Reflux

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Joined: 04/10/11
Posts: 1703
Reflux

Have any of you had to take a baby to the gastroenterologist? What can I expect at the appointment?

Starryblue702's picture
Joined: 04/06/11
Posts: 5454

No advice at all for you... but good luck! Are both babies having issues?

Joined: 04/10/11
Posts: 1703

Thanks. Nope, just one.

Panonim's picture
Joined: 11/11/05
Posts: 439

I don't have any experience with this, but can I ask what your baby's symptoms were? Or what led you to think reflux? Wondering if that is our problem too....

Joined: 04/10/11
Posts: 1703

"Failure to thrive," no weight gain in a month, eating/hunger/having just eaten are all painful.

.hilary.'s picture
Joined: 01/31/10
Posts: 1505

I'm so sorry you're going through this Sad I hope you get some answers at the appointment.

Joined: 10/05/09
Posts: 672

We haven't since the closest one is 4 hours away from where we live. But if things don't improve it might be our next step. Ryan is suspected to have reflux because he a) never eats more than 2 ounces at a time b) cries 10 minutes into a feed or after 2 ounces, but tries to suck back the bottle between cries c) frequent hiccups, congestion etc. Because he essentially wants to nurse for 2-3 minutes every hour he never sleeps well and is perma-cranky.

The course of treatment here is to put the kids on medication and see if they improve. He's been on Zantac (no improvement) and now on prevacid for a week (no improvement). I've cut out soy and dairy for 2 months - no change in behaviour. Now I've cut out gluten - no change.

The difference is he gains weight ok. I expect they might want to scope your girl to confirm reflux. Is she on any meds?

Joined: 04/10/11
Posts: 1703

She's not on any meds now but I assume we'll try something after her appointment on Monday. For the moment we're thickening her milk (mostly pumped breastmilk, some formula) with rice cereal as the pediatrician advised. I'm super afraid of going no dairy but that seems to always be the suggestion. I eat dairy in absolutely every meal. There's no time to cook or figure out healthier and especially non-dairy foods right now. I eat endless yogurt and cereal with milk and cheese with crackers. It's easy, you know? I guess I should look up non-dairy food ideas while I'm online and pumping.

fireflies11's picture
Joined: 03/26/11
Posts: 613

((hugs)) To you and baby girl!!
I hope you get answers soon!
In regards to the dairy allergy, I think a sure test is if baby has blood in her stool. If yes, then she for sure has a dairy allergy, if no, you may be in the clear.

KUP!

Joined: 10/05/09
Posts: 672

"fireflies11" wrote:

((hugs)) To you and baby girl!!
I hope you get answers soon!
In regards to the dairy allergy, I think a sure test is if baby has blood in her stool. If yes, then she for sure has a dairy allergy, if no, you may be in the clear.

KUP!

I should have mentioned this - Ryan had blood in his poop and had and continues to have very runny, slimy poop (it's mucousy). Those are telltale signs of food intolerance. The blood went away 3 weeks after I stopped dairy and soy (I guess the proteins are similar) but the mucous stayed.

The no dairy no soy is tough I agree. I found dome dairy and soy free bread and eat lots of home cooked meals - but I don't have twins!! We usually make one big batch of something (e.g. Stew) on the weekend and eat it all week. I've replaced butter with avocados and still eat sandwiches that way. So yeah, it's hard but gets easier with time. If your girl doesn't have runny poop or blood I think I would try cutting out the obvious dairy first. You can replace milk with oat milk or almond milk or rice milk. It's not good but it works. Sorry you are going through this it's so frustrating!

The alternative is to try a formula with hydrolyzed proteins for 2-3 weeks and see if there is any improvement. We tried nutramigen but while ryans poop improved right away his feeding reluctance did not, so I went back to bf.

Joined: 04/10/11
Posts: 1703

Yeah, she has no blood in the poop and rarely spits up, so I won't even attempt no dairy unless the GI doc says so. We'll just work on getting through the weekend since we have the first appointment on Monday.

_Jessicah_'s picture
Joined: 04/21/11
Posts: 1973

My Ryan has reflux and a milk protein allergy. He is on Nutramigen for the milk allergy (it also improved his poop but did nothing for the reflux), we thicken his bottle with cereal and he's on Zantac for the reflux. All of these helped him and he is a completely different baby. I knew there was no way I could do the no dairy diet so we decided formula was the way to go.

Also I don't think they scope the babies to test for reflux. My niece was tested and they just had her swallow a liquid containing barium from a bottle and they did a video type x-ray where they filmed her swallowing and they watched where the liquid went.

I hope your little one gets better. This is such a hard thing to deal with.

Joined: 10/05/09
Posts: 672

I wouldn't do the dairy either unless I absolutely had to. We've tried both zantac and prevacid for reflux with no visible improvement. Good luck on Monday! I am curious to hear how it goes. We have another ped appointment on Monday but I don't think he has any new ideas to try for us.

_Jessicah_'s picture
Joined: 04/21/11
Posts: 1973

Elle, do you lay him flat to sleep? Ryan cannot lay down flat for very long without his reflux starting to bother him.

joyjim's picture
Joined: 05/22/06
Posts: 822

i had to cut dairy out of my diet. No Dr. told me too, but if I eat it Kai freaks out, he gets very gassy and inconsolable, he also gets a bad diaper rash. I miss dairy and hope to try it again soon and see if he can tolerate it now.

I am so sorry you guys are having a hard time. I hope you find answers and get your babies feeling some relief. Hugs!

Joined: 10/05/09
Posts: 672

"_Jessicah_" wrote:

Elle, do you lay him flat to sleep? Ryan cannot lay down flat for very long without his reflux starting to bother him.

We have his bassinet elevated and even his change pad is elevated. I am not sure it made a difference. Sometimes I think he just gets gas when he starts eating and it bothers him but who knows. I was really hoping the prevacid would work but I think he might just be one of those kids that want to eat an ounce every hour rather than a full meal.

_Jessicah_'s picture
Joined: 04/21/11
Posts: 1973

Elevating the head of Ryan's bassinet didn't help him at all either. He actually sleeps in his bouncy which keeps him upright mostly. He sleeps so soundly in it. If we lay him down within 30-40 minutes he'll start thrashing around and whimpers in his sleep.

Joined: 04/10/11
Posts: 1703

Nothing was obvious at our appointment. I was asked not to cut dairy or make changes during the testing, she has to see a neurologist before they'll prescribe reflux meds, we're sending in poop tomorrow, we go back next week for a barium test, and we see the gastroenterologist again in two weeks. So busy and no answers yet.

Joined: 10/05/09
Posts: 672

So sorry you have no answers, that is so frustrating! 2 weeks seems so long for you I am sure. When is your neurologist appointment? I hope at least they got you in right away? Funny to see how the treatment strategies differ... here they just start with the reflux meds (no neurologist appt required). That being said I am not sure that's what Ryan's problem was. We are actually off the prevacid now to see if that makes any difference. Hang in there Sheila!

.hilary.'s picture
Joined: 01/31/10
Posts: 1505

Wow, Sheila, that sounds like so much to go through Sad very busy for sure, but I hope some answers come out of all this testing. And soon, too...2 weeks is a long time to wait!

Joined: 04/10/11
Posts: 1703

Well, there is some question about neurological disorder. It's not standard practice.

Joined: 10/05/09
Posts: 672

Oh no I am sorry. Hope you get some answers very soon! :bigarmhug: