anticardiolipin antibody
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  1. #1
    Mega Poster celticbandgeek's Avatar
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    Default anticardiolipin antibody

    Anybody have any experience with this? The nurse at my RE's office didn't feel it was going to be a huge concern....apparently it was a very low level or something. I suspect they will retest to see if it shows up again. But, just curious. I've been reading and seeing aspirin/blood thinners are the usual treatment.

    Any advice or experience? TIA!
    Jean


    2011/2012 - 1 M/C, 5 CPs

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    Prolific Poster WhiteWolf68's Avatar
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    I had Antiphospholipid Antibodies prior to my first son, maybe similar? It caused a lot of CP's. Once pregnant, I was put on a daily blood thinner (injection) and aspirin, all was well and it resolved itself too. Although I did seek out herbs to help conceive a good egg, the lady had me on ginger and two other herbs but this was in England and a long time ago (it seems ages ago that is). My brain is fuzzy on the herbs, sorry. My levels were "slightly elevated" btw.

    /Hugs
    Jennifer
    Kyle 11/10/05, Connor 09/10/07
    Faelynn & Finnley 09/24/12

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    Mega Poster celticbandgeek's Avatar
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    Hey Jen,

    Yeah, when I googled it, it came up as related to/a form of antiphospholipid antibodies. The "slightly elevated" sounds about the same as what I was told. I'm assuming that it is a possible reason for my CP's. I have to go for more bloodwork on day 3 of my next cycle, and I may ask that they repeat that test as well. I'm wondering if it would hurt to start taking a low dose aspirin in the meantime. I just might.

    Thanks for the info!
    Jean


    2011/2012 - 1 M/C, 5 CPs

    JLIH from here on out and leaving it in God's hands


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    Mega Poster hwunnie_bwunnie83's Avatar
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    I started taking low-dose asprin last year after our 2nd miscarriage, it can't hurt right? It's good for the heart too and we both have history of early heart-attacks in our families (late 40's - early 50's). Anyways, I found AF to be horrible while on the asprin, it would make her presence extremely heavy, full of clots and horrible cramps. After afew cycles of that, I couldn't take it anymore, AF was just unbearable. Maybe it was just me? I haven't tried going back on the asprin yet but I might try again next cycle since AF is back to her "spotting" ways again (mid-cycle) and maybe she needs a good clean out.
    Shannon
    (m/c 04/04/2008 & 02/12/2010)

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    Mega Poster celticbandgeek's Avatar
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    Thanks for the info Shannon. Sadly, (TMI) my AF always includes lots of cramps and clots...hate to see what would happen with aspirin!

    So, they retested and came up with elevated levels a 2nd time. NOW they seem a bit more concerned about it. Going to a hematologist in 2 weeks. Nurse said that I'd get a lot more info at that appointment, but their usual experience is that I'll probably have the Lovenox injections right from IUI/IVF transfer (because my losses were SO early) and through the entire pg.

    How bad are the shots? I've never been good with needles and was already dreading just the ones for the IUI or IVF cycles. Now I'm really intimidated, and I've read that they burn like crazy. Once again, I'm interested in any experiences and advice!
    Jean


    2011/2012 - 1 M/C, 5 CPs

    JLIH from here on out and leaving it in God's hands


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    Super Poster Kimmie1977's Avatar
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    **Lurker**

    I was on blood thinners and baby aspirin my entire pregnancy for an immunity/clotting problem. The shots weren't any worse than the follistim injections I'd taken to get pregnant. Once I got past the fear of injecting myself, it was easy. I was on Heparin 2x a day and it didn't burn to bad for me. I was never on Lovenox, so I don't know if it burns more or less. I bruised a lot and I always knew when I'd hit a vein (that hurts more and leaves a bigger bruise).

    I didn't change my daily activities too much. I still shaved my legs and used a knife while cooking. I also kept extra Heparin and needles in my purse in case I forgot to do the injection in the morning or if I ended up out late.

    I did end up with a c-section, but I had no complications.

    I was all worth it. My heparin baby is now 13 1/2 months old.

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    Prolific Poster WhiteWolf68's Avatar
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    Jean, I just got retested and mine is back! They did another blood draw this morning to confirm. I'm seeing Diamond Institute in Millburn now and starting IUI up. As much as I hated the needles, I always said I would gladly do it again for another baby...so looks like it's back to the big ole sharpie box for me. Hey, we do what we gotta do to have our dreams come true but at least you're not alone now.

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    Mega Poster celticbandgeek's Avatar
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    I'm sorry hear that it's back, but at least they knew to check for it right away! I hope you have a much better experience with the new place!

    When I went to the specialist last week, she didn't quite know what to do with me (not incredibly encouraging. ) Mostly because it was a very borderline result, so she really doesn't know if it is the problem or not and whether it would require shots or not. I go back for more b/w at the end of the month, and she felt that the result then would be more telling. And, we'll have a plan going into my first IUI cycle in Sept.

    I hope this works soon for BOTH of us! It is definitely time!
    Jean


    2011/2012 - 1 M/C, 5 CPs

    JLIH from here on out and leaving it in God's hands


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    Prolific Poster WhiteWolf68's Avatar
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    Back in England, mine was slightly elevated, enough for concern and it was better to do the injections. KWIM... That's great you are starting in Sept! We're practically cycle buddies.

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    Mega Poster celticbandgeek's Avatar
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    Yeah...it was trending just slightly higher on each test. If the next one goes up, I think we'll be erring on the side of caution and just doing it. I REALLY hate needles, but I guess I'm going to be making friends with them soon.

    It'll be nice being cycle (almost) buddies! Hopefully on to BB buddies, too.
    Jean


    2011/2012 - 1 M/C, 5 CPs

    JLIH from here on out and leaving it in God's hands


    MyFitnessPal - Free Weight Loss Tools


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