Ryken's thyroid levels

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KatieWillis's picture
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Ryken's thyroid levels

We had Ryken's thyroid levels tested on Tuesday. Most of you know he has hypothyroidism, so we have to give him synthetic hormone everyday and have his levels tested every so often and adjust the dose as necessary. Well, we got the results back and his TSH is high and his free and total t4 is in normal range. We should expect to have normal TSH since the t4 came back normal. So....we're not really sure what this means and we'll be meeting with our new Pediatric Endocrinologist soon. They are supposed to call me tomorrow to set up an appointment. When I googled his results I couldn't find much that was similar to his situation because he is on meds already, the only thing I could find was pituitary problems (since the pituitary produces TSH). Anyway, we're hoping it's nothing but we're still nervous.

T&P please!

rubber_da_glove's picture
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:bighug:

KUP on his appointment

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:bigarmhug: I hope everything is okay!!

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Thanks for replying Sarah & Veronica!

We had his appointment this morning with his new Endocrinologist and it went really well! We really like him and so does Ryken, so that's a plus. Basically he put our mind at ease and said we just need to increase his dose and check his levels again in 6 weeks. We're also doing to start giving it to him in the morning and see if it helps him sleep better at night.

I kind of feel silly for getting worried about it, but I would just hate for him to have low levels in his body and have negative affects from it. Sad

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Glad it went well!! What are the negative effects? (I don't know anything about it)

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If left totally untreated he would be special needs his entire life and have major learning disabilities and it would also stunt his growth. So I worry when his dose isn't enough that it might be inhibiting him somehow with learning.

Here's a link http://en.wikipedia.org/wiki/Congenital_hypothyroidism

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So glad you liked the new Endo and he could put your mind at ease!

From the video you posted on facebook of Ryken talking with you about that watch, he is doing great!!! I don't think you have anything to be worried about with his development at all!

:bigarmhug:

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How scary!!! I'm glad you found a great doctor!!

And I agree with Jamie, from the vids you post of him there is nothing wrong with him Smile

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Subclinical hypothyroidism. And I think you are VERY smart for being all over it and worrying about it; and talking to the doctor about it. I would worry over this as well, given the long term damage that can happen. So, first thing in the morning, thirty minutes before food, right?

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I'm glad everything went well and you really like the new doc. I didn't realize hypothyroidism could cause developmental problems. It's great that you are staying on top of it.

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Glad u found a good doc!!! I`d be all over it too.