid. When the fluid didn't go away they put in tubes and then rechecked and his hearing was normal. However, he's been through a lot since then too. It can't hurt to double check his hearing to make sure it's still good.

gardenbug's picture
Joined: 03/12/07
Posts: 2025

I'm just adding that my mother (someone much older than Eli) developed a tilting of her head due to one eye being stronger than the other. This would be when she was focusing hard on something, concentrating. As a stupid teen, it bothered me, but no one else really, and affected no one seriously. Nothing was done about it. Of course this was decades ago.
I think I'd look into it if Eli were my child, but I'd seriously check his hearing because it affects so many other things.

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

I had a friend who (he's older) knows a LOT about muscles, bones, etc. in the next and back look at Eli. He overwhelmingly agreed he needs to see a chiro. I also had him look at Eli's eyes. He noticed the same thing we do. His left eye is lower than his right. And if he's looking straight at you (and you can get him to sit still) his left eye drifts ever so slightly inward. Unfortunately the dr we are going to see is only in the office we are going to on Thursdays so our appt is not until May 2. Sad

gardenbug's picture
Joined: 03/12/07
Posts: 2025

May seems so far away! We too are waiting for an appointment at the end of May for DH....

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Yes it does. I hope it flies by.

Joined: 05/05/04
Posts: 435

I hope that you get some answers at that appointment but it's a long time to wait!

sarahsunshine's picture
Joined: 11/29/06
Posts: 1462

1 small step forward...

Did you check with a chiro?

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Not yet because if it's really his eyes, I'll go and then he'll be right back where he is. He definitely needs to go. I still need to have DH check with his insurance to see what they cover so I can know what we will have to pay OOP.