Well hello...

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stupidcomputer's picture
Joined: 12/11/08
Posts: 374
Well hello...

So I just went on the Autism spectrum board and left a plea for people to join... I knew there had to be others.

But here you are...

We just found out on the 23d of December that my DS Harrison is PDD NOS. (atypical autism) Socially, he is pretty good. He has a bit of the eye contact avoidance but nothing major. He is a bit of an enigma, but there was enough to get an PDDNOS dx on him. His big thing is a developmental delay. We've pegged him at about 2.5 yrs old... ( He's almost 4)

I've been organizing funding all morning. The learning curve is steep isn't it? I have to hire a behaviour consultant and of course eveyone is on holidays.

My biggest worry is of course ; what does this all mean? How is this delay going to affect him?

We are also going to a geneticist next week to chat about the glitch he has on chromosome 15.

Good times.

At what point do I turn to alcohol to get through this?

BTW
I'm Kirsteen.

Joined: 05/05/04
Posts: 435

I don't have experience with ASD but there are moms who do, so I'm sure they'll have advice for you. All I can say is welcome to the board and you will make it through!!! It's never easy but it sounds like you're jumping in and figuring out what he needs and you're totally on top of things!

Joined: 12/01/05
Posts: 1000

Hi. It's nice to meet you. I work as a behavior consultant, and I want to tell you that you will get through this. I know you are in shock right now, but I think you'll find over time that it is not as bad as you think. The best thing you can do for him now is early intervention. Most ASD kids with early intervention end up leading productive lives, and many of them do catch up developmentally at some point. Does your son talk yet? I think the ability to communicate is about the most important thing you can give a child, regardless of their intellectual ability. If you get a good behavior specialist, they will focus on trying to help him communicate among other things.

Take a look at this website. I love it. There's so much useful information for teaching ASD kids, regardless of where they fall on the spectrum. It is produced by a language therapist, so she divides all of her games based on the child's current communication level. http://sites.google.com/site/autismgames/home

stupidcomputer's picture
Joined: 12/11/08
Posts: 374

"NatalieL" wrote:

I don't have experience with ASD but there are moms who do, so I'm sure they'll have advice for you. All I can say is welcome to the board and you will make it through!!! It's never easy but it sounds like you're jumping in and figuring out what he needs and you're totally on top of things!

I'm trying to pretend I'm on top of things! Wink

"2sonsplus1" wrote:

Hi. It's nice to meet you. I work as a behavior consultant, and I want to tell you that you will get through this. I know you are in shock right now, but I think you'll find over time that it is not as bad as you think. The best thing you can do for him now is early intervention. Most ASD kids with early intervention end up leading productive lives, and many of them do catch up developmentally at some point. Does your son talk yet? I think the ability to communicate is about the most important thing you can give a child, regardless of their intellectual ability. If you get a good behavior specialist, they will focus on trying to help him communicate among other things.

Take a look at this website. I love it. There's so much useful information for teaching ASD kids, regardless of where they fall on the spectrum. It is produced by a language therapist, so she divides all of her games based on the child's current communication level. http://sites.google.com/site/autismgames/home

He's really started trying to communicate. He can do 4-5 word sentences now... he's probably at a 2.7 year old level of talking. I agree, communication is so important! Like so many before me, I wish we could have got help for him earlier. The wait lists are crazy here though.

Thanks for the link. Fly out to Vancouver Canada and I'll hire you as our Behaviour consultant!

wishing4agirl's picture
Joined: 09/11/03
Posts: 917

Welcome to the board. I'm Angela and I have to special kiddos. One of which is is autistic (PDD-NOS Autism Spectrum Disorder). My other one was born with a congenital heart defect called Shone's Syndrome and a list of other problems.

Dakota is the one with autism. He was really delayed in everything and didn't talk until he was 3. The only words he knew were the ones he learned in sign. After we got him help he did great. He struggles a bit, but down the road 20 years he'll really be just like a lot of the others that years ago were missed being diagnosed. It's REALLY hard at first. Now Dakota is at the point since we know he's autistic, we have things that can help. In fact we got him ear plugs for his stalking this year for when we are at church and he can't handle the noise. I was talking with a friend recently and we both agreed that while the initial diagnosis can take your breath away it eventually helps to understand why they are doing things and develope strategies for getting them through those moments. Now that you have a diagnosis and can get him the help he needs just wait 3 years and he will seriously be a completely different kid.

Joined: 11/28/06
Posts: 848

Welcome to our board! I'm Tanya, and I have 2 sweet girls - Alana and Madison.

I have limited experience with Autism but I think it is wonderful that you got a diagnosis so early. My cousin is really struggling to get her daughter some help (and to convince her husband that there ARE issues) and early intervention is so important. Can't wait to hear more about your little guy!

Joined: 12/01/05
Posts: 1000

"stupidcomputer" wrote:

Thanks for the link. Fly out to Vancouver Canada and I'll hire you as our Behaviour consultant!

I wish I could. I love doing what I do, and Harrison looks like such a cutie Smile If there's anything I can do to help, I would be happy to. While you're waiting for a consultant, you can try some of the techniques on that website. Also, they have a lot of good advice for parents, if you've been able to look at any of that. Basically, anything you can do to get him interacting with you and actively exploring his environment would be great. Most kids on the spectrum spend a good bit of time living in their own head and/or passively absorbing the world around them. (Most would spend the whole day in front of a TV or computer if you let them.) Another thing that I've found is that they often do not instinctively know how to play with toys like neuro-typical children do (though this is not the case for all ASD children). I spend a lot of time playing with my kids teaching them how to play.