GL, keeping you and Matthew in my prayers!
Well now I feel guilty about complaining about Matthew's eating habits. We went to the cardiologist today for Matthew's follow up. We were told at 1 day old that Matt had a "very small" VSD along with an open PDA and PSO. To be honest, I was hoping that we'd get kind of a "get out of jail free" card today from God and that maybe everything would be fixed when we went in. Well, nope, didn't get that pardon that I was hoping for. Gor the good news, the PDA is closed and the PSO *should* close by 1 year old. However, Matthew's VSD is not "very small", but listed as a "moderate" hole at 5mm. Where it is located, they are concerned with his aortic valve too so we have to go back in 3 weeks to see how that is doing and to see if the VSD is causing any issues with his lungs. The doctors look for 2 main signs. 1:labored breathing...which he DOES have already and 2: poor weight gain...which he is far from having right now. Actually, my lil' moose gained 17 oz. since last Friday!!! He weighed 7 lbs. 15 oz. That's just crazy! But yeah, he is only feeding 7-10 minutes cause his heart and lungs get tired cause of the extra strain on his heart. So that's why he snacks and then has to eat so often. It makes me sad cause I feel guilty for complaining when poor lil' guy can't help it. I guess I'll continue to be sleep deprived since it's for a good cause. And as long as he keeps gaining well like he currently is, they won't push meds like lasix on him. Also, they want our family to go in for genetic testing. They want to see if me and the kids are missing chromosome 22Q. I guess if 22Q is missing, it causes heart issues and immunity issues. That would certainly answer some questions, but I don't they are missing it since Emma is an identical twin and has no heart issues. But it will ease our mind if we do get tested and besides, if they can do something with the results and help out even 1 other family down the road, it would be worth it. So if ya'll don't mind, please keep lil' man in your prayers. Kevin and I just kind of feel like we're being kicked while we're down. If there was ever a time to nominate someone you know on some talk show for a needed vacation...it would be us right about now. Sorry, had to try to lighten the mood somehow. Okay, off to feed Matthew...again before bed.
Kelly! You're getting all this stuff because you're one tough cookie sweetie!
I hope that Matthew's heart looks better at the 3 weeks check and the genetic testing comes back negative! You guys are in my thoughts!
My prayers are with you all.
Kelly- I'm glad that you and the dr's are being so vigilant with Matthew's heart and eating habits. You and Kevin are wonderful parents! I hope that the appointment in 3 weeks goes well and that Matthew continues to gain weight. KUP and hang in there! We're always here for a vent.
Very glad to hear he is doing so well gaining weight. Poor little guy, sending lots of prayers his VSD doesnt cause any further issues.
Hey Kelly, It's been so long since I've had time to check in on these boards and I just want to give you a big hug! You are doing everything you should for Matthew. You all are in my thoughts right now. Please KUP I know talking about things tends to make us feel better.
Big hugs! I know what you are going through with the heart issues. It is a hard time. Hoping that everything will be okay in 3 weeks.