Just wanted to write an update on my girls. Alana has been having more frequent diarrhea and bowel incontinence over the last few months so I made an appointment for a second opinion at Nemour's Children's Hospital. The soonest I could get an appointment (with the doctor that specializes in IBD) was February 19th. That wasn't too bad because despite the issues she was having she was feeling great. That is until Thursday night and things have gone downhill since then. She was in our town's Christmas parade and when I picked her up from her float she looked awful (but was absolutely fine when I dropped her off). Friday night we had an episode in Outback that I'd like to forget, and she pretty much laid around moaning and crying about her stomach and head all weekend. This is the exact thing that happened last year around this time and I'm beginning to think it is related to the excitement of the holidays. I think the excitement and surprises this time of year cause her GI issues to flare up again and we currently don't have a diagnosis or treatment of any kind. So, I called the new doctor and he agrees she needs to be seen ASAP so he's fitting her in on Wednesday afternoon. Thank goodness. I pray that he is able to help her and that she feels well enough to go on her Epcot field trip this Friday!
Madi is doing much better! She finished her 20 days of antibiotics and about 7 days later started getting sick again. I started her back on the Nasonex and within 3-4 days she was fine. She's sleeping good at night, her behavior is better, and she doesn't seem to have any nasal/respiratory symptoms at all. So for now, Nasonex is our miracle drug! lol She has an appointment with the new Pulmo on January 3rd, but if things continue to go so well I don't foresee any more testing or medication changes for her.