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  1. #1
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    Well, we saw the dermatologist yesterday and unfortunately a new wart had popped up on her thumb. She just can't seem to get rid of the stupid things! So that one got treated and we go back in 2 weeks to see if there are any new ones (and if so get those treated). She checked her body for any more abnormal looking moles but said everything looked fine. She was a little concerned about the lymph nodes behind her ear and thought it could be related to the rash so she sent us to the Pedi. She suggested using Aveeno soap and lotion and wait and see what happens with the rash.

    The Pedi noted the size of the lymph nodes behind her ear and also said that the ones under her jaw were enlarged too. She said they weren't big enough to be concerned about yet but to keep an eye on them and call back if they got any bigger. So $60 later.....lol.....but all is well with her and we're grateful.

    Madi has a cold but is handling it really well. In fact, she's doing so well that I'm going to ask the Pulmo at her next visit if she can stop using the inhaler. Then she'll be medicine free for the first time in over 2 years! Yay! Alana is also doing well and hasn't coughed since we eliminated the foods she's allergic to.

    I'm really starting to feel like life is getting back to normal, the way it should be, and my kids can just be happy healthy kids again!

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    That's an awesome update. Hope there are no more warts that pop up.

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    Never underestimate the power of asthma.....

    Alana is coughing again and very short of breath. She finally caught the virus that's been making its rounds in our house and it has hit her pretty bad. Ugh!

    But on a positive note Madi's 4th Birthday Party is tomorrow =)

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    Yay for Madi's party! Stupid asthma!

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    Madi's party turned out great! We invited close family and friends to our house for cupcakes and punch. I was a little upset that Publix did an awful job on the cupcakes but Madi could have cared less. We played Just Dance Kids on the Wii and that was hilarious. I can't believe my baby is 4 now!

    Alana is still coughing pretty bad and coughing stuff up in the mornings. She really doesn't let it slow her down though. She's a pretty tough kid.

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    Glad it went well. Too bad about the cupcakes, but glad she didn't mind.

    As for the asthma, how was she diagnosed? I'm just curious because of the short of breath thing. The problem is Eli isn't noisy and you can't hear anything in his lungs, but he does cough.

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    Alana had a cough from August - November and I finally took her to the Pedi over it. We both assumed it was from her starting Pre-K and being exposed to new germs. She gave her an antibiotic but that did nothing for the cough. She also did blood work which showed she had eosinophilia, either from allergies or out of control asthma. She then sent us to the allergist who suspected both. At the time of our appointment Alana didn't have a cough (go figure) and her PFT's were actually above normal. The doc instructed us to come back to repeat the tests when her cough came back. A few days later it was back so we went back to his office. He went home early for the day but the nurses administered the tests. After reading her results they wanted me to take her to the ER but we went home and started albuterol every 4 hours instead. The doc called me on Monday and said the results were so bad he thought maybe Alana didn't do the tests right. I knew she did because the nurses made her repeat them several times. He had us come back in and he watched her do the tests so he knew they were done right. He let me know she was really sick and that he was going to give her a very strong breathing treatment. He did and she started bouncing off the walls, lol. Her PFTs improved and he diagnosed her with asthma. Had they not improved he said he would have admitted her to the hospital and looked for other causes. We've been battling the stupid cough ever since.

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    That's too bad that her cough came back. One of the girls in Sam's gymnastics class quit because she was dx with asthma and they realized the chalk in the gym was one of her triggers - now she's out of the gym she's doing a lot better. Maybe you can figure out what her triggers are and try to eliminate them. This girl switched to an indoor year-round soccer league (in NY things have to be indoors to be year round ).
    Natalie & Dan - June 2, 2001
    Samma - Nov. 5, 2004
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    See the cough thing is what gets me. Eli coughs ALL the time. Before his 2010 surgery I could definitely tell the difference between his coughs, whether it was allergies, heart, heart meds, or just a regular bug. But now I just assume everything is because of allergies or a bug since his valve isn't to a place it should cause the coughing and he doesn't do it at night. And he's also not on the heart meds (since they won't do anything to his subaortic stenosis). Did they hear noises in her lungs? Or is that a misconception? I KNOW he has allergies. And yes I should take him to the allergist. We have an appt with the sleep dr, who at least here is in the pulmonary clinic, so I was going to ask some questions about the cough and the shortness of breath. Allergies shouldn't make a person short of breath with exercise or crying right? Especially because he's been doing it for months. In fact it started right after Christmas and has just gotten progressively worse. This is one of those things I wish you were closer so you could hear him. I know you'd recognize something by the sound as a BTDT mom. It's one of those things you can't really get on video. You just have to hang out with him to see what I'm talking about.

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    There are a lot of misconceptions about asthma unfortunately. Not everyone with asthma wheezes and not everyone has asthma attacks. Alana very rarely wheezes, or at least you can't hear it without a stethoscope. Her inflammation tends to be very deep in her lungs. When her asthma flares up she does get short of breath but only with physical activity like swimming, dancing, or running. She doesn't usually cough at night either, only with more severe flare-ups.

    There is such a thing as allergy induced asthma and I think that has been one of Alana's problems. She has done much better since eliminating the foods she's allergic to, but we can't eliminate mold, weeds, grass, and trees, lol. Perhaps Eli does have allergies and maybe even to some foods. I'd definitely recommend taking him to an allergist ASAP.

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