update on Jocelyn 7/28

13 posts / 0 new
Last post
stuntmonkey's picture
Joined: 04/24/08
Posts: 145
update on Jocelyn 7/28

Jocelyn had her 1-year speech therapy evaluation on Thursday. Lots of news to report.

Her expressive language is now age-appropriate. She scored 97. (Anywhere from 85-115 is considered “normal.") I am shocked and thrilled and a bit skeptical.

Her receptive language is still two standard deviations under normal. She scored 66 on the same scale where 85-115 is “normal.” I’m surprised that the discrepancy is so large.

This discrepancy indicates a disorder instead of a delay. With a delay, her scores would be expected to be much closer.

So, now the million-dollar question is… what disorder does she have? ADHD is still the most obvious possibility. Probably with some executive functioning issues. And now we can consider a possible auditory processing issue as well. My mommy-gut tells me that the root of her receptive language problems is an auditory processing disorder (APD) caused by her not being able to hear anything for 10 critical months when other kids were learning how to listen. (Luckily, APD is very treatable and most kids normalize just fine in elem school.)

And of course, the big autism worry… Receptive language being worse than expressive language is a red flag. But, there were more green flags on the evaluation. She showed good pretend play, good eye contact, and good interactions during the evaluation. So, the “Social Communication Disorder” dx coming in the 2013 should still be the closest she comes to a social-based problem, if she even qualifies for that when the time comes.

Her therapist showed us some of the receptive language questions she missed. She was in the ballpark for all the questions, but she was not able to fully understand or fully perform what the question was asking her to do. One question had a picture of a boy walking a dog and she was asked to “Point to the nose on the dog.” She pointed to the dog, and did not get credit. Another question had a picture of a boy in pajamas sitting on a bed holding a blanket, and she was asked to “Point to the blanket” and she said “Go night night!” She was also unable to answer some questions about the function of objects, like “What do you do with a cup?” She knows what to do with a cup, she knows what a cup is and she knows the word "drink," but she was unable to answer the question.

So, now we know where to focus our efforts. Receptive language. We think the developmental preschool she will be attending in the fall is the perfect intervention, and we are so glad she will have this opportunity. We are also going to keep her in private ST two times a week like she did all last year. Her strides this past year have been nothing short of amazing, and we are so, so proud of her and thankful for her progress.

Oh, and just to keep me on my toes, Elliott now needs to start speech therapy, feeding therapy, occupational therapy, and possibly physical therapy. He has zero words at 16 months, he does not have a pincer grasp yet, he will not feed himself, and he refuses to eat anything even close to crunchy. He will only eat soft foods from a spoon from an adult. He's also not walking independently yet, but he's super close (can take about 3 steps by himself at this point). So, here we go again down the early intervention path...

rubber_da_glove's picture
Joined: 12/31/07
Posts: 1527

I get really excited when there is going to be an update from you. I love hearing how Jocelyn is progressing Smile Sounds like she is doing really well. I'm sure she'll catch up soon and you'll wonder what all the fuss was about Smile

I think Tobey is going to end up in physical therapy for walking too. He's not even trying to move. Kids are send to test us aren't they?!? You'll have to KUP on Eliott too :bighug:

KatieWillis's picture
Joined: 07/01/07
Posts: 1441

Glad Jocelyn is doing well! I agree, I bet she'll catch up soon. We just asked Ryken what you do with a cup and he answered with 'milk.' He doesn't understand questions like that...'what do you do with this or that.'

Sorry to hear about Elliot! Has he already been evaluated?

SuzyQ16's picture
Joined: 02/01/08
Posts: 879

I don't think Makenna could answer that question either, she is napping right now but when she wakes up I will ask her what to do with a cup.

Starryblue702's picture
Joined: 04/06/11
Posts: 5454

Glad to hear your daughter is doing well. I had these fears with my son Max because he has a lot of the autism symptoms, although none of them speech related. Mostly with the constant rocking, humming, and lack of empathy. DH doesn't want to have him tested because he actually does well in school... but we'll see how it goes.

VixB's picture
Joined: 05/07/08
Posts: 1435

Thanks for the update. It's great that Jocelyn is doing good for the talking part. Receptive language will follow.
Has Elliott been evaluated?
What age did Jocelyn started walking?

stuntmonkey's picture
Joined: 04/24/08
Posts: 145

"VixB" wrote:

Has Elliott been evaluated?
What age did Jocelyn started walking?

Elliott gets evaluated next week.
Jocelyn started walking at 12 months old.

VixB's picture
Joined: 05/07/08
Posts: 1435

well kup on Elliott's evaluation.
Hope is goes well.

rubber_da_glove's picture
Joined: 12/31/07
Posts: 1527

Does he crawl Jamie?

Joined: 08/25/03
Posts: 808

Sounds like Jocelyn is doing very well! She is way beyond Jakey in the language department! KUP on Elliott - Emma didn't walk until after 16 months but she hasn't stopped since Wink

stuntmonkey's picture
Joined: 04/24/08
Posts: 145

"rubber_da_glove" wrote:

Does he crawl Jamie?

Oh, yes. He is a master crawler. Crawls like lightning. He can descend with decent control. He can easily pull up and cruise along furniture. He can take about 2 or 3 (unsteady) steps between toys. He can crawl up and down stairs and climb up and down on the couch.

His fine motor skills concern me more than his gross motor skills. If the little man had a pincer grasp and would feed himself, I'd feel pretty okay about his development. He can rake things and hold toys and even pass toys from one hand to the other, but he doesn't have a pincer grasp at all.

fuchsiasky's picture
Joined: 11/16/07
Posts: 955

"KatieWillis" wrote:

Glad Jocelyn is doing well! I agree, I bet she'll catch up soon. We just asked Ryken what you do with a cup and he answered with 'milk.' He doesn't understand questions like that...'what do you do with this or that.'

Sorry to hear about Elliot! Has he already been evaluated?

I just asked Kaiya. She said "cup".

I am glad to hear that she is progressing so well. It is great that you were able to have her hearing dealt with so that she can move forward as well as she is. Sometimes having an idea as to why something isn't going right can make a lot of difference. I hope that you can figure out what is up with Elliot so that he can move forward just as well.

natesangel's picture
Joined: 07/26/08
Posts: 1419

:lurk:
i have come to look forward to your updates! wtg jocelyn!!! sounds like she is way on her way to an A+ report!! and again wtg momma on catching these things early! sorry to hear that elliot seems to be following in the footsteps of needing the early intervention but it sounds like you should have no problems and a little less stress with it this time around! look forward to future updates on both!